Interacting With Providers: An Intersectional Exploration of the Experiences of Carers of Aboriginal Children With a Disability

Gréen, Anna; Abbott, Penelope A; Davidson, Patricia M.; Delaney, Patricia; Delaney, John; Patradoon-Ho, Patrick; DiGiacomo, Michelle

doi:10.1177/1049732318793416

Cited by 26 publications

(35 citation statements)

References 48 publications

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“…A thesis by Green (2018) explored the perspectives of 24 non-Aboriginal community controlled health, education and social service providers on support services for Indigenous children with disabilities in Western Sydney. The ability of families to recognise children's candidacy for support was viewed as a key factor related to service utilisation.…”

Section: Carer and Service Provider Perspectivesmentioning

confidence: 99%

“…Don't worry about it. They'll pick up in their own time' (Green et al, 2018(Green et al, , p. 1926 'So if there's a speech issue they might just say oh, so and so did that at three years old and now they're talking fine too' (Green, 2018, p. 92) 'I was amazed that a couple with a 13 year-old-child with a disability had never received a service from anyone. They didn't know we existed, they didn't know other services existed' (McDonald & Zetlin, 2004, p. 119) Lack of information 'Carers have to do the hard yards to get support' (DiGiacomo et al, 2013, p. 6) 'We knew something was wrong, it's just getting the right people to listen' (Higgins & Beecher, 2010, p. 29) Pathway complexity 'It shouldn't be this hard ' (DiGiacomo et al, 2013, p. 6) 'I'm a health professional, even for me sometimes when I'm thinking, oh, where do I go about particular things, so there's so many different services but how do you know which service you need for your child?…”

Section: Declaration Of Conflicting Interestsmentioning

confidence: 99%

“…. they just talk to me in a rude tone and, like, they, like, give me attitude' (Green et al, 2018(Green et al, , p. 1926 Rushed consultations 'I had [child] to another paediatrician before we started here [ACCHO] with him, and I wasn't impressed . .…”

Section: Declaration Of Conflicting Interestsmentioning

confidence: 99%

“…. I just went away and I thought well that's not good enough, you haven't really asked me anything' (Green et al, 2018(Green et al, , p. 1927 Service providers' disregard for Indigenous culture 'There is no allowances whatsoever, they just feel that because you're Australian, we've got to be the same as any other Aussie person. Well, it's not.…”

Section: Declaration Of Conflicting Interestsmentioning

confidence: 99%

“…We're Indigenous. We've got our beliefs and everything, and people don't understand that' (Green et al, 2018(Green et al, , p. 1927 Perceived disrespect 'They don't respect me, in a way, like with the kids. Well, mostly with her [child with disability].…”

Section: Declaration Of Conflicting Interestsmentioning

confidence: 99%

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Indigenous Australians with autism: A scoping review

Bailey

Arciuli

2020

Autism

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Aboriginal and Torres Strait Islander people with autism spectrum disorder, used interchangeably with the term autism, are among the most marginalised people in Australian society. This review maps out existing and emerging themes in the research involving Indigenous Australians with autism based on a search of the peer-reviewed and grey literature. Our search identified 1457 potentially relevant publications. Of these, 19 publications met our inclusion criteria and focused on autism spectrum disorder diagnosis and prevalence, as well as carer and service provider perspectives on autism, and autism support services for Indigenous Australians. We were able to access 17 publications: 12 journal articles, 3 conference presentations, 1 resource booklet and 1 dissertation. Findings suggest similar prevalence rates for autism among Indigenous and non-Indigenous Australians, although some Aboriginal and Torres Strait Islander people with autism may not receive a diagnosis or may be misdiagnosed. Research on the perspectives of Aboriginal and Torres Strait Islander carers and Indigenous and non-Indigenous service providers is discussed in relation to Indigenous perspectives on autism, as well as barriers and strategies to improve access to diagnosis and support services. Although not the focus of our review, we briefly mention studies of Indigenous people with autism in countries other than Australia. Lay Abstract Aboriginal and Torres Strait Islander people with developmental disabilities such as autism are among the most marginalised people in Australian society. We reviewed research involving Indigenous Australians with autism based on a search of the peer-reviewed and grey literature. Our search identified 1457 potentially relevant publications. Of these, 19 publications were in line with our main areas of inquiry: autism spectrum disorder diagnosis and prevalence, carer and service provider perspectives on autism, and autism support services. These included 12 journal publications, 3 conference presentations, 1 resource booklet and 1 thesis dissertation. Findings suggest similar prevalence rates for autism among Indigenous and non-Indigenous Australians, although some Aboriginal and Torres Strait Islander people with autism may not receive a diagnosis or may be misdiagnosed. We also discuss research on the perspectives of Aboriginal and Torres Strait Islander carers and Indigenous and non-Indigenous service providers, as well as barriers and strategies for improving access to diagnosis and support services.

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Section: Carer and Service Provider Perspectivesmentioning

confidence: 99%

Section: Declaration Of Conflicting Interestsmentioning

confidence: 99%

Section: Declaration Of Conflicting Interestsmentioning

confidence: 99%

Section: Declaration Of Conflicting Interestsmentioning

confidence: 99%

Section: Declaration Of Conflicting Interestsmentioning

confidence: 99%

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