Inter-sectoral collaboration in the context of supporting adults with intellectual and developmental disabilities who are frail

Martin, Lynn; Deck, Eve; Barabash, Tori; Ouellette‐Kuntz, Hélène

doi:10.1080/23297018.2019.1710723

Cited by 4 publications

(4 citation statements)

References 31 publications

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“…The majority of people with intellectual disabilities included in these studies were in receipt of a range of health and social care. Many of the studies set in Canada were focused on individuals specifically in receipt of community‐based care, or those who worked with or supported them (Ouellette‐Kuntz, Martin, & McKenzie, 2018; Ouellette‐Kuntz, Stankiewicz, et al, 2018; Martin et al, 2018, 2020; Barabash et al, 2021). Hippisley‐Cox and Coupland (2017) included people on primary care registers, but it is not known what other health or care services they were receiving.…”

Section: Resultsmentioning

confidence: 99%

“…Martin et al (2020) investigated facilitators and barriers to implementing one of the consensus statement recommendations ('intersectoral collaboration') when supporting individuals with intellectual disabilities who are frail. They found that factors relating to relationships with service providers were most mentioned by individuals with intellectual disabilities and their families, and that the presence of trust and respect between providers and service users was identified as important by service users, families and service providers.Regarding barriers to supporting individuals with an intellectual disability who are frail,Martin et al (2017) found that many of the participants within their knowledge transfer webinar did not feel T A B L E 4 Frailty measures used in the included studies.…”

mentioning

confidence: 99%

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Definition, assessment and management of frailty for people with intellectual disabilities: A scoping review

Grohmann,

Wellsted,

Mengoni

2024

Research Intellect Disabil

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BackgroundPeople with intellectual disabilities may experience frailty earlier than the general population. This scoping review aimed to investigate how frailty is defined, assessed, and managed in adults with an intellectual disability; factors associated with frailty; and the potential impact of COVID‐19 on frailty identification and management.MethodDatabases were searched from January 2016 to July 2023 for studies that investigated frailty in individuals with intellectual disabilities.ResultsTwenty studies met the inclusion criteria. Frailty prevalence varied between 9% and 84%. Greater severity of intellectual disability, presence of Down syndrome, older age, polypharmacy, and group home living were associated with frailty. Multiagency working, trusted relationships and provision of evidence‐based information may all be beneficial in frailty management.ConclusionFrailty is common for people with intellectual disabilities and is best identified with measures specifically designed for this population. Future research should evaluate interventions to manage frailty and improve lives.

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Section: Resultsmentioning

confidence: 99%

mentioning

confidence: 99%

Definition, assessment and management of frailty for people with intellectual disabilities: A scoping review

Grohmann,

Wellsted,

Mengoni

2024

Research Intellect Disabil

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“…This relational aspect of nurses’ work was underpinned by knowing the person/client and engaging from a humanistic and caring perspective (Karlsson & Pennbrant, 2020). A major element within the positive interpersonal behaviour's domain was collaboration in the coordination and delivery of care through inter‐sectoral working (Ahlström et al, 2021; Martin et al, 2020). The clinical leadership and governance domain (10%) clearly highlighted the work of the nurse in the development of practice guidelines and policies and their integration into practice (O'Reilly et al, 2018) along with service plans/planning (Bertelli et al, 2021).…”

Section: Discussionmentioning

confidence: 99%

The value and contribution of intellectual disability nurses/nurses caring for people with intellectual disability in intellectual disability settings: A scoping review

Doody

Hennessy

Moloney

et al. 2022

Journal of Clinical Nursing

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Background: People with intellectual disability experience poorer health and healthcare access issues. As a leading role in healthcare provision for people with intellectual disability nurses are key to supporting person-centred care and health outcomes. However, little is known about specialist intellectual disability nursing and their contribution to care provision for people with intellectual disability. Methods: A systematic scoping review. Searches of seven academic databases including MEDLINE, Cumulative Index to Nursing and Allied Health Literature, Academic Search Complete, PsycINFO, Embase, Scopus and Web of Science were conducted to identify relevant literature. Literature addressing intellectual disability nursing or nursing care for people with intellectual disability in intellectual disability centres/ units/care homes were reviewed and reported as per PRISMA-ScR checklist and PRISMA flow diagram. Results:The published literature (n = 68) is extensive and describes the value and contribution of intellectual disability nursing across all domains of professional practice and supports a biopsychosocial-educational approach to addressing the physical, mental and social needs of clients with intellectual disability across the care continuum of health management, health promotion and health education.Conclusions: Despite the importance of the review question and the large volume of publication evidence detailing wide-ranging professional nursing roles and responsibilities, there remains limited literature on the assessment and intervention strategies employed by intellectual disability nurses that highlight their specialist knowledge and skill. Future research should focus on making the role of the nurse more visible and presenting their unique contributions to client care, service delivery, policy and ultimately to the art and science of nursing.

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“…This study was housed within a larger study of collaboration between the health and developmental services sectors in Ontario, Canada (Martin et al, 2020), and was approved by the Lakehead University Research Ethics Board and the Queen's University Health Sciences and Affiliated Teaching Hospitals Research Ethics Board.…”

Section: Methodsmentioning

confidence: 99%

From premise to practice: Applicability of a consensus statement for supporting adults with IDD who are frail

Barabash

Ouellette‐Kuntz

Martin

2020

Research Intellect Disabil

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Background Study of frailty in adults with intellectual and developmental disabilities (IDD) is relatively new. To build the body of literature, an international consensus statement on how to support adults with IDD as they become frail was developed based on fictional cases. This study examined the face validity and applicability of the consensus statement to real‐world care planning. Method Twenty‐three care plans for adults with IDD who were classified along the frailty continuum were reviewed. Documented goals, actions and outcomes were coded according to the consensus statement's principles and recommendations. Results The recommendations ‘Improvement and maintenance are viable goals’ and ‘Intersectoral collaboration is needed’ were documented the most often. Attention to the needs of formal and informal caregivers was mentioned the least often in care plans. Conclusions This study provides some support for the face validity of the consensus statement and its applicability to supporting adults with IDD who are frail.

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Inter-sectoral collaboration in the context of supporting adults with intellectual and developmental disabilities who are frail

Cited by 4 publications

References 31 publications

Definition, assessment and management of frailty for people with intellectual disabilities: A scoping review

Definition, assessment and management of frailty for people with intellectual disabilities: A scoping review

The value and contribution of intellectual disability nurses/nurses caring for people with intellectual disability in intellectual disability settings: A scoping review

From premise to practice: Applicability of a consensus statement for supporting adults with IDD who are frail

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