International collaborative efforts to establish kidney health surveillance systems

Hole, Barnaby; Evans, Katharine; Pyart, Rhodri; Davids, Mogamat Razeen; Bedat, Carlota Gonzalez; Hanafusa, Norio; Harris, David C.H.; Jager, Kitty J.; Jha, Vivekanand; Johansen, Kirsten L.; McDonald, S.; Masakane, Ikuto; Rosa-Díez, Guillermo; Saran, Rajiv; Wetmore, James B.; Caskey, Fergus

doi:10.1016/j.kint.2020.06.047

Cited by 20 publications

(20 citation statements)

References 8 publications

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“… Key advances Underlying chronic kidney disease (CKD) is a risk factor for severe disease and mortality in patients with COVID-19; COVID-19-related mortality is higher in dialysis and transplant recipients than in the general population 1 – 5 . Acute kidney injury (AKI) is an important complication of severe COVID-19; critically ill patients in the intensive care unit — particularly those on mechanical ventilation — are more likely than patients with milder disease to require dialysis, which is associated with higher mortality 6 – 8 .…”

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confidence: 99%

“…Underlying chronic kidney disease (CKD) is a risk factor for severe disease and mortality in patients with COVID-19; COVID-19-related mortality is higher in dialysis and transplant recipients than in the general population 1 – 5 .…”

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confidence: 99%

“…COVID-19-associated mortality is also high among dialysis and kidney transplant recipients as demonstrated by a population-based registry study of >4,000 patients with a diagnosis of COVID-19 who were receiving kidney replacement therapy (KRT) 5 . Among patients on dialysis ( n = 3,285), the 28-day mortality risk was 21.1 times higher than the expected 1.2% mortality of propensity-score matched historical controls.…”

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confidence: 99%

“…In both groups, the presence of multimorbidities also affected outcomes. Geographical differences also existed, which are likely associated with the extent of disease spread in different regions 5 .…”

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The COVID-19 pandemic: consequences for nephrology

Bruchfeld

2020

Nat Rev Nephrol

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The consequences of the COVID-19 pandemic have been devastating; however, evidence suggests that patients with, or at risk of, kidney disease are disproportionally affected. Patients on dialysis and kidney transplant recipients are at higher risk of adverse outcomes from COVID-19, whereas, conversely, patients with severe COVID-19 are at increased risk of acute kidney injury, with short-term and possibly long-term consequences for nephrological care.

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The COVID-19 pandemic: consequences for nephrology

Bruchfeld

2020

Nat Rev Nephrol

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“…Worldwide actions are developing resources that kidney healthcare advocates can use to assist in the establishment or development of a renal registry in their countries. These resources include, but are not be limited to, an open-access global inventory of renal registries, including key facts on how they operate, a list of experts willing to provide advice and workshops covering a range of topics [ 26 ].…”

Section: Fifth Step: Communication Dissemination and Accessibilitymentioning

confidence: 99%

Step-by-step guide to setting up a kidney replacement therapy registry: the challenge of a national kidney replacement therapy registry

Rosa-Díez

González-Bedat

Luxardo

et al. 2021

Clinical Kidney Journal

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Chronic Kidney Disease (CKD) has become one of the most important public health problems worldwide. The analysis and understanding of this global/national/regional reality would benefit from the data of the renal registries. The implementation of a CKD registry (including all categories) is difficult to achieve given its high cost. On the other hand, patients with end-stage kidney disease (ESKD) are easily accessible and constitute the subgroup of greater severity. A Kidney Replacement Therapy Registry (KRTR) is defined as a systematic and continuous collection of a population-based dataset of ESKD patients treated by dialysis/kidney transplant. The lack of available data, particularly in emerging economies, leaves information gaps on health care and outcomes in these patients. The heterogeneity/absence of KRTR in some countries is consistent with the inequities in the access to kidney replacement therapy (KRT) all over the world. In 2014, The Pan American Health Organization (PAHO) proposed to achieve at least a prevalence of KRT patients of 700 pmp by 2019 in every Latin American (LA) country. Since then, PAHO and SLANH (Sociedad Latino Americana de Nefrología e Hipertensión) lead courses of training and certification of KRTR in Latin America. The purpose of this manuscript is to provide guidance on how to set-up a new KRTR in countries or regions still lacking one. Advice is provided on the sequence of steps to setup a KRTR, personnel requirements, dataset content and minimum quality indicators required.

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