Intellectual disability in children and teenagers: Influence on family and family health. Systematic review

Lima-Rodríguez, Joaquín Salvador; Baena-Ariza, María Teresa; Domínguez-Sánchez, Isabel; Lima‐Serrano, Marta

doi:10.1016/j.enfcle.2017.10.007

Cited by 22 publications

(21 citation statements)

References 26 publications

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“…The presence of a disabled person in the family generates ongoing problems in every period of life. Living with a disabled individual requires adaptation and causes some limitations in the lives of family members 2,3 . The birth of the disabled child or the subsequent disability situation causes difficulties and changes as the family members adapt to the new conditions, family structure, and relationships with each other and their inner worlds 4 .…”

Section: Introductionmentioning

confidence: 99%

“…The birth of the disabled child or the subsequent disability situation causes difficulties and changes as the family members adapt to the new conditions, family structure, and relationships with each other and their inner worlds 4 . It is emphasized that this situation, which is difficult to get used to, affects parents' close environment economically, socially, and psychologically 2,3,5 . In addition, disability in children affects the emotional burden in the family, the social support for families is low, 6 and the physical and mental health of mothers, especially, is negatively affected due to their higher responsibility for these children 7…”

Section: Introductionmentioning

confidence: 99%

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Determination of burnout, life satisfaction, and stress coping styles of parents with disabled children

Çalışkan

Evgi̇n

Caner

et al. 2021

Perspect Psychiatr Care

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and coping strategies of families who had a disabled child and the relationships between them.Design and Methods: This descriptive and cross-sectional study conducted with 191 parents of children with disabilities.Findings: As the life satisfaction of childcare providers increased, their emotional exhaustion decreased and sense of personal accomplishment increased (p < 0.05).Practice Implications: It is necessary that nurses and health team members should provide regular and continuous education for burnout, life satisfaction, family stress and coping styles to parents of disabled children using interactive education techniques and group interactions.burnout, coping with stress, disabled child, life satisfaction parent | INTRODUCTIONHaving a child with a disability is a crisis situation that can affect the quality of life of family members, the gender roles of parents, their economic expenses, their working status, their health, stress situations, their decision to maintain a marriage, and their decision to give birth to a new child. 1 The presence of a disabled person in the family generates ongoing problems in every period of life. Living with a disabled individual requires adaptation and causes some limitations in the lives of family members. 2,3 The birth of the disabled child or the subsequent disability situation causes difficulties and changes as the family members adapt to the new conditions, family structure, and relationships with each other and their inner worlds. 4 It is emphasized that this situation, which is difficult to get used to, affects parents' close environment economically, socially, and psychologically. 2,3,5 In addition, disability in children affects the emotional burden in the family, the social support for families is low, 6 and the physical and mental health of mothers, especially, is negatively affected due to their higher responsibility for these children. 7 Families need help and support in dealing with the stressful and long-term changes required to care for a child with disabilities. Therefore, it is important for nurses who care for children with disabilities and their families to know these families, to know their lives, and to plan family-centered nursing care. The nurse should make a holistic and family-centered care plan using many roles and independent functions such as educator, counselor, advocate, decision maker, and caregiver while carrying out her studies in this field. 8,9 Research indicates that the gathering of families with similar problems has positive effects, professional support services for families reduces stress, family burdens, 6 and burnouts, and increase their satisfaction. 10,11 Nurses, who have a responsibility to provide This study was presented as an oral presentation in the 1st International 2nd National Public Health Nursing Congress, April 23-26, 2018, Ankara.holistic care to families, should advise these families on coping with stress and take initiatives to increase their social support. 10,12,31 Despite descriptive studies in the literature rega...

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Determination of burnout, life satisfaction, and stress coping styles of parents with disabled children

Çalışkan

Evgi̇n

Caner

et al. 2021

Perspect Psychiatr Care

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“…McNally and Mannan ( 2013 ) asserted that support systems make caring for individuals with ID less stressful. Lima-Rodriguez et al ( 2018 ) added that supporting families would promote the best outcomes for everyone, as families spend most of their time with their children. Lindgren, Soderberg and Skar ( 2014 ) suggested that transition planning can be achieved only through support.…”

Section: Discussionmentioning

confidence: 99%

Nurses’ perceived role in healthcare transition of adolescents with intellectual disabilities

Malapela

Thupayagale‐Tshweneagae

Ibitoye

2020

African Journal of Disability

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Background Nurses’ role in the transition of adolescents living with intellectual disabilities (IDs) has always been neglected. The primary role of nurses is to promote health, provide nursing care, alleviate suffering and rehabilitate. Improving the quality of life for individuals with ID when they undergo the healthcare transition process from adolescence to adulthood was previously not considered a priority. Objectives To investigate the nurses’ perceived role in healthcare transition of adolescents with ID into adulthood. Method A qualitative descriptive design using semi-structured interviews with 18 nurse participants was used. The sample included 25 nurses working in care and rehabilitation centres and non-governmental organisations in Tshwane district, Gauteng province, South Africa. Results Three main themes that emerged from the analysis were support systems, advocacy and health promotion. Conclusion The findings of this study clearly show the need for a strong healthcare support system to facilitate a successful transition process of adolescents with ID. The study findings support the view that nurses can play a key role in assisting individuals with ID and their families in dealing with the challenges of healthcare transitioning into adulthood.

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“…La atención de enfermería podría cubrir, entre otros aspectos, el cuidado en las actividades de la vida diaria, estimulación visual y cognitiva, detección y prevención de enfermedades, apoyo emocional y capacitación a la familia de una persona con DI, esto desde la creación de un vínculo afectivo entre padres e hijos hasta para identificar las alteraciones o situaciones de crisis (12) , pues está comprobado que las familias de individuos con DI suelen requerir cuidado y vigilancia diferente debido al aumento de atención que ellos requieren (13) .…”

Section: -54unclassified

Valoración de enfermería a personas con discapacidad intelectual en un centro formativo del Bajío

Patiño-López

González

2019

SANUS

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Introducción: Las personas con discapacidad intelectual requieren de atención específica para su cuidado en todas las etapas de su vida, sin embargo, los programas educativos de salud no abordan estas necesidades. Objetivo: Valorar el estado salud de las personas con discapacidad intelectual a la luz del Modelo de Adaptación de Roy. Metodología: Enfoque cuantitativo, no experimental, transversal descriptivo. Se valoró a 16 personas con Discapacidad Intelectual con una guía de valoración fundamentada en el Modelo de Adaptación de Roy. Resultados: En el Modo fisiológico, las necesidades básicas afectadas principalmente fueron: la nutrición, la actividad-descanso, la protección y en menor grado de afectación se encontraron los órganos de los sentidos y la eliminación. No existió evidencia de que los participantes tuvieran su esquema de vacunación completo, el 62.5% presentó placa dentobacteriana mayor al 30%, el 75% mostró mal patrón alimenticio, el 43.7% obtuvo un índice de masa corporal inadecuado, el 25% refirió sintomatología relacionada con la eliminación intestinal, el 31.2% desarrollan actividad física inadecuada, más del 50% necesitó apoyo en actividades de autocuidado, el 37.5% tenía problemas de agudeza visual, el 84.6% no posee adecuados conocimientos sobre prevención de accidentes. Conclusiones: Al conocer los problemas de salud que presentan las personas con esta discapacidad es fundamental crear estrategias de cuidado específicas según sus necesidades y proporcionarles así una atención de calidad haciendo hincapié en buscar medidas que compensen la deficiencia de profesionales capacitados en este ámbito.

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Intellectual disability in children and teenagers: Influence on family and family health. Systematic review

Cited by 22 publications

References 26 publications

Determination of burnout, life satisfaction, and stress coping styles of parents with disabled children

Determination of burnout, life satisfaction, and stress coping styles of parents with disabled children

Nurses’ perceived role in healthcare transition of adolescents with intellectual disabilities

Valoración de enfermería a personas con discapacidad intelectual en un centro formativo del Bajío

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