Informed consent and aphasia: Evidence of pitfalls in the process

Addressing the long-term impacts of aphasia: how far does the Conversation Partner Programme go?

“…In this study we aimed to facilitate participants' understanding of consent forms by presenting oral and written information in an aphasia-friendly format, for example, we adjusted language and used illustrated communication resources (Rose, Worrall, Hickson, & Hoffmann, 2012). We discussed the content of all consent forms with each individual as this strategy has been posited as the most effective way of improving participants' understanding of what informed consent involves (Flory & Emanuel, 2004;Penn, Frankel, Watermeyer, & Müller, 2009). Given that PWA with accompanying memory difficulties and/or comorbid dementia may sign a consent form and then later forget what they had signed or even that they had given consent, we did not assume that participants' consent was long-standing.…”

Maximising health literacy and client recall of clinical information: An exploratory study of clients and speech-language pathologists

“…These explored, for example, the benefits and concerns related to pictographs (Penn, Frankel, Watermeyer & Muller, 2009), video/audio recordings (Rao, 2007), short message service (SMS/ text messages) (International Institute for Communication and Development, 2006), telephonic contact/follow-up (Osborne, 2008a), and personalised clinical information (Osborne, 2008b). Almost all the interventions that were found to be effective in long-term health care were complex and included combinations of aspects such as more convenient health care, ongoing counselling, and continual reinforcement of recommendations.…”

Informed Consent and the Ethical Management of the Older Patient

“…17 Severe aphasia may necessitate consultation with a speech and language specialist. 18 If aphasia presents a problem in the informed consent process, postponement of surgery and anesthesia may be necessary to obtain the necessary help in communication.…”