Informal carers’ experience of caring for stroke survivors

Smith, Lawrence D.; Lawrence, Maggie; Kerr, Susan; Langhorne, Peter; Lees, Kennedy R.

doi:10.1111/j.1365-2648.2004.02983.x

Cited by 130 publications

(177 citation statements)

References 25 publications

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“…10 In this study 68.4% of HCPs identified a need to know more about advising carers and/or relatives on personality changes. This is in line with research elsewhere that has found that personality changes in the post stroke survivor often make relatives feel as if they are "living with a stranger" (Smith et al 2004) We are unclear why more HCPs than doctors wanted further knowledge on the assessment and management of post-stroke depression. Perhaps doctors felt confident in managing depression or they may have seen it as another HCP's role.…”

Section: Clinical Knowledge In Strokesupporting

confidence: 73%

Stroke education for healthcare professionals: Making it fit for purpose

Smith

Craig

Weir

et al. 2008

Nurse Education Today

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TitleStroke Education for Healthcare Professionals: Making it Fit for Purpose Research Questions1. What are healthcare professionals' (HCPs) educational priorities regarding stroke care? 2. Do stroke care priorities vary across the primary and secondary sectors? 3. How do HCPs conceive stroke care will be delivered in 2010? Study DesignThis was a two-year study using focus groups and interviews for instrument development, questionnaires for data collection and workshops to provide study feedback. Data were collected in 2005-06. Study SiteOne Scottish health board. Inclusion CriteriaAll National Health Service healthcare professionals working wherever stroke care occurred. Population and SampleParticipants were drawn from four university teaching hospitals, 2 community hospitals, 1 geriatric medicine Day Hospital, 48 General Practices (GPs), 12 care homes and 15 community teams. The sample comprised 155 doctors, 313 nurses, 133 therapists [physiotherapists, occupational therapists, speech and language therapists], and 29 'other HCPs' [14 dieticians, 7 pharmacists, 2 podiatrists and 6 psychologists]. ResultsHCPs prefer fact-to-face, accredited education but blended approaches are required that accommodate uni and multidisciplinary demands. Doctors and nurses are more inclined towards discipline-specific training compared to therapists and other healthcare professionals (HCPs) HCPs in primary care and stroke units want more information on the social impact of stroke while those working in stroke units in particular are concerned with leadership in the multidisciplinary team. Nurses are the most interested in teaching patients and carers.1 ConclusionsStroke requires more specialist stroke staff, the upskilling of current staff and a national education pathway given that stroke care is most effectively managed by specialists with specific clinical skills. The current government push towards a flexible workforce is welcome but should be educationally-sound and recognise the career aspirations of healthcare professionals.

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Section: Clinical Knowledge In Strokesupporting

confidence: 73%

Stroke education for healthcare professionals: Making it fit for purpose

Smith

Craig

Weir

et al. 2008

Nurse Education Today

Self Cite

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“…Research demonstrates that stroke survivors and their caregivers often lack the information necessary to help manage the recovery process at home [23][24]. Many stroke caregivers lack basic information about strokes, strategies for caring for stroke survivors, and ways to prevent complications and future strokes.…”

Section: Stroke Caregivingmentioning

confidence: 99%

Stroke caregiver information needs: Comparison of Mainland and Puerto Rican caregivers

Hinojosa¹,

Rittman²

2007

JRRD

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Abstract-Research indicates that informal caregivers of stroke survivors often do not have the information necessary to adequately manage the recovery process at home. This article presents findings on the information sources and needs of stroke caregivers both in Puerto Rico and the Mainland United States. Data were collected from 120 caregivers (42 Puerto Rican, 78 Mainland) of veterans who had experienced a stroke. Of all caregivers, 22% to 50% reported the need for information related to stroke recovery. This need was greater for Puerto Rican caregivers compared with Mainland caregivers. Caregivers receive most of their information from their doctors, the Veterans Health Administration (VHA), and the Internet. This study highlights the need for information dissemination to Puerto Rican and Mainland caregivers within the VHA system. This dissemination is an important and ongoing goal of the Stroke Quality Enhancement Research Initiative and the VHA/ Department of Defense Clinical Practice Guidelines.

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“…Care giving is a very important task that post-stroke disabled patients understand very little and the informal caregivers make an important contribution to supply disabled stroke survivors at home 15,16 . Previous researches demonstrate that stroke survivors and their caregivers often lack the information necessary to help manage the recovery process at home 17,18 . Moreover, informal caregivers face the dual challenge of coming to terms with the sudden onset and subsequent disabling impact of stroke and the realization that the person may require long-term support 19 .…”

Section: Introductionmentioning

confidence: 99%