Informed consent to serum screening for Down syndrome: are women given adequate information?

Gekas, Jean; Gondry, J.; Мазур, С.И.; Cesbron, Paul; Thépot, F.

doi:10.1002/(sici)1097-0223(199901)19:1<1::aid-pd456>3.0.co;2-s

Cited by 74 publications

(77 citation statements)

References 25 publications

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“…In the present study, however, 74 % of women who underwent an invasive test reported that they might consider a termination of pregnancy if DS was diagnosed, a result well in line with that of Gekas et al (1999). It might well be that women who underwent an invasive test had gone through a more meticulous decisionmaking process, compared to women who underwent a screening procedure, as invasive tests are diagnostic and involve increased risks for the pregnancy.…”

Section: Ds Down Syndrome Pnd Prenatal Diagnosismentioning

confidence: 48%

“…In a previous study on expectant parents who underwent a CUB-test (Ternby et al 2015), we found that 43 % of the participants responded that they might consider termination of pregnancy if DS was diagnosed, a figure far below the 80.5 % reported by Gekas et al (1999) who asked women who underwent an invasive test. In the present study, however, 74 % of women who underwent an invasive test reported that they might consider a termination of pregnancy if DS was diagnosed, a result well in line with that of Gekas et al (1999).…”

Section: Ds Down Syndrome Pnd Prenatal Diagnosismentioning

confidence: 63%

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Why do pregnant women accept or decline prenatal diagnosis for Down syndrome?

et al. 2016

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To investigate if actual knowledge of Down syndrome (DS), influences the decision to accept or decline prenatal diagnosis (PND). Secondary aims were to elucidate reasons for accepting or declining PND and investigate differences between the accepting and declining group in perceived information, knowing someone with DS and thoughts about decision-making. A questionnaire was completed by 76 pregnant women who underwent invasive testing and 65 women who declined tests for chromosomal aberrations in Uppsala, Sweden. Apart from one question no significant differences were found in knowledge of DS between women declining or accepting PND for DS. Both groups had varying and in several respects low levels of knowledge about DS and its consequences. Most common reasons to accept PND were 'to ease my worries' and 'to do all possible tests to make sure the baby is healthy'. Corresponding statements declining PND were 'termination of pregnancy is not an option' and 'because invasive tests increase the risk of miscarriage'. More women declining PND knew someone with DS. Knowledge of DS at these levels is not a major factor when women decide to accept or decline PND for DS. Their choice is mostly based on opinions and moral values.

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Section: Ds Down Syndrome Pnd Prenatal Diagnosismentioning

confidence: 48%

Section: Ds Down Syndrome Pnd Prenatal Diagnosismentioning

confidence: 63%

Why do pregnant women accept or decline prenatal diagnosis for Down syndrome?

et al. 2016

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“…Yet, informed decision making about prenatal screening requires thoughtful consideration of personal values, possible outcomes, and risk-benefit tradeoffs. [2,7,16,23] Interpretive labels, however, are directive, especially when provided by "expert" medical professionals. They encourage binary categorization of outcomes as either good or bad while inhibiting patients' ability to integrate the test results within the context of their personal preferences.…”

Section: Commentmentioning

confidence: 99%

“…For example, research has assessed both how prenatal screening tests are presented to patients and how they are discussed by health care providers. [1,2] Research has also considered women's attitudes regarding testing and evaluated the degree to which women's decisions whether to have screening tests are informed and consistent with their own preferences. [3][4][5][6][7].…”

Section: Introductionmentioning

confidence: 99%

Does labeling prenatal screening test results as negative or positive affect a woman’s responses?

Zikmund‐Fisher

Fagerlin

Keeton

et al. 2007

American Journal of Obstetrics and Gynecology

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Objective-We tested whether adding interpretive labels (e.g., "negative test") to prenatal genetic screening test results changes perceived risk and preferences for amniocentesis.Study Design-Women (N=1,688) completed a hypothetical pregnancy scenario via the Internet. We randomized participants into two groups: high (12.5/1000) risk of fetal chromosomal problems or low (2/1000) risk. After prenatal screening, estimated risk was identical (5/1000) for all participants, but results were provided either alone or with interpretive labels.Results-When receiving test results without labels, all participants react similarly. With labels, participants receiving "positive" or "abnormal" results reported higher perceived risk (p<0.001), greater worry (p<0.001), and greater interest in amniocentesis (57% vs. 37%, p<0.001) than those receiving "negative" or "normal" results. Conclusions-Interpretive labels for test results can induce larger changes to women's risk perceptions and behavioral intentions than numerical results alone do, creating decision momentum. This finding has broad clinical implications for patient-provider communication.

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“…In der Vergangenheit konnten Frauen, die sich Entscheidungskonflikte ersparen und das Ungeborene, so wie es ist, annehmen wollten, die Amniozentese, die ihnen aufgrund ihres Alters (ab 35 Jahre) angeboten wurde, ablehnen. Etwa 20 bis 25 Prozent der Frauen machten in den Neunzigern von dieser Option Gebrauch (Nippert/Horst 1994 (Gekas et al 1999;Smith et al 1994).…”

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Die totale Erfassung: Pränataldiagnostik in der Schwangerenvorsorge

Baldus¹

2002

Feministische Studien

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Informed consent to serum screening for Down syndrome: are women given adequate information?

Cited by 74 publications

References 25 publications

Why do pregnant women accept or decline prenatal diagnosis for Down syndrome?

Why do pregnant women accept or decline prenatal diagnosis for Down syndrome?

Does labeling prenatal screening test results as negative or positive affect a woman’s responses?

Die totale Erfassung: Pränataldiagnostik in der Schwangerenvorsorge

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