Initial validation of the Argentinean Spanish version of the PedsQL™ 4.0 Generic Core Scales in children and adolescents with chronic diseases: acceptability and comprehensibility in low-income settings

Roizen, M.F.; Rodríguez, Susana; Bauer, Gabriela; Medín, Gabriela; Bevilacqua, Silvina; Varni, James W.; Dussel, Verónica

doi:10.1186/1477-7525-6-59

Cited by 66 publications

(82 citation statements)

References 45 publications

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“…This need for help had already been verified in a prior study aimed to validate a quality of life assessment tool (PedsQL 4.0) in a similar population from the same hospital. 13 As far as psychometric properties are concerned, the tool showed good internal consistency for overall score with Cronbach's alpha coefficient, which exceeded the recommended limit for group comparison (0.70). In comparison to the latest version published by the authors of the tool in 2014, Cronbach's alpha coefficients were lower for both the overall score (0.94 vs. 0.81) and the different domains considered separately.…”

Section: Discussionmentioning

confidence: 99%

“…The first one analyzed the correlation between TRAQ scores and a global external measure of self-perceived readiness (VAS), which reinforced the validity of this tool. 13 The second one was aimed at determining whether there was consistency between health impairment due to the condition and TRAQ results. The lack of correlation in this study should be analyzed in future research, as this was an exploratory hypothesis that had not been used before.…”

Section: Discussionmentioning

confidence: 99%

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Validation of the Argentine Spanish version of Transition Readiness Assessment Questionnaire for adolescents with chronic conditions

et al. 2017

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Introduction. The transition of adolescents with chronic conditions to adult follow-up care is an increasingly complex process. Patients need to acquire knowledge and skills that ensure continuity of their care. The goal of this study was to validate the Argentinian Spanish version of the Transition Readiness Assessment Questionnaire (TRAQ) 5.0 tool in adolescents and young adults with chronic conditions. Population and methods. Descriptive, crosssectional, quantitative study. Patients with chronic conditions aged 14 years or older treated at Hospital Garrahan were included. The TRAQ is made up of 20 items divided into 5 subscales (Managing Medication, Appointment Keeping, Tracking Health Issues, Talking with Providers, Managing Daily Activities), and is designed to be self-administered. Patients completed the TRAQ, as well as an opinion survey about its use and a self-perceived autonomy scale; their physicians answered a scale about patients' health impairment due to the condition. Sociodemographic, clinical and TRAQ-related variables were recorded. Results. A total of 191 patients participated. The majority of patients (96.3%) understood the TRAQ 5.0 questionnaire and completed it correctly, in self-administered modality, in a short time (median: 5 minutes), with little or no help (81%). Patients who live in poverty or have a lower education level than the one expected for their age needed more help. Internal consistency (Cronbach's alpha) for the overall score was 0.81. Construct validity was demonstrated by testing different hypotheses (all p < 0.05): discrimination by age ≥ 16 years (3.01 vs. 3.34), sex (women: 3.38 > men: 3.12) and having plans for the future (without plans: 3.01 < with plans: 3.34); correlation with self-perception scale (r= 0.49). Conclusion. The TRAQ 5.0 tool is available for use in Argentinian adolescents with chronic conditions.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Validation of the Argentine Spanish version of Transition Readiness Assessment Questionnaire for adolescents with chronic conditions

et al. 2017

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“…[5][6][7][8][9] Given that HRQoL in children and adolescents is the object of our study, there is a wide range of possibilities to assess it because proxy questionnaires can be applied to children and adolescents who have limiting conditions and also to those with reading comprehension d i f f i c u l t i e s o r w h o h a v e a l o w socioeconomic level. In this regard, parents are fundamental to assess their children's HRQoL 10 and make critical contributions to treatment-related decisions that will be implemented by physicians and specialists, 11,12 and to detect changes over time in their children's HRQoL.…”

Section: Introductionmentioning

confidence: 99%

Parent-child discrepancy in the assessment of health- related quality of life using the EQ-5D-Y questionnaire

2017

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Introduction. The assessment of health-related quality of life (HRQoL) serves to detect changes over time in patients' health status and allows to do a cost-effectiveness analysis of treatments. When children with special health features cannot perform a self-assessment, it is possible to assess their HRQoL through their parents or caregivers. To date, the discrepancy in the assessment of HRQoL using the EQ-5D-Y questionnaire among children with cerebral palsy (CP) and their parents has not been analyzed. The objective of this study was to analyze the level of agreement in the HRQoL assessment using the EQ-5D-Y questionnaire and its proxy version among children with CP and their parents or caregivers. Population and methods. Children and adolescents with CP, and their parents, from a special education school in the region of Extremadura (Spain) participated in the study. The EQ-5D-Y questionnaire was used for children and the EQ-5D-Y proxy version, for parents. Interviews were conducted in the first quarter of 2015. The level of agreement in the responses was analyzed using the Cohen's kappa coefficient for the five domains of the EQ-5D-Y and the intraclass correlation coefficient for the visual analogue scale. Results. Sixty-two children with CP and mild and/or moderate functional capacity impairment, and their parents, participated in the study. The level of agreement was poor in the HRQoL assessment between children and parents in all the questionnaire domains (<0.20) and fair or poor (<0.60) in the visual analogue scale. Conclusions. A high level of parent-child disagreement was observed in the HRQoL assessment in the population with CP using the EQ-5D-Y questionnaire.

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“…En Sudamérica, la información sobre la CVRS en los pacientes con OI es escasa. [6][7][8][9][10][11] El objetivo del presente trabajo fue evaluar la CVRS utilizando el cuestionario PedsQL 4.0 (American Pediatric Quality of Life Inventory) en un grupo de pacientes con OI.…”

Section: Introductionunclassified

Osteogénesis imperfecta: estudio de la calidad de vida en los niños

et al. 2013

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Initial validation of the Argentinean Spanish version of the PedsQL™ 4.0 Generic Core Scales in children and adolescents with chronic diseases: acceptability and comprehensibility in low-income settings

Cited by 66 publications

References 45 publications

Validation of the Argentine Spanish version of Transition Readiness Assessment Questionnaire for adolescents with chronic conditions

Validation of the Argentine Spanish version of Transition Readiness Assessment Questionnaire for adolescents with chronic conditions

Parent-child discrepancy in the assessment of health- related quality of life using the EQ-5D-Y questionnaire

Osteogénesis imperfecta: estudio de la calidad de vida en los niños

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