Integrated Personal Health Records: Transformative Tools for Consumer-Centric Care

Detmer, Don E.; Bloomrosen, Meryl; Raymond, Brian; Tang, Paul C.

doi:10.1186/1472-6947-8-45

Cited by 364 publications

(229 citation statements)

References 21 publications

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“…Additional recommendations by the Institute of Medicine (IOM) proposed PHR access to a provider's system for data exchange and PHR-facilitated communication between physician and individuals [20]. Additionally, the AMIA, Kaiser Permanente Institute for Health Policy, the Robert Wood Johnson Foundation, and HHS' AHRQ proposed features for facilitating gathering of data from different health care sources [21] (i.e. claims data, commercial laboratories, monitoring devices, etc) and for providing ongoing and secure EMAIL communication between physician and individual, online appointment scheduling, collaborative health tracking and chronic disease management [17], prescription refills, medication reminders, and to report problems.…”

Section: Phr Standardsmentioning

confidence: 99%

Standards and Guidelines for Personal Health Records in the United States: Finding Consensus in a Rapidly Evolving and Divided Environment

Tran¹,

Gonzáles²

2012

J Health Med Inform

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Health care spending in the U.S. over the past decade has dramatically increased over the past decade and is expected to rise to 20% of GDP in the United States by the end of the decade. In 2010, the U.S. Congress approved the Health Care Reform Act with a critical component of this legislation being the adoption of health information technologies (i.e. EMRs, EHRs, PHRs, etc.) aimed at transforming the health care system. Consumer-driven health care models are seen as essential to control the escalating costs of health care. The objective of this research is to canvas the landscape of existing standards and guidelines relating to electronic personal health records (PHRs) and to evaluate the level of adoption of these standards and guidelines amongst current vendors. Through this effort, we propose a consensus standard for PHRs consisting of 14 data components, 11 of which should be essential for all PHRs and 3 additional recommended data components. Through a survey of existing PHR vendors, we observe a low level of adoption of existing standards in commercially available PHR products and note a wide variation (36-73%) of inclusion of critical and desired data components. Further, we propose 4 key features and services based upon a review of the existing literature to facilitate consumer adoption and to improve usefulness of PHRs. By proposing a consensus standard for PHR data components and features, we seek to provide clarity to developers and vendors of HIT products to facilitate product development, interoperability, and integration and data exchange with existing EMR/EHR products.

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Section: Phr Standardsmentioning

confidence: 99%

Standards and Guidelines for Personal Health Records in the United States: Finding Consensus in a Rapidly Evolving and Divided Environment

Tran¹,

Gonzáles²

2012

J Health Med Inform

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show abstract

“…While computerized medical technologies offer the potential to improve workflow and productivity, there is a theoretical point in which increasing productivity becomes offset by potential quality deficiencies. At the same time, healthcare consumers are placing increasing demands on providers for access to healthcare data, collaborative decision making, and quality accountability measures [7][8][9]. The collective stressors of worsening healthcare economics, increased workload, and heightened quality concerns serve as inevitable source of fatigue and stress on healthcare providers.…”

Section: Introductionmentioning

confidence: 99%

The Insidious Problem of Fatigue in Medical Imaging Practice

Reiner

Krupiński

2011

J Digit Imaging

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“…[21,27,28] Additional EPHR concerns were highlighted that were linked to the sensitive nature of personal healthcare information, which have been identified in several other studies. [13,23,[42][43][44][45][46][47][48][49][50] One third of family members in the current study reported concerns associated with confidentiality and security when considering the implementation of an EPHR. For example, concerns about security of personal information were found at the top of a list of concerns linked with an EPHR in a study conducted by the Markle Foundation (2006).…”

Section: Discussionmentioning

confidence: 99%

Family attitudes towards an electronic personal health record in a long term care facility

Nippak

Isaac

Geertsen

et al. 2015

JHA

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Objective: To explore the perceptions of family members regarding the importance of an electronic personal health record (EPHR) called MyChart as a healthcare information source to support the care of their loved ones within a long term care (LTC) facility in Toronto, Ontario. Methods: One hundred and fifty eight family members of the patients in six LTC units at the hospital were given a survey to determine their perceptions regarding the utility of the content items within an EPHR that was recently adopted by the LTC institution. Results: The response rate was 41% (n = 65). Many family members (n = 48) felt it was important to have access to their loved one's EPHR. Respondents ranked test results (38%; n = 25), doctor's clinical notes (26%; n = 17), medication lists (15%; n = 10) and upcoming appointments (11%; n = 7) as the number one most important content item that they would want to have access to. In addition to the standard content items found within an EPHR, family members requested electronic access to a variety of additional medical content items that are not currently offered within the EPHR, such as status alerts. Overall, they felt that an EPHR would enhance communication between the care team and the family, however 30% of family members identified concerns linked to security and confidentiality of the electronic health record information. Conclusions: Family members felt that an EPHR would be an important tool in the LTC facility to assist with information exchange between care providers and the family. It is important to consider that the additional information requested beyond what is traditionally found in an EPHR as well as the specific communication concerns raised, may be limited to a LTC setting.

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Integrated Personal Health Records: Transformative Tools for Consumer-Centric Care

Cited by 364 publications

References 21 publications

Standards and Guidelines for Personal Health Records in the United States: Finding Consensus in a Rapidly Evolving and Divided Environment

Standards and Guidelines for Personal Health Records in the United States: Finding Consensus in a Rapidly Evolving and Divided Environment

The Insidious Problem of Fatigue in Medical Imaging Practice

Family attitudes towards an electronic personal health record in a long term care facility

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