2003
DOI: 10.1046/j.1365-2648.2003.02577.x
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Interaction between caregivers and families expecting a malformed child

Abstract: The findings of the study are consistent with earlier research and complement it by providing a detailed delineation of the interaction from the perspective of the family. They can be used to formulate recommendations for improving caregivers' interactive skills and awareness of the topic through training. The care system should be developed to ensure that families receive psychological support and that the family as a whole receives proper care. Consideration of the viewpoint of siblings is a challenge for fu… Show more

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Cited by 21 publications
(22 citation statements)
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References 27 publications
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“…Hence, it could be argued that this type of non-cognitive empathy is not pro-social, which may serve to reduce, rather than scaffold cooperation. Uninvited, automatic nonexperienced empathy might be negatively interpreted and poorly received by the interviewee (e.g., Cuff et al, 2014;Maijala, Åstedt-Kurki, Paavilainen, & Väisänen, 2003;Tansey & Burke, 2013), and so may not be followed by the same behavioural responses as empathy emanating from perceived empathic opportunities (see Gerdes & Segal, 2009;Geer, Estupinan, & Manguno-Mire, 2000;Hodges & Biswas-Diener, 2007).…”
Section: Discussionmentioning
confidence: 99%
“…Hence, it could be argued that this type of non-cognitive empathy is not pro-social, which may serve to reduce, rather than scaffold cooperation. Uninvited, automatic nonexperienced empathy might be negatively interpreted and poorly received by the interviewee (e.g., Cuff et al, 2014;Maijala, Åstedt-Kurki, Paavilainen, & Väisänen, 2003;Tansey & Burke, 2013), and so may not be followed by the same behavioural responses as empathy emanating from perceived empathic opportunities (see Gerdes & Segal, 2009;Geer, Estupinan, & Manguno-Mire, 2000;Hodges & Biswas-Diener, 2007).…”
Section: Discussionmentioning
confidence: 99%
“…8 Parents desperately need additional information but have difficulty understanding and believing what they are told. 12 Parents prefer that detected abnormalities be conveyed immediately. 9 Uncertainty predominates during the rest of the pregnancy.…”
Section: Antenatal Diagnosismentioning
confidence: 99%
“…12 The few studies [22][23][24] conducted about preparation of parents for their baby's admission to NICU focus on the prenatal introductory tour of the NICU for parents who expect premature birth but do not pertain to parents expecting a child with congenital anomaly. In a study about prenatal diagnosis of Down syndrome and decisions to continue with the pregnancy, 17 meetings or phone conversations with parents whose children had this syndrome were described as a great source of support and information.…”
Section: Preparing For Birthmentioning
confidence: 99%
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“…Work to develop the measurement tool was based on the main concept categories from Maijala's (2004) substantive theory of interaction between caregivers and families expecting a malformed child (Holzemer, Spicer, Kemppainen, & Colman, 1998;Larsson & Larsson, 2002;Maijala et al, 2003;Read et al, 2005). The substantive theory (see Figure 1) that provides the foundation for the instrument is focused on a different family situation than that for which the tool is intended.…”
Section: Stages Of Instrument Development Instrument Development: Stamentioning
confidence: 99%