Information seeking experiences of family caregivers of patients with persistent vegetative state: A qualitative study

Post-Discharge Plight Of Patients With Chronic Disorders Of Consciousness: A Systematic Review Of Socioeconomic And Health Aspects

“…One also needs to know how to deal with septic shock, impaired cardiopulmonary status, articular alterations, and spasticity. The above mentioned services undoubtedly require professional knowledge and skills and, if done in an unprofessional manner, can endanger DOC patients, provoke perilous complications or, in some cases, lead to refusing to take patients home from the hospital [9].…”

“…Caregivers per se often report problems with medical skills and take measures to find the necessary information and learn it [9]. Furthermore, expertise in neurology and nursing DOC is also necessary for making certain decisions and understanding the patient's condition and doctor's recommendations.…”

“…Some ICGs point out the need for knowledge about the psychology of caregiving, relatives' conditions, and problems regarding social involvement [12]. Some caregivers stated that their fears and anxieties decreased as a result of receiving training [9].…”

“…Prevalence of chronic DOC worldwide is about 0.5-5 cases per 100,000of the population [6]; and the number of new cases constitutes 2.5 per 100,000 of the population per year [7]. In Germany, according to the data of Pichler and Fazekas [8], 1,500-5,000 people permanently live in a vegetative state; in Australia, their prevalence is 3.36 per 100,000 of the population; in the Netherlands, their occurrence is 0.2 per 100,000 people [9]. At the end of the 20th century, it constituted 1.9 cases per 100,000 residents in Japan [10] and 4-10 cases per 100,000 people in the USA [1].…”

When Technology Enters at Home

“…The benefits of home care include reducing the incidence of hospital complications, reducing the length of hospital stay, increasing the efficiency of hospital beds, and eliminating the waiting list system without reducing the quality of care 7. Although it is possible to use home care services, studies conducted in Iran suggest the families of these patients still have a lot of stress and worries in caring for their patients 5,8. Over the past 20 years, home mechanical ventilation has been implemented in many countries, but the quality of patient care and support varies from country to country.…”