Interactions between recovery in aphasia, emotional and psychosocial factors in subjects with aphasia, their significant others and speech pathologists

Hemsley, Gayle; Code, Chris

doi:10.3109/09638289609166318

Cited by 63 publications

(45 citation statements)

References 24 publications

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“…In patients suffering from aphasia after stroke, the disability in speech causes significant changes in self-image as well as family, social and work relationships (57). A recent meta-analysis demonstrated that the extent of aphasia, in terms of severity, language impairment and communication disability is significantly associated with lower health related quality of life (58).…”

Section: Discussionmentioning

confidence: 99%

Functional Outcomes of Face Transplantation

Fischer

Kueckelhaus

Pauzenberger

et al. 2015

American Journal of Transplantation

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In this study we provide a compilation of functional impairments before and improvements after face transplantation (FT) of five FT recipients of our institution and all FTs reported in current literature. Functional outcome included the ability to smell, breath, eat, speak, grimace and facial sensation. Before FT, all our patients revealed compromised ability to breath, eat, speak, grimace and experience facial sensation. The ability to smell was compromised in two of our five patients. Two patients were dependent on tracheostomy and one on gastrostomy tubes. After FT, all abilities were significantly improved and all patients were independent from artificial air airways and feeding tubes. Including data given in current literature about the other 24 FT recipients in the world, the abilities to smell, eat and feel were enhanced in 100% of cases, while the abilities of breathing, speaking and facial expressions were ameliorated in 93%, 71% and 76% of cases, respectively. All patients that required gastrostomy and 91% of patients depending on tracheostomy were decannulated after FT. Unfortunately, outcomes remain unreported in all other cases and therefore we are unable to comment on improvements.

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Section: Discussionmentioning

confidence: 99%

Functional Outcomes of Face Transplantation

Fischer

Kueckelhaus

Pauzenberger

et al. 2015

American Journal of Transplantation

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“…In the field of aphasiology, a number of studies have explored the impact of aphasia (e.g., more recently, LeDorze & Brassard, 1995;Hemsley & Code, 1996;Sarno, 1997;Hoen, Thelander & Worsley, 1997;Lyon et al, 1997;Parr, Byng & Gilpin, 1997;Cruice, Worrall & Hickson, 2000b), rather than specifically the HRQL of people living with aphasia. Some of these studies have used measures such as the Ryff Psychological Well-being Scales (see Hoen et al, 1997) or the Psychological Well-being Index (see Lyon et al, 1997), which have not been tested extensively for their psychometric properties.…”

Section: Evaluating Health Care Provision: Patient-based Outcomesmentioning

confidence: 99%

Predictors of health-related quality of life (HRQL) in people with chronic aphasia

et al. 2003

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“…Secondly, no specific information is given on the psychosocial profiles of the people with aphasia. For example, even when there was no significant difference in the overall quality of life or well-being between aphasic and non aphasic stroke survivors, did aphasic survivors tend to score lower on e.g., social health or role and relationships items?In the field of aphasiology a number of studies have addressed issues related to the psychosocial aspects of aphasia (e.g., more recently, LeDorze & Brassard, 1995;Hemsley & Code, 1996;Sarno, 1997; Hoen, Thelander, & Worsley,1997;Lyon et al, 1997;Parr, Byng, Gilpin, & Ireland, 1997). Some of these studies have used semistructured or in-depth interviewing techniques (LeDorze & Brassard, 1995;Parr et al, 1997).…”

mentioning

confidence: 99%

“…In the field of aphasiology a number of studies have addressed issues related to the psychosocial aspects of aphasia (e.g., more recently, LeDorze & Brassard, 1995;Hemsley & Code, 1996;Sarno, 1997;Hoen, Thelander, & Worsley,1997;Lyon et al, 1997;Parr, Byng, Gilpin, & Ireland, 1997). Some of these studies have used semistructured or in-depth interviewing techniques (LeDorze & Brassard, 1995;Parr et al, 1997).…”

mentioning

confidence: 99%

Measuring Well-Being in Aphasia: The GHQ-28 Versus the NHP

Hilari

Byng²,

Pring

2001

Advances in Speech Language Pathology

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This is the accepted version of the paper.This version of the publication may differ from the final published version. Copyright and reuse: City Research Online aims to make research outputs of City, University of London available to a wider audience. Copyright and Moral Rights remain with the author(s) and/or copyright holders. URLs from City Research Online may be freely distributed and linked to. City Research Online: http://openaccess.city.ac.uk/ publications@city.ac.uk Permanent repository link: City Research OnlineMeasuring Well-being in Aphasia: The GHQ-28 versus the NHP Katerina HilariCity University, London, U.K. Sally ByngConnect -the Communication Disability Network, London, U.K. Tim PringCity University, London, U.K. Address for correspondence: Katerina Hilari, Department of Language and CommunicationScience, City University, Northampton Square, London EC1V 0HB, U.K. E-mail: k.hilari@city.ac.uk This study was funded by the Stroke Association. ABSTRACTThis study aimed to get the opinion of people with aphasia on two subjective well-being measures: the General Health Questionnaire 28-item version (GHQ-28) (Goldberg & Hillier, 1979) and the Nottingham Health Profile (NHP) (Hunt et al., 1981). Twelve persons with moderate to mild aphasia of at least two years duration completed the GHQ-28 and the NHP. In a semi-structured interview they gave their feedback on the two questionnaires. All participants were able to complete both the instruments. Nine out of twelve showed high psychological distress (>5/28) in the GHQ-28. The NHP (part 1 less the physical abilities section) had a correlation of 0.78 (p<.01) with the GHQ-28. The social dysfunction sub-scale of the NHP identified more problems in the people with aphasia than the social isolation sub-scale of the GHQ-28. The majority of the participants (ten out of twelve) preferred the NHP as they found it easier to understand and to respond to. This small-scale study indicated that both the GHQ-28 and the NHP can be administered to people with moderate to mild aphasia and provide useful information on their well-being. Participants reported that the NHP was easier to do and it asked more relevant questions to their situation.Over the past decades, better living conditions and advances in medical treatments have resulted in more people having to live with the aftermath of a disease than immediately die from it. The increasing prevalence of chronic disability is reflected in health related research with an increase in studies exploring the quality of life and the wellbeing of users of health care services. In the field of stroke, during the last ten years, there has been a considerable amount of research investigating the long term outcome and/or psychosocial and emotional impact of stroke (e.g., Astrom, Asplund, & Astrom, 1992;deHaan, Limburg, Van der Meulen, Jacobs, & Aaronson, 1995;Foster & Young, 1996; Hochstenbach, Donders, Mulder, vanLimbeek, & Schoonderwaldt, 1996 [Dutch]; King, 1996;Wyller, Holmen, Laake, & Laake, 1998;Lofgren, Gustafson, & Nyberg...

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Interactions between recovery in aphasia, emotional and psychosocial factors in subjects with aphasia, their significant others and speech pathologists

Cited by 63 publications

References 24 publications

Functional Outcomes of Face Transplantation

Functional Outcomes of Face Transplantation

Predictors of health-related quality of life (HRQL) in people with chronic aphasia

Measuring Well-Being in Aphasia: The GHQ-28 Versus the NHP

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