Interactive Design – the desire for autonomous upright mobility: A longitudinal case study

Enhancing Function, Fun and Participation with Assistive Devices, Adaptive Positioning, and Augmented Mobility for Young Children with Infantile-Onset Spinal Muscular Atrophy: A Scoping Review and Illustrative Case Report

“…See Figure 1 for PRISMA flow chart outlining each phase of the process. Twelve articles were eliminated as they did either did not include or did not explicitly report data from individuals with SMA-1 [38][39][40][41][42][43][44][45][46][47][48][49].…”

“…Disabilities 2021, 1, 4 did either did not include or did not explicitly report data from individuals with SMA-1 [38][39][40][41][42][43][44][45][46][47][48][49]. Five articles met inclusion criteria and are included in Table 1; one described power mobility skill development in a case-series of six children including only one child diagnosed as SMA-1 [34]; another described results from an internet-based survey of 32 parents of children with SMA-1 regarding use of speech generating devices and other augmentative communication supports [33]; a third study reported results of a retrospective cohort describing orthotic, positioning and mobility equipment use including 14 children with SMA-1 [35]; a qualitative study explored parents experiences with wheelchair provision and included parents of one child diagnosed as SMA-1 and another described as SMA-1-2 [36]; while a fifth study included data on stander use in 152 children with SMA-1 [37].…”

A Framework for Transitioning Designerly Ways: Interrogating 50 Years of Inclusive Design for Paediatric Mobility

“…On one end of the spectrum, exist designers who have a vested personal interest, lived experience, or social and corporate responsibility, such as family members or charities (e.g. Everard 1983;Flodin 2008). Designers at this end of the spectrum tend to have a strong point of view about the problem they are seeking to solve, or even an idea of a solution from the outset, and thus tend to jump into the design process without attempting to reframe or consider the problem from alternative perspectives.…”

“…The dimension of Time can be related to short-term present thinking (immediate), or long-term future thinking (extended). It is interesting, yet unsurprising, that the first IPM interventions captured in the mapping review were created by parents (Everard 1983;Flodin 2008) as urgent responses to satisfy the mobility needs of their own children. These designs hence adopted an immediate approach to time.…”