Interacting with adults with congenital deafblindness: The experiences of disability support workers

Prain, Meredith; Ramcharan, Paul

doi:10.3109/13668250.2012.647808

Cited by 12 publications

(10 citation statements)

References 18 publications

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“…Furthermore, while DSPs could describe interactive behaviours, they also stated that interactive behaviour between peers was non-existent. It seems that it is not clear to DSPs what interaction between peers actually entails, which may lead to a lack of interest in interactions between peers or even a belief that interactions between peers are not feasible for people with PIMD (Bigby et al, 2009) or that is not part of their job (Prain, Mcvilly, & Ramcharan, 2012). The views and beliefs of DSPs may be one possible reason for the small number of interactions observed in this study, as well as for the limited conditions they created for interaction between peers.…”

Section: Resultsmentioning

confidence: 99%

Exploring spontaneous interactions between people with profound intellectual and multiple disabilities and their peers

Kamstra

Putten

Maes

et al. 2018

Journal of Intellectual & Developmental Disability

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Background: Peers living in the same group form important interaction partners for people with profound intellectual and multiple disabilities (PIMD). Given the severity of their disabilities, direct support persons (DSPs) play a significant role in facilitating interactions between these peers. This study explores the spontaneous interactions between persons with PIMD and the possibilities provided by DSPs related to physical positioning. Method: Observational data were obtained from 14 people with PIMD for three consecutive hours in a non-controlled situation. Results: Of all 213 observed interactions, 5.1% were with peers, 73.4% with DSPs, 14.9% with the observer, and 6.5% with others. In 61.3% of the observed timeframes, the participants with PIMD were positioned in a way that made it impossible to touch or/and to look at a peer. Conclusion: Generally, the observed positioning of the participants made contacts between peers nearly impossible. DSPs should create optimal conditions for interaction between peers.

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Section: Resultsmentioning

confidence: 99%

Exploring spontaneous interactions between people with profound intellectual and multiple disabilities and their peers

Kamstra

Putten

Maes

et al. 2018

Journal of Intellectual & Developmental Disability

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“…Sign language allows the deaf to interpret and produce words, phrases, and texts of the written language assuming a role similar to that played by oral communication when it comes to the appropriation of the written message by the listener in Brazil [1], China [23], Australia [24], United States [25], Netherlands [26], and Turkey [27] among other countries.…”

Section: Discussionmentioning

confidence: 99%

The Teaching of Sign Language in Undergraduate Nursing Courses: A Descriptive Study as an Attribute to the Integrality of Care

Machado¹,

Shubert²,

Prado³

et al. 2015

Health

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Background: Current and future generations of nurses must be prepared to communicate and properly care for deaf patients. The objective of this study is to describe how Brazilian Sign Language is taught in undergraduate Nursing courses. Method: This was a descriptive study with a qualitative approach, performed with fifteen professors from four universities, two public and two private and in the metropolitan region of Rio de Janeiro, through individual interviews with an analysis procedure guided by Content Analysis. Results: The teaching is restricted to the adoption of planned and established approaches to sign language and procedures to assess theoretical contents and practical domains sign language teaching exclusively in elective course often offered through the online platform. Conclusion: We conclude that professors are not prepared for the teaching of sign language and that curricula need to be appropriate to the demand of full and indistinct assistance to the population's needs.

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“…While the more intangible or 'affective' elements of the working relationship are determining factors in both support worker and support recipient satisfaction with services, they are often overlooked in policy and organisational procedures concerning disability support. Job descriptions and policies tend to focus on the tasks workers perform rather than the relationships they form (Prain, McVilly, and Ramcharan 2012;Marquis and Jackson 2000), and attention to relationships is rarely part of support worker training programs (van Oorsouw, Embregts, and Bosman 2013). Hence, there have been calls for support policy and systems to foreground the importance of relationships more strongly (Christensen 2012;O'Brien 2013;Marquis and Jackson 2000).…”

Section: Relationships In a Changing Policy Contextmentioning

confidence: 99%

Understanding paid support relationships: possibilities for mutual recognition between young people with disability and their support workers

Robinson

Graham

Fisher

et al. 2020

Disability & Society

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The quality of paid relationships is key for effective support, yet little is known about how people receiving and providing support understand and experience the relationship. This paper reports on recent research that explored the role of relationships with paid support workers in strengthening the rights and wellbeing of young people with cognitive disability in Australia. The research used photo-rich participatory methods with 42 pairs of young people and their support workers and drew on Honneth's recognition theory to specifically explore experiences of being valued, respected and cared about in their work together. The findings point to the importance of these connected aspects of recognition in paid support relationships, highlighting both the presence and absence of these, as well as experiences of misrecognition. The implications of recognition for strengthening support need close consideration in an international context characterised by personalisation of support, resource constraints and inquiries into poor practice.

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Interacting with adults with congenital deafblindness: The experiences of disability support workers

Abstract: The findings suggest the need for staff policy and procedural documents to be explicit about the importance of social interaction between staff and clients.

Cited by 12 publications

References 18 publications

Exploring spontaneous interactions between people with profound intellectual and multiple disabilities and their peers

Exploring spontaneous interactions between people with profound intellectual and multiple disabilities and their peers

The Teaching of Sign Language in Undergraduate Nursing Courses: A Descriptive Study as an Attribute to the Integrality of Care

Understanding paid support relationships: possibilities for mutual recognition between young people with disability and their support workers

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