Integrating and producing evidence through participatory design

Teal, Gemma; Mcara, Marianne; Riddell, Julie; Flowers, Paul; Coia, Nicky; McDaid, Lisa

doi:10.1080/15710882.2022.2096906

Cited by 3 publications

(2 citation statements)

References 37 publications

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“…A participatory design approach seeks the involvement of people with lived experience throughout the design process to develop a product that would be meaningful and useful to end-users (Spinuzzi, 2005). In recent years, this approach has been increasingly used in healthcare (Teal et al, 2023) for its ability to reduce research "waste," time and costs spent focusing on research that is not important or relevant for patients and clinicians (Slattery et al, 2020). For example, the approach has been used by other researchers to design VR-ET programs that are authentic and grounded in people's real-world experiences (Flobak et al, 2019).…”

Section: Methodology and Approachmentioning

confidence: 99%

Designing virtual reality exposure scenarios to treat anxiety in people with epilepsy: Phase 2 of the AnxEpiVR clinical trial

Lewis-Fung,

Tchao,

Gray

et al. 2023

Front. Virtual Real.

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Introduction: Anxiety in people with epilepsy (PwE) is characterized by distinct features related to having the condition and thus requires tailored treatment. Although virtual reality (VR) exposure therapy is widely-used to treat a number of anxiety disorders, its use has not yet been explored in people with epilepsy. The AnxEpiVR study is a three-phase pilot trial that represents the first effort to design and evaluate the feasibility of VR exposure therapy to treat epilepsy-specific interictal anxiety. This paper describes the results of the design phase (Phase 2) where we created a minimum viable product of VR exposure scenarios to be tested with PwE in Phase 3.Methods: Phase 2 employed participatory design methods and hybrid (online and in-person) focus groups involving people with lived experience (n = 5) to design the VR exposure therapy program. 360-degree video was chosen as the medium and scenes were filmed using the Ricoh Theta Z1 360-degree camera.Results: Our minimum viable product includes three exposure scenarios: (A) Social Scene—Dinner Party, (B) Public Setting—Subway, and (C) Public Setting—Shopping Mall. Each scenario contains seven 5-minute scenes of varying intensity, from which a subset may be chosen and ordered to create a customized hierarchy based on appropriateness to the individual’s specific fears. Our collaborators with lived experience who tested the product considered the exposure therapy program to 1) be safe for PwE, 2) have a high level of fidelity and 3) be appropriate for treating a broad range of fears related to epilepsy/seizures.Discussion: We were able to show that 360-degree videos are capable of achieving a realistic, immersive experience for the user without requiring extensive technical training for the designer. Strengths and limitations using 360-degree video for designing exposure scenarios for PwE are described, along with future directions for testing and refining the product.

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Section: Methodology and Approachmentioning

confidence: 99%

Designing virtual reality exposure scenarios to treat anxiety in people with epilepsy: Phase 2 of the AnxEpiVR clinical trial

Lewis-Fung,

Tchao,

Gray

et al. 2023

Front. Virtual Real.

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“…Through a participatory design approach, industry representatives began to think differently about the problem of food waste and became more aware of their potential role in food waste reduction. Furthermore, engaging industry in designing and evaluating their own solutions for save food packaging increases the likelihood that the solutions will be used because they are relevant to their needs (Teal et al , 2023). While this project was focused on the food industry, social marketers working on participatory design projects for similarly complex industries and issues will need to be cognizant of the investment of time required for industry change.…”

Section: Insights and Implicationsmentioning

confidence: 99%

Collective intelligence for fighting food waste: changing the way things are done with participatory design

Brennan,

Micallef,

Jenkins

et al. 2024

JSOCM

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Purpose This study aims to explore the use of a double diamond design method to engage the industry in a sector-wide response to the issues of food waste as constructed by consumers. This particular design method is achieved by an exploration of a collective intelligence-participatory design (CIPD) project to engage industry participants in understanding and responding to consumers’ perceptions of the role of packaging in reducing food waste. Design/methodology/approach Using the UK Design Council’s double diamond design method as a guiding conceptual principle, the project recruited industry participants from medium to large food businesses across various food categories. Two scoping workshops with industry were held prior to the initiation of a 12-stage project (n = 57), and then two industry workshops were held (n = 4 and 14). Eighty participants completed an online qualitative survey, and 23 industry participants took part in a Think Tank Sprint Series. The Think Tanks used participatory design approaches to understand barriers and opportunities for change within food industry sub-sectors and test the feasibility and acceptability of package designs to reduce consumer waste. Findings For CIPD to work for complex problems involving industry, it is vital that stakeholders across macro- and micro-subsystems are involved and that adequate time is allowed to address that complexity. Using both the right tools for engagement and the involvement of the right mix of representatives across various sectors of industry is critical to reducing blame shift. The process of divergence and convergence allowed clear insight into the long-term multi-pronged approach needed for the complex problem. Originality/value Participatory design has been useful within various behaviour change settings. This paper has demonstrated the application of the double diamond model in a social marketing setting, adding value to an industry-wide project that included government, peak bodies, manufacturing and production and retailers.

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Stakeholder-engaged research: a multidisciplinary historical analysis

Chung

2024

Research for All

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The involvement of stakeholders in research – from design, production and communication to use – is recognised as essential to producing impactful research. However, approaches to involving stakeholders in research vary greatly between different fields. This article conducts a multidisciplinary historical analysis of stakeholder-engaged research to offer an integrated perspective on engagement practices across disciplines. It identifies common influences, objectives, trends and challenges, proposing frameworks to support interdisciplinary analysis and understanding. The analysis identifies interconnected approaches that could benefit from mutual learning and exchange. Approaches emerging from sociopolitical movements orient around objectives of empowerment and emancipation, those responding to complexity tend to focus on producing better research that solves societal problems, while accountability-driven approaches centre on research use and impact. This article broadens the diversity of approaches and epistemologies discussed in the literature by including disciplines neglected in previous reviews. Building on the widely cited three-generations model, it proposes a configuration- and complexity-based framework for comparing stakeholder-engaged research approaches, moving beyond the chronological conception of stakeholder-engaged research development. This multidisciplinary historical analysis provides a valuable resource for scholars and practitioners to understand the range of possible approaches to stakeholder engagement, facilitating approach selection for specific use cases and contexts, as well as opportunities for interdisciplinary learning and collaboration.

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Integrating and producing evidence through participatory design

Cited by 3 publications

References 37 publications

Designing virtual reality exposure scenarios to treat anxiety in people with epilepsy: Phase 2 of the AnxEpiVR clinical trial

Designing virtual reality exposure scenarios to treat anxiety in people with epilepsy: Phase 2 of the AnxEpiVR clinical trial

Collective intelligence for fighting food waste: changing the way things are done with participatory design

Stakeholder-engaged research: a multidisciplinary historical analysis

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