International Alliance of Patients' Organizations perspectives on person-centered medicine

Groves, Jo

doi:10.5334/ijic.481

Cited by 28 publications

(23 citation statements)

References 4 publications

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“…Our study shows that PPOs highlight the importance of involving different actors when providing information about health issues, so that each contributes specific skills in a complementary way, with little or no overlap. This patient‐centred approach is consistent with recent Pew Research Centre reports stating that patients turn to different actors for their specific health‐care‐related needs . However, PPOs clearly state the need for professionals in order to increase the level of expertise and improve time management.…”

Section: Discussionsupporting

confidence: 86%

“…Involvement in POs and the structure of their activities promote the use of ICT because they favour membership and involvement in online health communities, thus enhancing disclosure of sensitive topics. A PO provides a sense of community and hope for the future, reduces feelings of stress, enhances knowledge, favours preparedness and reassurance and boosts coping strategies and feelings of empowerment .…”

Section: Patient Organizations and Ictmentioning

confidence: 99%

“…This article aims to analyse the needs of PPOs in Spain to identify opportunities to improve health services through the use of ICT. This analysis is the first step in an online service inside the hospital: APTIC Patient Organisations and ICT, a research project that follows the indications of the International Alliance of Patient Organisations (IAPO) and the paradigm of participatory action research because it has a patient‐centred perspective designed to address patients' need in an appropriate and cost‐effective way. APTIC's objective is to design and run a collaborative social network for PPOs within the Patient Organisation Area of the HSJDbcn.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Analysis of patient organizations' needs and ICT use – The APTIC project in Spain to develop an online collaborative social network

Encuentra

Gómez-Zúñiga

Guillamón

et al. 2014

Health Expectations

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Section: Discussionsupporting

confidence: 86%

Section: Patient Organizations and Ictmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Analysis of patient organizations' needs and ICT use – The APTIC project in Spain to develop an online collaborative social network

Encuentra

Gómez-Zúñiga

Guillamón

et al. 2014

Health Expectations

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show abstract

“…Moreover, to enhance integrated health and social care, the patient's total life situation should be taken into account [7]. This means the broader social context within which the person is living and the medical and psychological situation [8–10]. …”

Section: Introductionmentioning

confidence: 99%

Open Dialogues in social networks: professional identity and transdisciplinary collaboration

Holmesland¹,

Seikkula²,

Nilsen³

et al. 2010

Int J Integr Care

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AimThe aim of this article is to explore the challenges connected to the transformation and emergence of professional identity in transdisciplinary multi-agency network meetings and the use of Open Dialogue.IntroductionThe empirical findings have been taken from a clinical project in southern Norway concerning multi-agency network meetings with persons between 14 and 25 years of age. The project explores how these meetings are perceived by professionals working in various sectors.MethodologyData was collected through three interviews conducted with two focus groups, the first comprising health care professionals and the second professionals from the social and educational sectors. Content analysis was used to create categories through condensation and interpretation. The two main categories that emerged were ‘professional role’ and ‘teamwork’. These were analysed and compared according to the two first meeting in the two focus groups.Results and discussionThe results indicate different levels of motivation and understanding regarding role transformation processes. The realization of transdisciplinary collaboration is dependent upon the professionals' mutual reliance. The professionals' participation is affected by stereotypes and differences in their sense of belonging to a certain network, and thus their identity transformation seems to be strongly affected. To encourage the use of integrated solutions in mental health care, the professionals' preference for teamwork, the importance of familiarity with each other and knowledge of cultural barriers should be addressed.

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“…Individuals have a valuable role to play in service planning and healthcare policy-making through meaningful and supported engagement and co-design in all levels and at all points of decision-making (Groves, 2010). Accountability frameworks should be designed accordingly, rather than being solely a transactional compact between funders and providers more honoured in the breech than the observance (Rosenberg and Salvador-Carulla, 2017).…”

Section: Accountability and System Co-designmentioning

confidence: 99%

Regional planning for meaningful person-centred care in mental health: context is the signal not the noise

Röck

Cross

2020

Epidemiol Psychiatr Sci

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Person-centred care is at the core of a value-based health system. Its transformative potential is to enable and support key policy, planning and service developments across the system even when these go against the self-interest of individual major players. It offers a potent test for decision makers at all levels. It demands responses that are multi-level, empirically grounded, expert-informed and data-driven that must converge on the singularity of individuals in the places that they live. This requires different approaches that recognise, respect and reconcile two necessary but constitutionally disparate perspectives: the bureaucratic, overtly decontextualised, top-down, policy and planning objectives of central governments and the formally complex, dynamic and contextualised experience of individuals in the system. Conflating the latter with the former can lead unwittingly to a pervasive and reductive form of quasi-Taylorism that nearly always creates waste at the expense of value. This has parallel application in the treatment domain where outcomes are non-randomly clustered and partitioned by socioeconomic status, amplifying unwarranted variation by place that is striking in its magnitude and heterogeneity. In this paper, we propose that a combination of (1) relevant, local and sophisticated data planning, collection and analysis systems, (2) more detailed person-centred service planning and delivery and (3) system accountability through co-design and transparent public reporting of health system performance in a manner that is understandable, relevant, and locally applicable are all essential in ensuring planned and provided care is most appropriate to more than merely the ‘average’ person for whom the current system is built. We argue that only through a greater appreciation of healthcare as a complex adaptive (eco)system, where context is everything, and then utilising planning, analysis and management methodologies that reflect this reality is the way to achieve genuine person-centred care.

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International Alliance of Patients' Organizations perspectives on person-centered medicine

Cited by 28 publications

References 4 publications

Analysis of patient organizations' needs and ICT use – The APTIC project in Spain to develop an online collaborative social network

Analysis of patient organizations' needs and ICT use – The APTIC project in Spain to develop an online collaborative social network

Open Dialogues in social networks: professional identity and transdisciplinary collaboration

Regional planning for meaningful person-centred care in mental health: context is the signal not the noise

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