Interkulturelle Adaptation des Lymph-ICF-Fragebogens für Patienten mit Lymphödemen der unteren Gliedmaßen in Deutschland

Allofs, Jana; Johnsen, Lutz; Devoogdt, Nele; Stutterheim, Eric; Hoppstädter, Wiebke; Grüneberg, Christian

doi:10.1055/a-0833-2117

Cited by 7 publications

(7 citation statements)

References 28 publications

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“…2B. The Lymph-ICF-LL questionnaire showed signi cant differences in group comparisons for total score as well as in the sub-domains "physical function", "mental function" and "general tasks/household activities": Patients with an active LLL had total scores indicating a moderate problem (25-49) as de ned by the total score as well as for physical and mental function, whereas the scores in the group with completely regressed LLLs indicated a small problem (5)(6)(7)(8)(9)(10)(11)(12)(13)(14)(15)(16)(17)(18)(19)(20)(21)(22)(23)(24). Results are shown in Table 3A.…”

Section: Resultsmentioning

confidence: 96%

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Onset and burden of lower limb lymphedema after radical prostatectomy: a cross-sectional study

Neuberger

Schmidt

Wessels

et al. 2021

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ObjectivesTo explore men´s onset and burden of lower limb lymphedema (LLL) after radical prostatectomy (RP) with pelvic lymph node dissection. Patients and methodsA cross-sectional survey-based study was conducted nation-wide and web-based in Germany. Part 1 included 15 multidisciplinary compiled questions with three questions from Short Form 12 Health Survey (SF-12) and WHO activity recommendation, part 2 the validated German Lymph-ICF-Questionnaire (Lymph-ICF-LL). Subgroup comparisons and simple regression analyses were used to identify factors associated with therapy and burden of LLL, followed by multiple regression analyses to explain variance in impairment in the patients' daily life. Results 54 patients completed the survey. Median time of LLL-onset was reported with 2.0 (0.5-9.75) months after RP. 19 patients (35.2%) reported bilateral lymphedema, 28 (51.9%) the use of individually tted compression stockings (CS), 25 (46.3%) of manual lymphatic drainage (LD) and 26 (48.1%) complete regression.The Lymph-ICF-LL revealed a higher total burden for patients with an active LLL compared to complete regression (total score: 25.5 vs. 11.9, p=0.01) specially for "physical function" (28.3 vs. 12.9, p=0.004) and "mental function" (26.2 vs. 6.7, p<0.001). In multiple linear regression analysis, a higher BMI (β=0.28), lower subjective general health (β=-0.48) and active lymphedema (β =0.28) were signi cant predictors of higher reported impairments in the Lymph-ICF-LL, accounting for 45.4% of variance. ConclusionMen with LLL after RP with PLND report a signi cant burden in daily life. Bbasic therapy needs to be offered early. Postoperative onset of LLL is variable, which should be considered when assessing complications after RP.

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Section: Resultsmentioning

confidence: 96%

“…Higher scores indicate stronger impairments. The Lymph-ICF-LL is considered the rst reliable and valid questionnaire for patients with LLL in German [12]. For the evaluation of the Lymph-ICF-LL we followed Devoogdt et al's instructions [11]:…”

Section: Questionnairementioning

confidence: 99%

Onset and burden of lower limb lymphedema after radical prostatectomy: a cross-sectional study

Neuberger

Schmidt

Wessels

et al. 2021

Support Care Cancer

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Section: Resultsmentioning

confidence: 96%

Onset And Burden of Lower Limb Lymphedema After Radical Prostatectomy: A Cross-Sectional Study

Neuberger

Schmidt

Wessels

et al. 2021

Preprint

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ObjectivesTo explore men´s onset and burden of lower limb lymphedema (LLL) after radical prostatectomy (RP) with pelvic lymph node dissection.Patients and methodsA cross-sectional survey-based study was conducted nation-wide and web-based in Germany. Part 1 included 15 multidisciplinary compiled questions with three questions from Short Form 12 Health Survey (SF-12) and WHO activity recommendation, part 2 the validated German Lymph-ICF-Questionnaire (Lymph-ICF-LL). Subgroup comparisons and simple regression analyses were used to identify factors associated with therapy and burden of LLL, followed by multiple regression analyses to explain variance in impairment in the patients’ daily life.Results54 patients completed the survey. Median time of LLL-onset was reported with 2.0 (0.5-9.75) months after RP. 19 patients (35.2%) reported bilateral lymphedema, 28 (51.9%) the use of individually fitted compression stockings (CS), 25 (46.3%) of manual lymphatic drainage (LD) and 26 (48.1%) complete regression.The Lymph-ICF-LL revealed a higher total burden for patients with an active LLL compared to complete regression (total score: 25.5 vs. 11.9, p=0.01) specially for “physical function” (28.3 vs. 12.9, p=0.004) and “mental function” (26.2 vs. 6.7, p<0.001). In multiple linear regression analysis, a higher BMI (β=0.28), lower subjective general health (β=-0.48) and active lymphedema (β =0.28) were significant predictors of higher reported impairments in the Lymph-ICF-LL, accounting for 45.4% of variance.ConclusionMen with LLL after RP with PLND report a significant burden in daily life. Bbasic therapy needs to be offered early. Postoperative onset of LLL is variable, which should be considered when assessing complications after RP.

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“…This could only be explained by the very low number of subjects (n = 10), where the moderate range shifts downwards to start from 0.30 ( Bortz & Döring, 2006 ). The ICC for the total score was in fact moderate (0.67) but with a very broad CI (0.13–0.91; Allofs et al, 2019 ). One explanation could also be the low number of subjects or a low variability between these subjects, as shown by Bland and Altman (1990) and further explained by Lee and colleagues (2012) .…”

Section: Discussionmentioning

confidence: 94%

“…The only German translation by Allofs and colleagues (2019) was faced with a poor construct validity and could therefore accept only 5% percent of their hypotheses. It remains questionable that the test measures what it is supposed to measure given the concept of construct validity ( Smith, 2005 ).…”

Section: Discussionmentioning

confidence: 99%

Patient-Reported Outcome Measures With Secondary Lower Limb Lymphedemas: A Systematic Review

Eidenberger¹

2021

JADPRO

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Background: Patient-reported outcome measures are measures of patients’ health-related quality of life. They should be added to other lymphedema measurements. With an improved disease-free survival of secondary lower limb lymphedema, attention must focus on such assessments. Objective: The objectives of this study were to locate and critically appraise suitable patient-reported outcomes measures for lower limb lymphedemas and search for existing valid translations for native German speakers. Methods: A systematic literature research was conducted. 20 semantical categories for qualitative analysis were evolved. Six questionnaires available in English and some in validated translations remained for analysis. Results: Lower limb lymphedema patients experience poor quality of life, and one of the most critical denominators is skin quality. To establish skin care and prevent cellulitis, patients must learn about skin problems. Only two tools asked for past infections. This is considered crucial because of knowledge building and prophylactic behavior. Questions on movement restrictions were available in one questionnaire. As these have a close connection to one’s ability to perform activities of daily life, they can affect quality of life. Afflicted patients have problems with the choice and availability of clothing. Only three questionnaires asked questions about clothing or shoes. Lymphedema patients are exposed to more psychological stress than healthy subjects, but only three questionnaires covered questions about this burden. There was a lack of reporting on psychometric data (Cronbach’s alpha, intraclass correlation), which hinders the external validity. Analyzed questionnaires were available in English but only one in German. Conclusions: The analyzed questionnaires were in English, and only one was adapted and tested for native German speakers. For clinical practice, Devoogdt’s questionnaire is recommended despite some shortcomings. There is a need for validated lymphedema questionnaires in German.

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Interkulturelle Adaptation des Lymph-ICF-Fragebogens für Patienten mit Lymphödemen der unteren Gliedmaßen in Deutschland

Cited by 7 publications

References 28 publications

Onset and burden of lower limb lymphedema after radical prostatectomy: a cross-sectional study

Onset and burden of lower limb lymphedema after radical prostatectomy: a cross-sectional study

Onset And Burden of Lower Limb Lymphedema After Radical Prostatectomy: A Cross-Sectional Study

Patient-Reported Outcome Measures With Secondary Lower Limb Lymphedemas: A Systematic Review

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