Information Needs of Patients Diagnosed with Head and Neck Cancer Undergoing Radiation Therapy: a Survey of Patient Satisfaction

Kim, Cecilia; Dillon, Ruth; Nica, Luminița; Berthelet, Eric; Keyes, Mira; Hamilton, Sarah

doi:10.1007/s13187-020-01719-z

Cited by 13 publications

(16 citation statements)

References 18 publications

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“…This extensive use of written material among patients treated with radiotherapy in the head and neck region were also reported in other studies. [11][12][13] The time of the survey had no significant association on this result. Most of the participants read the PIL before the preliminary dental examination and used it in the further course of therapy.…”

Section: Use and Assessment Of The Pil By Participantsmentioning

confidence: 67%

<p>Use of a Patient Information Leaflet on Oro-Dental Care During Radiotherapy</p>

Bacher¹,

Schweyen²,

Kuhnt³

et al. 2020

PPA

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Purpose: A patient information leaflet (PIL) on oral and dental care during radiotherapy was tested whether and at which time during therapy it would be helpful to increase the knowledge about the therapy and the resulting side effects and the management of these. Additionally, the participants' subjective perception of being well informed about the topic was examined. Participants and Methods: Surveys were conducted in August 2018-April 2019, at the University Hospitals Halle and Leipzig (Germany). The study population consisted of patients who were treated with radiotherapy in the head and neck region. Half of them received access to the PIL. The survey was conducted with three different versions of a printout questionnaire, which covered the relevant topics at three different times of therapy. The time the participants were surveyed depended on the time of their first therapy appointment. The items of the questionnaires tested their concrete knowledge and assessed the subjective perception of the level of information received. Results: Of the 81 participants who received the PIL, 93.8% read it and 92.1% of them considered it helpful. The sample comprised 181 participants aged 32 to 85 years (M = 62.9), of which 135 were males, 42 were females, and 4 were unspecified. Evaluation showed a difference of 4.7%; 18.5%; and 13.6% in correct answers between subjects with and without access to the PIL before, during, and after the therapy, respectively. The assessment of the participants' personal information level was independent of their access to the PIL (chi-squared test, p = 0.89). Conclusion: Having access to the PIL increased participants' ability to answer the questionnaires correctly. Access to the PIL had no influence on the subjective feeling of being well informed.

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Section: Use and Assessment Of The Pil By Participantsmentioning

confidence: 67%

<p>Use of a Patient Information Leaflet on Oro-Dental Care During Radiotherapy</p>

Bacher¹,

Schweyen²,

Kuhnt³

et al. 2020

PPA

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“…Patients had a desire for the online resource to provide an awareness of different treatment modalities available for oral cancer (35), sequelae related to their particular HNC sub-type (36,37), treatment-related consequences from a patient experience perspective (38) and anticipated long-term recovery process (39). Patients and professionals in this study highlighted that end-users understanding of the treatment trajectory should be optimised through tailoring and layering of information, to avoid patients being overwhelmed with inappropriate information and potentially misguiding decision-making (40).…”

Section: Discussionmentioning

confidence: 98%

Informing the development of an online resource for patients with oral cancer: triangulation of qualitative data from patients and healthcare professionals

Semple¹,

Kelly²,

Thompson³

et al. 2023

Front Oral Maxillofac Med

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Background: The traditional, paternalistic, paradigm of healthcare delivery is no longer acceptable; with transformation placing greater emphasis on shared-care and decision-making, centred on patients' values, needs and preferences. In this process, patients with cancer often assume a more active role in healthcare.The internet has acted as a likely catalyst and, or facilitator in this process, with proliferation during the global pandemic. Consequently, there has been an expansion of health information being accessed online by patients. A recent scoping review indicated a lack of high-quality evidence-based online resources for head and neck patients, with a paucity of end-user involvement during development. To inform the development and co-design of a high-quality, acceptable online resource for oral cancer patients, aimed at facilitating shared decision-making and treatment preparedness, patients' and healthcare professionals' (HCPs) preferences have been elucidated in this study.Methods: Qualitative research design using semi-structured interviews was employed with patients (n=10) and three focus groups with HCPs (n=21) to understand their perceptions and preference on content, issues to be addressed and key design elements of an online resource to promote decision-making and coping with oral cancer and its treatment effects. Reflexive thematic analysis (TA) was used to analyse both data sets, which were then triangulated.

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“…Research indicates that cancer patients want as much information as possible [14] , [18] , [19] , [20] . However, some patients prefer to receive less information, or want their family to be involved in managing their medical condition to decrease their anxiety [21] , [22] .…”

Section: Introductionmentioning

confidence: 99%

Impact of patient information format on the experience of cancer patients treated with radiotherapy

Corish,

Fulton,

Galbraith

et al. 2024

Technical Innovations & Patient Support in Radiation Oncolo

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Information Needs of Patients Diagnosed with Head and Neck Cancer Undergoing Radiation Therapy: a Survey of Patient Satisfaction

Cited by 13 publications

References 18 publications

<p>Use of a Patient Information Leaflet on Oro-Dental Care During Radiotherapy</p>

<p>Use of a Patient Information Leaflet on Oro-Dental Care During Radiotherapy</p>

Informing the development of an online resource for patients with oral cancer: triangulation of qualitative data from patients and healthcare professionals

Impact of patient information format on the experience of cancer patients treated with radiotherapy

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