Informationssuche und Nutzung von Informationsquellen durch Melanompatienten deutscher Hautkrebszentren

Brütting, Julia; Bergmann, Max; Garzarolli, Marlene; Rauschenberg, Ricarda; Weber, Christiane; Berking, Carola; Tilgen, Wolfgang; Schadendorf, Dirk; Meier, Friedegund; NVKH-Unterstützergruppe, im Namen der

doi:10.1111/ddg.13630_g

Cited by 3 publications

(1 citation statement)

References 27 publications

(39 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Our findings indicate that the Internet is gaining relevance as a primary source of information; however, it has not replaced the patient–physician interaction due to the lack of reliability and, for some patients, a lack of accessibility. Hence, the treating physician remains the most trusted and most widely used source of information for German skin cancer patients [ 42 ]. However, the increasing use of online information could benefit the patient and promote shared decision-making by strengthening patient autonomy and improving the physician–patient relationship [ 5 ].…”

Section: Discussionmentioning

confidence: 99%

eHealth Literacy in German Skin Cancer Patients

Stege

Schneider

Forschner

et al. 2022

IJERPH

View full text Add to dashboard Cite

The global incidence of skin cancer has steadily increased in recent years, and malignant melanoma still has one of the fastest-growing incidence rates among all malignant tumors in the western world. Thus, newly diagnosed patients have an increased need for health information concerning their disease. Using a standardized questionnaire, our study aims to investigate our patients’ primary sources of health-related information as well as their self-proclaimed eHealth literacy. We received 714 questionnaires. Regardless of age, the primary source of information was the treating dermato-oncologist, followed by the treating general practitioner and the Internet. However, with increasing age, the usage of the Internet decreased. Hence, younger participants were better equipped to find health-related information while using the Internet. Additionally, comprehending health-related information and gaining medical knowledge was significantly increased in better-educated participants. Overall, our study shows that with increased use of eHealth services, accessing web-based information increased, correlating with a better eHealth literacy of our patients. eHealth technologies are increasingly becoming more prevalent as a primary source of information in our modern health care system. Thus, it is crucial to educate cancer patients in eHealth literacy to make autonomous, informed decisions and gain more confidence in dealing with their disease.

show abstract

Section: Discussionmentioning

confidence: 99%

eHealth Literacy in German Skin Cancer Patients

Stege

Schneider

Forschner

et al. 2022

IJERPH

View full text Add to dashboard Cite

show abstract

Quality, Understandability and Reliability of YouTube Videos on Skin Cancer Screening

Reinhardt,

Steeb,

Mifka

et al. 2023

J Canc Educ

Self Cite

View full text Add to dashboard Cite

In 2008, a nationwide skin cancer screening (SCS) program was implemented in Germany. However, participation rates remain low. YouTube videos on SCS might educate eligible persons to undergo SCS. Until now, no scientific evaluation of the quality of videos available for German-speaking persons eligible for SCS has been performed. Here, we identified and evaluated videos on SCS provided on YouTube. YouTube was searched in May 2022 for German terms related to SCS. Two authors evaluated the videos of the first three pages that met the predefined eligibility criteria. The quality of the videos´ information was evaluated using DISCERN and the Global Quality Scale (GQS). The understandability and actionability were assessed with the Patient Education Materials Assessment Tool (PEMAT). The reliability was assessed with the Journal of American Medical Association (JAMA) score. Subgroup differences were identified by the Kruskal–Wallis test. Overall, 38 videos were included in the evaluation. Most videos were provided by health professionals (clinics and practices). The average scores (mean (SD)) for the individual tools were as follows: DISCERN 3.1/5 points (± 0.52), GQS 3.72/5 points (± 0.7), understandability 64,27% (± 13.53%), actionability 58.22% (± 15.18%), JAMA 37.17% (± 18.94%). These results indicate a mediocre to good understandability, a mediocre quality and actionability, and a low reliability. Videos that were assessed as useful were of significantly better quality. An improvement of freely available informational videos on SCS, especially with regard to the reliability criteria, is urgently needed.

show abstract

Development and validation of a web-based patient decision aid for immunotherapy for patients with metastatic melanoma: study protocol for a multicenter randomized trial

Grabbe

Gschwendtner

Maatouk

et al. 2021

Trials

Self Cite

View full text Add to dashboard Cite

Background Patients with metastatic melanoma and their physicians are confronted with a complex decision regarding first-line therapy. Risks and benefits vary considerably between various treatment options. With this in mind, we aim to develop and evaluate a patient decision aid (PtDA) to inform patients about the risks and benefits of treatment options, namely, immunotherapy as monotherapy, immunotherapy as combination therapy, and treatment with BRAF/MEK inhibitors. We aim to test whether the use of this PtDA before medical consultation will increase patients’ knowledge of treatment options and thus promote shared decision-making (SDM) and patient decision satisfaction. Methods In total, 128 patients with metastatic melanoma from two German cancer centers will be randomized to the intervention group (IG), receiving access to the PtDA before medical consultation, or the control group (CG), receiving treatment as usual (TAU), i.e., medical consultation alone. There will be three major assessment points (before intervention, T0; after intervention, T1; and 3 months after intervention, T2). The main outcome is the patient’s knowledge of their treatment options, measured by a self-developed, piloted multiple-choice test at T1. Secondary outcome measures will include the extent of SDM during medical consultation, assessed by Observer OPTION 5, and patient decision satisfaction, assessed by the Satisfaction with Decision Scale (SwD), at T1 and T2. Discussion This trial will assess the effectiveness of a developed PtDA to enhance patient knowledge of treatment options for metastatic melanoma, SDM, and patient decision satisfaction. If the efficacy can be proven, the PtDA will be implemented nationwide in Germany to close a relevant gap in the education and care of patients with metastatic melanoma. Trial registration ClinicalTrials.gov NCT04240717. Registered on 27 January 2020

show abstract

Informationssuche und Nutzung von Informationsquellen durch Melanompatienten deutscher Hautkrebszentren

Cited by 3 publications

References 27 publications

eHealth Literacy in German Skin Cancer Patients

eHealth Literacy in German Skin Cancer Patients

Quality, Understandability and Reliability of YouTube Videos on Skin Cancer Screening

Development and validation of a web-based patient decision aid for immunotherapy for patients with metastatic melanoma: study protocol for a multicenter randomized trial

Contact Info

Product

Resources

About