Intensive Care Diaries and Relatives’ Symptoms of Posttraumatic Stress Disorder After Critical Illness: A Pilot Study

Abstract

Background Relatives of patients recovering from critical illness are at risk of developing posttraumatic stress disorder. Objectives To test whether providing a diary to intensive care patients and their relatives reduces the level of symptoms related to posttraumatic stress disorder in the relatives. Methods Observational study of close family members of patients who stayed more than 72 hours in an intensive care unit, recruited in 2 centers of a 12-center randomized controlled trial examining the effect of a diary outlining the details of the patients' stay in the intensive care unit on the development of new-onset posttraumatic stress disorder in patients. The close family members of the patients were recruited to examine the additional effect of the provision of the patient's diary on the family members' symptoms related to posttraumatic stress syndrome. Results Thirty-six family members were recruited, and 30 completed the study. Family members of patients who received their diary at 1 month had lower levels of symptoms related to posttraumatic stress disorder (P = .03) at the 3-month follow-up than did the control family members. Conclusions Provision of a diary may help psychological recovery in patients' families after critical illness.

Intensive care diaries to promote recovery for patients and families after critical illness: A Cochrane Systematic Review

“…The characteristics of the three eligible studies are described in Table 2. Jones and colleagues undertook a RCT involving patients and family members, and reported their results in two separate publications [33,34].…”

“…All contact authors responded [33][34][35], with one author group able to provide all information required [34].…”

“…From the original study by [34] Jones, Backman [34] a substudy of family members was undertaken and reported in Jones, Backman [33]. They studied 30 family members of the previous study participants from ICUs in the United Kingdom and Sweden.…”

“…All studies [33][34][35] compared the use of patient diaries to no diaries, with participants randomly assigned to one or the other. All studies described the patient diary as being a daily record of the patient's ICU stay and the study protocol dictated a standardization of the patient diary content via the use of either a template [33,34] or topic headings (e.g.…”

“…All studies described the patient diary as being a daily record of the patient's ICU stay and the study protocol dictated a standardization of the patient diary content via the use of either a template [33,34] or topic headings (e.g. patient's appearance and condition, events on the ward) [35].…”