Integrating unmet needs into dementia health-related quality of life research and care: Introduction of the Hierarchy Model of Needs in Dementia

Abstract

There are several instruments to assess needs of dementia patients and caregivers. Domains of unmet needs and HRQoL overlap. The Hierarchy Model of Needs in Dementia (HMND) offers a new theoretical framework to address the interplay between meeting of needs and improvement of HRQoL in dementia. By identifying unmet needs in dementia-research and focussing on unmet needs in dementia-care, much can be done to improve HRQoL.

Community-dwelling persons with dementia: What do they need? What do they demand? What do they do? A systematic review on the subjective experiences of persons with dementia

“…The themes presented in this section clearly show that PwD are able to express their needs, if not explicitly but implicitly, and that these needs do not seem to differ fundamentally from those other people with chronic conditions -or even healthy individualsmight express (cf. Maslow, 1954;Scho¨lzel-Dorenbos et al, 2010).…”

“…Later, the concept made inroads into economics as the rather material needs of an individual or certain groups (Kotler, 1980) and, more recently, into social and nursing science as well as health sciences, particularly in health promotion, as health-related needs (Naidoo & Wills, 2000). Needs can be divided in subjective, objective or normative, personal and societal needs (Scho¨lzel-Dorenbos, Meeuwsen, & Olde Rikkert, 2010) and are discussed in relation and in contrast to demands, even though there is a lack of consensus on binding definitions in the literature (Meaney, Croke, & Kirby, 2005;van der Roest et al, 2007). In this review, we define both terms from a subjective angle: a need is a sometimes implicitly, communicated perceived state of deprivation or desire.…”

Adequacy of Help Received by Individuals with Severe Mental Disorders After a Major Healthcare Reform in Quebec: Predictors and Changes at 5-Year Follow-Up

“…This knowledge would also allow providers to address problems related to perceived AHR, and to improve health care delivery to individual clients. Ideally, mental health services should provide help that is perfectly adjusted to the severity of users' needs (Schölzel-Dorenbos et al 2010). A more positive view of AHR may improve the chances of recovery and social reintegration for individuals with SMDs, and provide them with a better quality of life .…”

Mensen zoals wij

“…Het is echter niet eenvoudig om daadwerkelijk bij te dragen aan de kwaliteit van leven van iemand met dementie. Zo is er de laatste jaren groeiende aandacht voor de eigen regie van mensen met dementie en hoe zij zelf kunnen bijdragen aan, en invloed hebben op, de aan hen geleverde zorg [1,2]. In de loop van het dementie proces verliezen mensen niettemin veel persoonlijke bronnen voor het in stand houden van kwaliteit van leven en hebben daarbij steeds meer hulp van anderen nodig.…”