Interactions between healthcare personnel and family caregivers of people with dementia from minority ethnic backgrounds in home‐based care—An explorative qualitative study

Gulestø, Ragnhild; Lillekroken, Daniela; Bjørge, Heidi; Halvorsrud, Liv

doi:10.1111/jan.15101

Cited by 2 publications

(1 citation statement)

References 48 publications

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“…Another aspect of behaving in an appropriate way was by some associated with the concept of ethnicity. Studies argue that standardisation and efficiency may reinforce negative conceptualisations and lead to the construction of minority ethnic groups as troublesome (Berdai Chaouni et al, 2020; Debesay et al, 2014; Gulestø et al, 2021). Our study corroborates these findings and demonstrates how not interfering healthcare personnel from home-based care became important, as this was a typical behaviour among other families from minority ethnic backgrounds.…”

Section: Discussionmentioning

confidence: 99%

Different senses of one’s place: Exploring social adjustment to home-based care services among family caregivers from minority ethnic backgrounds who have relatives living with dementia

et al. 2023

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Western dementia care policies emphasise that family caregivers from minority ethnic backgrounds must become more engaged in healthcare services. However, research exploring experiences of receiving services such as home-based care, and thus adjustment to the service, among family caregivers from minority ethnic backgrounds who have relatives with dementia is still scarce. Therefore, inspired by Pierre Bourdieu’s theoretical concepts of field, habitus and capital, we explored how family caregivers from different minority ethnic backgrounds justified decisions about whether to receive home-based care and their social adjustment to the service. Using empirical data from semi-structured interviews with nine family caregivers from different minority ethnic backgrounds, we demonstrated that different mindsets and available social resources gave rise to various actions. Although some family caregivers were optimistic about receiving home-based care, our findings point to tensions between the ideals of care practices and the organisational structures surrounding home-based care as a service. Among those who had experiences with home-based care, we found that organisational limitations, particularly in terms of efficiency demands and time constraints, influenced their behaviours and thus their social adjustments to the service. For some, these limitations eventually resulted in cancellation of the service. However, not all had the same opportunities to make these decisions, indicating that, although family caregivers from minority ethnic backgrounds receive home-based care, this does not necessarily entail a deficiency-free service. Furthermore, we argue that public discourses on this subject can be challenged by encouraging one to look beyond ethnic and cultural labels towards other factors, such as organisational structures, that might largely influence the use of home-based care among these family caregivers.

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Section: Discussionmentioning

confidence: 99%

Different senses of one’s place: Exploring social adjustment to home-based care services among family caregivers from minority ethnic backgrounds who have relatives living with dementia

et al. 2023

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Aging in place or aging out of place? Family caregivers’ perspectives on care for older Pakistani migrants in Norway

Shrestha,

Arora,

Hunter

et al. 2024

Eur J Ageing

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The aging population in Europe is increasing, with growing ethnic diversity among older individuals due to migration. Public policies emphasize ‘aging in place’ to address financial challenges and reduce the burden on the healthcare system. However, research often overlooks the heterogeneity among older people, especially non-European migrants. Also, research on family caregivers’ role in enabling ‘aging in place’ for older relatives with migrant backgrounds is limited, despite many older non-European migrants’ preference for family care in comparison to long-term institutional care. This study aims to explore the experiences and perspectives of family caregivers in the context of formal and informal care and their preferences regarding the place of care for older family members with migrant backgrounds, particularly the Pakistani Ahmadiyya community in Norway. Eighteen semi-structured individual interviews and two group interviews were conducted in Urdu and English with nineteen female family caregivers of older relatives, ages 25–62, residing in Norway. The analysis yielded three main themes: (1) “Nursing homes are not for the ones who love their parents”, (2) Preferences for home with the possibility of sharing care, and (3) Mismatch between family care needs and formal care. Family caregivers’ perception of health services has a decisive impact on their older relatives’ demand and use of formal health services, emphasizing the need for trust. Even though home care services were seen as a viable option, they should be adapted so that the family caregivers can use them and feel supported in enabling ‘aging in place’ for older migrants.

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Interactions between healthcare personnel and family caregivers of people with dementia from minority ethnic backgrounds in home‐based care—An explorative qualitative study

Abstract: This is an open access article under the terms of the Creat ive Commo ns Attri bution-NonCo mmercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.

Cited by 2 publications

References 48 publications

Different senses of one’s place: Exploring social adjustment to home-based care services among family caregivers from minority ethnic backgrounds who have relatives living with dementia

Different senses of one’s place: Exploring social adjustment to home-based care services among family caregivers from minority ethnic backgrounds who have relatives living with dementia

Aging in place or aging out of place? Family caregivers’ perspectives on care for older Pakistani migrants in Norway

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