Information needs and mHealth applications for carers of people with dementia in managing behavioural and psychological symptoms of care recipients: an integrative review protocol

Jagoda, Thilanka; Rathnayake, Sarath; Dharmaratne, Samath D

doi:10.1136/bmjopen-2021-060414

Cited by 4 publications

(4 citation statements)

References 38 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“… 29 This integrative review was guided by Whittemore and Knafl’s framework, 29 which includes five steps: (1) problem identification, (2) literature search, (3) data evaluation, (4) data analysis and (5) presentation. The protocol of this review has been registered on the International Prospective Register on Systematic Reviews (CRD42021238540), 30 and it has been published. 30 …”

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

Informal carers’ information needs in managing behavioural and psychological symptoms of people with dementia and related mHealth applications: a systematic integrative review to inform the design of an mHealth application

2023

Self Cite

View full text Add to dashboard Cite

ObjectiveTo review and synthesise the evidence on informal carers’ information needs in managing behavioural and psychological symptoms of dementia (BPSD) of their care recipients and related mobile health (mHealth) applications to inform the design of an mHealth application.DesignThis is a systematic integrative review guided by Whittemore and Knafl’s five-stages framework. Six databases were searched: Cochrane, CINAHL, Embase, MEDLINE, ProQuest and PsycINFO. The key concepts included ‘dementia’, ‘behavioural and psychological symptoms’, ‘informal carers’ and (‘information need’ or ‘mHealth application’). Peer-reviewed full-text articles published in English from 2000 to 2022 were included. The methodological rigour of studies was analysed using the Mixed Methods Appraisal Tool V.2018. Preferred Reporting Items for Systematic Reviews and Meta-Analyses-2020 reporting guidelines were followed.ResultsThis review included 34 studies, including quantitative (n=13), qualitative (n=17) and mixed-method (n=4) studies. Four major themes emerged from the reported studies: the need for addressing information needs on managing BPSD, the role of support systems in managing BPSD, self-care for carers and the role of mHealth applications in providing education and support for carers. In managing BPSD, carers seek knowledge about dementia and BPSD, the roles of the carers and misconceptions about BPSD. One study reported an mHealth application to monitor the behavioural issues of people with dementia.ConclusionInformal carers of people with dementia face a number of challenges when providing care for BPSD of their care recipients. The lack of knowledge on managing BPSD is a significant challenge. Support systems such as professional, social, residential, legal and eHealth have a significant role in managing the BPSD of people with dementia in the community. mHealth interventions are sparse to support BPSD management. These findings can be used in designing an mHealth application that addresses needs related to managing BPSD of informal carers of people with dementia.PROSPERO registration numberCRD42021238540.

show abstract

Section: Methodsmentioning

confidence: 99%

“…The protocol of this review has been registered on the International Prospective Register on Systematic Reviews (CRD42021238540), 30 and it has been published. 30 …”

Section: Methodsmentioning

confidence: 99%

Informal carers’ information needs in managing behavioural and psychological symptoms of people with dementia and related mHealth applications: a systematic integrative review to inform the design of an mHealth application

2023

Self Cite

View full text Add to dashboard Cite

show abstract

“…Several recent studies have investigated the information needs of patients with dementia, and most of these studies use technologies such as Internet searches, specialized web systems, or mobile or wearable devices, as approaches to meet such information needs 6 , 21 , 22 .…”

Section: Literature Reviewmentioning

confidence: 99%

Evaluation of ChatGPT’s responses to information needs and information seeking of dementia patients

Saeidnia,

Kozak,

Lund

et al. 2024

Sci Rep

View full text Add to dashboard Cite

Many people in the advanced stages of dementia require full-time caregivers, most of whom are family members who provide informal (non-specialized) care. It is important to provide these caregivers with high-quality information to help them understand and manage the symptoms and behaviors of dementia patients. This study aims to evaluate ChatGPT, a chatbot built using the Generative Pre-trained Transformer (GPT) large language model, in responding to information needs and information seeking of such informal caregivers. We identified the information needs of dementia patients based on the relevant literature (22 articles were selected from 2442 retrieved articles). From this analysis, we created a list of 31 items that describe these information needs, and used them to formulate 118 relevant questions. We then asked these questions to ChatGPT and investigated its responses. In the next phase, we asked 15 informal and 15 formal dementia-patient caregivers to analyze and evaluate these ChatGPT responses, using both quantitative (questionnaire) and qualitative (interview) approaches. In the interviews conducted, informal caregivers were more positive towards the use of ChatGPT to obtain non-specialized information about dementia compared to formal caregivers. However, ChatGPT struggled to provide satisfactory responses to more specialized (clinical) inquiries. In the questionnaire study, informal caregivers gave higher ratings to ChatGPT's responsiveness on the 31 items describing information needs, giving an overall mean score of 3.77 (SD 0.98) out of 5; the mean score among formal caregivers was 3.13 (SD 0.65), indicating that formal caregivers showed less trust in ChatGPT's responses compared to informal caregivers. ChatGPT’s responses to non-clinical information needs related to dementia patients were generally satisfactory at this stage. As this tool is still under heavy development, it holds promise for providing even higher-quality information in response to information needs, particularly when developed in collaboration with healthcare professionals. Thus, large language models such as ChatGPT can serve as valuable sources of information for informal caregivers, although they may not fully meet the needs of formal caregivers who seek specialized (clinical) answers. Nevertheless, even in its current state, ChatGPT was able to provide responses to some of the clinical questions related to dementia that were asked.

show abstract

“…Understanding carers’ experiences with technology in supporting their caring journey is crucial for evaluating the relevance and utility of this medium in enhancing support and reducing the burden on carers. While existing research on mHealth [ 32 – 35 ] and eHealth interventions [ 36 – 38 ] has predominantly focused on Western contexts, it is important to consider the specific needs and experiences of carers in Asian countries. However, it is noteworthy that Singapore, being an Asian country, boasts well-developed technological systems that may bear similarities to those in developed or Western countries.…”

Section: Introductionmentioning

confidence: 99%

Barriers to using eHealth/mHealth platforms and perceived beneficial eHealth/mHealth platform features among informal carers of persons living with dementia: a qualitative study

Samari,

Yuan,

Zhang

et al. 2024

BMC Geriatr

View full text Add to dashboard Cite

Background New technologies have brought about a new age of technology-enabled aids that can equip informal carers with the relevant resources for better care. These include but are not limited to facilitating access to healthcare providers, knowledge of caring for persons living with dementia, and sources of support for carers’ well-being. This qualitative study explores barriers to using eHealth/mHealth platforms and perceived beneficial eHealth/mHealth platform features among informal carers of persons living with dementia. Methods An exploratory qualitative study design was employed. Semi-structured interviews were conducted among 29 informal carers of persons living with dementia in Singapore recruited via convenience and snowball sampling. The interviews were audio-recorded and transcribed verbatim. Thematic analysis was used to analyse the data. Results The participants in this study identified several barriers to using eHealth/mHealth platforms, including personal preference, apprehension, poor user experience and lack of skills. On the other hand, knowledge of dementia, caring for persons living with dementia and self-care, a list of resources, social support, location monitoring and alert systems, and the ability to manage appointments and transactions were valuable features for eHealth/mHealth platforms. Conclusions Despite the underutilisation of eHealth/mHealth platforms, carers expressed a keen interest in using them if they are functional and capable of reducing their care burden. The findings from this study can contribute to developing content and features for eHealth/mHealth interventions aimed at lightening carers’ burden in their day-to-day caring routine.

show abstract

Information needs and mHealth applications for carers of people with dementia in managing behavioural and psychological symptoms of care recipients: an integrative review protocol

Cited by 4 publications

References 38 publications

Informal carers’ information needs in managing behavioural and psychological symptoms of people with dementia and related mHealth applications: a systematic integrative review to inform the design of an mHealth application

Informal carers’ information needs in managing behavioural and psychological symptoms of people with dementia and related mHealth applications: a systematic integrative review to inform the design of an mHealth application

Evaluation of ChatGPT’s responses to information needs and information seeking of dementia patients

Barriers to using eHealth/mHealth platforms and perceived beneficial eHealth/mHealth platform features among informal carers of persons living with dementia: a qualitative study

Contact Info

Product

Resources

About