Interactive Sections of an Internet-Based Intervention Increase Empowerment of Chronic Back Pain Patients: Randomized Controlled Trial

Riva, Silvia; Camerini, Anne-Linda; Allam, Ahmed; Schulz, Peter

doi:10.2196/jmir.3474

Cited by 97 publications

(85 citation statements)

References 62 publications

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“…As a general result, our data shows that the empowerment level of women with epilepsy is comparable with the one of general population and the one of other populations with chronic diseases, such as diabetes and chronic pain disorders [19]. For instance, as concerning patients with chronic back pain, mean scores obtained in each subscale ranged from 12.9 (Impact scale) to 14.7 (Meaningfulness subscale).…”

Section: Discussionsupporting

confidence: 62%

Level of empowerment and decision-making style of women with epilepsy in childbirth age

Turner

Cutica

Riva

et al. 2019

Epilepsy & Behavior

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Objectives:This research investigates level of empowerment, decisional skills, and the perceived relationship with the clinician, of women in childbirth age, also in relationship with clinical variables such as epilepsy type, seizure frequency, therapy, and pregnancy status. In particular, as concerning therapy, we were interested in women who take Valproic Acid (VPA), for its specific balance of risks and benefits, especially in pregnant women. Methods:The sample is composed of 60 women with epilepsy (6 were excluded), who underwent a standardised clinical protocol for assessment of level of empowerment, decisional skills and of their judgment about how they feel to be involved by their clinician in medical decision making. Results:Overall, the sample does not show signs of low empowerment level nor of abnormal decision-making patterns.The type of epilepsy, the frequency of seizures and the treatment type (VPA versus no VPA) do not impact on empowerment, nor on decision styles nor on medical relationship, with the only exception of a specific decision style, the avoidant style, that is more frequent in women treated with VPA with respect to those taking other therapies.Interestingly, regarding VPA dosage, we found that patients taking equal or more than 700 mg/day of VPA have lower scores on empowerment in all dimensions compared to women with a VPA dosage lower than 700 mg/day. Conclusions: Shared decision-making including improved decision quality, more informed choices and better treatment concordance, should be a central part of epilepsy care. In addition, for clinicians it would be useful to have specific tools to know if the patient has really understood the risks and benefits of AEDs, particularly VPA, and all treatment alternatives. Turner et al. 3

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Section: Discussionsupporting

confidence: 62%

Level of empowerment and decision-making style of women with epilepsy in childbirth age

Turner

Cutica

Riva

et al. 2019

Epilepsy & Behavior

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“…As several studies both in the oncological and non-oncological settings have shown (e.g., Schulz et al, 2013; Riva et al, 2014), “effective coping skills allow patients to retain as much of their lives in spite of a medical condition that is chronic or difficult to diagnose or treat” (Schulz et al, 2013; Riva et al, 2015). …”

Section: Discussionmentioning

confidence: 99%

Distress and Psychosocial Needs in Patients Accessing a Cancer Day Surgery Division: Implications for Clinical Decision Making

et al. 2016

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Introduction: The Distress Thermometer (DT) was built and validated for screening cancer patients for distress, as suggested by the National Comprehensive Cancer Network. The current work was designed to measure the rates of distress in a sample of patients being hospitalized in a multidisciplinary outpatient surgery clinic. Objective: To measure the rates of distress in a sample of patients referring to a multidisciplinary day surgery division in a comprehensive cancer center based in Northern Italy.Methods: A total of 177 patients were asked to fill in the (DT) before surgery.Results: Out of 177 patients, 154 (87%) patients completed the DT. While 13% of the patients indicated a total absence of distress, more than half of the sample declared a moderate or high distress. A total of 55% of patients presented at least three difficulties in the Problem List Checklist. Distress was not correlated with age or other medical and clinical variables. Number of emotional problems was the best predictor of distress at admission (β = 0.655, p = 0.000).Conclusion: Screening for distress in a day surgery multidisciplinary oncology division is feasible and a relevant percentage of patients can be identified as clinically distressed. Outcomes also highlight the impact of age and precise physical and psycho-social signs as prognostic indicators of clinically significant distress. Measurement of distress and associated problems list represent the preliminary endpoint toward adequate recommendations that contribute to taking care of distress in cancer patients in cost-effective clinical setting.

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“…One possible effect of having Internet access to health information is that consumers are enabled to participate in decisions regarding their health [59]. Following insights from previous studies [37,60,61], we expect that consumers looking on the Web for health information will also be more empowered in the sense that they will consider themselves to be more capable of taking the proper action once they have found useful information on the health condition.…”

Section: Introductionmentioning

confidence: 99%

Effects of eHealth Literacy on General Practitioner Consultations: A Mediation Analysis

Schulz¹,

Fitzpatrick²,

Hess³

et al. 2017

J Med Internet Res

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BackgroundMost evidence (not all) points in the direction that individuals with a higher level of health literacy will less frequently utilize the health care system than individuals with lower levels of health literacy. The underlying reasons of this effect are largely unclear, though people’s ability to seek health information independently at the time of wide availability of such information on the Internet has been cited in this context.ObjectiveWe propose and test two potential mediators of the negative effect of eHealth literacy on health care utilization: (1) health information seeking and (2) gain in empowerment by information seeking.MethodsData were collected in New Zealand, the United Kingdom, and the United States using a Web-based survey administered by a company specialized on providing online panels. Combined, the three samples resulted in a total of 996 baby boomers born between 1946 and 1965 who had used the Internet to search for and share health information in the previous 6 months. Measured variables include eHealth literacy, Internet health information seeking, the self-perceived gain in empowerment by that information, and the number of consultations with one’s general practitioner (GP). Path analysis was employed for data analysis.ResultsWe found a bundle of indirect effect paths showing a positive relationship between health literacy and health care utilization: via health information seeking (Path 1), via gain in empowerment (Path 2), and via both (Path 3). In addition to the emergence of these indirect effects, the direct effect of health literacy on health care utilization disappeared.ConclusionsThe indirect paths from health literacy via information seeking and empowerment to GP consultations can be interpreted as a dynamic process and an expression of the ability to find, process, and understand relevant information when that is necessary.

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Interactive Sections of an Internet-Based Intervention Increase Empowerment of Chronic Back Pain Patients: Randomized Controlled Trial

Cited by 97 publications

References 62 publications

Level of empowerment and decision-making style of women with epilepsy in childbirth age

Level of empowerment and decision-making style of women with epilepsy in childbirth age

Distress and Psychosocial Needs in Patients Accessing a Cancer Day Surgery Division: Implications for Clinical Decision Making

Effects of eHealth Literacy on General Practitioner Consultations: A Mediation Analysis

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