Information needs and sources of information for women with breast cancer: a follow‐up study

Luker, Karen A.; Beaver, Kinta; Leinster, Sam; Owens, R. Glynn

doi:10.1111/j.1365-2648.1996.tb00010.x

Cited by 243 publications

(235 citation statements)

References 16 publications

(19 reference statements)

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“…Luker and colleagues 33 found that 105 patients with breast cancer reported gaining useful information at the time of diagnosis from medical professionals. At an average of 21 months later, however, this sample reported gaining information primarily from the popular media and often reported discomfort in requesting information from medical providers.…”

Section: Table 1 Myths Of Treatment Completionmentioning

confidence: 99%

Promoting adjustment after treatment for cancer

Stanton

Ganz

Rowland

et al. 2005

Cancer

183

157

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The transition from the period of diagnosis and medical treatment of cancer to survivorship (i.e., the reentry phase) is an understudied phase in the cancer trajectory. The objectives of this report were 1) to illustrate several adaptive tasks of the reentry phase, 2) to provide examples of research on factors that predict positive adjustment during this phase, and 3) to discuss interventions that address the adaptive tasks of early cancer survivorship. Although the pertinent empirical literature is scarce, accounts from cancer survivors, healthcare professionals, and qualitative researchers converge to suggest several themes in adaptive tasks during reentry. Drawing from the authors' work and that of others, the authors have described common expectancies held by many individuals approaching reentry (e.g., "I shouldn't need support"), typical concerns during this phase (e.g., concern over cancer recurrence), and personal and contextual factors that can facilitate and

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Section: Table 1 Myths Of Treatment Completionmentioning

confidence: 99%

Promoting adjustment after treatment for cancer

Stanton

Ganz

Rowland

et al. 2005

Cancer

183

157

View full text Add to dashboard Cite

show abstract

“…At the conclusion of treatment, medical care and support may decrease owing to the belief that the worst is over and that the patient does not require ongoing assistance [23]. Patients indicate some discomfort requesting information from medical providers as time since diagnosis increases and instead seek information from popular media [24]. Breast cancer patients report a significant decrease in the helpfulness of emotional, informational and decisionmaking support from family, friends and health providers within the first year of diagnosis [19] and patient satisfaction with healthcare decreases over time [25].…”

mentioning

confidence: 99%

Predictors of change in unmet supportive care needs in cancer

et al. 2010

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Objective: Patient Reported Outcome (PRO) assessments can assist health professionals to tailor their health practices to the individual needs of patients and improve patient care over time. The present study assessed prospective predictors of unmet supportive care needs in cancer patients over a six-month period.Methods: Participants were recruited from a regional cancer treatment centre in Australia and completed the Supportive Care Needs Survey (SCNS) at recruitment (n 5 439; 61.4% response rate) and six months follow-up (n 5 396). Hierarchical logistic regression was used to identify predictors of change in unmet needs across each supportive care domain. Predictor variables were socio-demographic, treatment and psychosocial factors including depression, anxiety, social support, and patient satisfaction.Results: Unmet needs were reported by approximately two-thirds of patients at baseline and half of patients at six months follow-up. Having unmet needs at baseline was the strongest predictor of unmet needs at six months. Longer time since diagnosis was a consistent predictor of greater unmet needs, associated with change in physical/daily living, psychological and health system and information unmet needs over time. By contrast, a complex relationship was found in that patient satisfaction, psychosocial and treatment characteristics predicted higher needs in some domains and lower needs in others.Conclusions: Unmet supportive care needs persist over time and psychological needs may emerge later in the illness continuum. Interventions to meet the needs of longer term cancer survivors are needed and should closely articulate with reported supportive care needs.

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“…Information preferences were associated with age, education, race, and medical status. Since that seminal study, a number of others have explored the information needs of cancer survivors [5,[11][12][13][14][15][16][17][18][19]. These studies identified other patient factors that influenced information needs including gender, employment status, coping style, type of cancer, and time since diagnosis.…”

Section: Introductionmentioning

confidence: 99%

Cancer survivors information seeking behaviors: A comparison of survivors who do and do not seek information about cancer

Mayer

Terrin

Kreps

et al. 2007

Patient Education and Counseling

201

210

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Objective-To examine the cancer information seeking behaviors and preferences of cancer survivors. Results-Two thirds (67.5%, n=418) of the survivors sought cancer information (InfoSeek) and 32.5% (n=201) did not (NoInfoSeek). Significant predictors of cancer information seeking included age (less than 65), gender (female), income (>$25,000/yr) and having a regular HCP. Methods-ThisConclusion-Not all survivors actively look for cancer information. Although most survivors prefer receiving cancer information from their HCP, many turn to a variety of other sources, primarily the internet.Practice Implications-HCPs should periodically assess information seeking behaviors and preferences of cancer survivors and actively refer patients to the Internet as an extension of and enhancement to their patient interactions. Credible and useful websites could be identified and recommended by the HCP as a means to address some of the barriers identified by survivors.

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Information needs and sources of information for women with breast cancer: a follow‐up study

Cited by 243 publications

References 16 publications

Promoting adjustment after treatment for cancer

Promoting adjustment after treatment for cancer

Predictors of change in unmet supportive care needs in cancer

Cancer survivors information seeking behaviors: A comparison of survivors who do and do not seek information about cancer

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