International bowel function basic spinal cord injury data set

Abstract

Study design: International expert working group. Objective: To develop an International Bowel Function Basic Spinal Cord Injury (SCI) Data Set presenting a standardized format for the collection and reporting of a minimal amount of information on bowel function in daily practice or in research. Setting: Working group consisting of members appointed by the American Spinal Injury Association (ASIA) and the International Spinal Cord Society (ISCoS). Methods: A draft prepared by the working group was reviewed by Executive Committee of the International SCI Standards and Data Sets, and later by ISCoS Scientific Committee and the ASIA Board. Relevant and interested scientific and professional (international) organizations and societies (approximately 40) were also invited to review the data set and it was posted on the ISCoS and ASIA websites for 3 months to allow comments and suggestions. The ISCoS Scientific Committee, Council and ASIA Board received the data set for final review and approval. Results: The International Bowel Function Basic SCI Data Set includes the following 12 items: date of data collection, gastrointestinal or anal sphincter dysfunction unrelated to SCI, surgical procedures on the gastrointestinal tract, awareness of the need to defecate, defecation method and bowel care procedures, average time required for defecation, frequency of defecation, frequency of fecal incontinence, need to wear pad or plug, medication affecting bowel function/constipating agents, oral laxatives and perianal problems. Conclusion: An International Bowel Function Basic SCI Data Set has been developed.

Secondary health conditions in individuals aging with SCI: Terminology, concepts and analytic approaches

“…Furthermore, the recently developed International SCI Standards and Datasets includes several of these conditions, and provides a framework for the development of new standardized measures that best capture the concept of SHCs. [31][32][33][34] Conceptual models of SHCs. We propose a framework that could be used as a point of departure for understanding the predictors and effects of SHCs in Figure 1.…”

Frequency and age effects of secondary health conditions in individuals with spinal cord injury: a scoping review

“…We anticipate that such inconsistencies may become less over time as researchers develop and begin to use measures developed specifically for individuals with SCI. For example, the International Spinal Cord Society has identified specific measures for assessing a large variety of conditions, such as urinary track function, 29 bowel function, 30 cardiovascular function 31 and pain, 32 among others. However, given the real possibility that different investigators may continue to use different measures, the field would benefit from more 'cross walking' of measures to allow for comparisons.…”

International Spinal Cord Injury Female Sexual and Reproductive Function Basic Data Set

“…Information from other International SCI Data Sets may also be relevant depending on the particular topic under evaluation, for example, the International SCI Lower Urinary Tract Function Basic Data Set 10 or the International SCI Bowel Function Basic Data Set. 11 A spinal cord lesion may be traumatic or non-traumatic in origin. All lesions to the spinal cord, conus medullaris and cauda equina are included in the definition of spinal cord lesions.…”