International Dementia Policies and Legacies of the Coronavirus Disease 2019 Pandemic

Dawson, Walter D.; Comas-Herrera, Adelina

doi:10.1093/ppar/prac008

Cited by 3 publications

(1 citation statement)

References 28 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Investigating and comparing the impact of COVID-19 on these two groups is necessary to better understand their respective needs during emergency public health responses to infectious disease outbreaks. Although policy attention has traditionally focused on supporting formal paid care-givers or health-care workers rather than supporting family care-givers, researchers have recommended that policy makers prioritise better responses to support family care-givers (Lorenz-Dant and Comas-Herrera, 2021;Dawson and Comas-Herrera, 2022). The impact of COVID-19 lockdowns on family care-givers of people with cognitive impairment living in residential care facilities continues to be a significant gap in current literature.…”

Section: Research Limitations and Recommendations For Future Studies ...mentioning

confidence: 99%

The impacts of COVID-19 restrictions on care-givers of people with cognitive impairment and their support needs: a mixed-methods systematic review

Baldassar,

Nguyen,

Jones

et al. 2023

Ageing and Society

View full text Add to dashboard Cite

The COVID-19 pandemic and ensuing restrictions/lockdowns have caused significant physical and psychological consequences for people with cognitive impairment who are heavily dependent on their care-givers. However, little is known about the impact on care-givers, the factors that exacerbate their situation and what supports they need. The aims of this paper are threefold: (a) to examine the impact of COVID-19 physical restrictions on both formal and informal care-givers of people with cognitive impairment; (b) to identify attributing factors influencing this impact; and (c) to recognise their support needs. Further, this paper informs future research, policy and practice. Guided by the Joanna Briggs Institute framework, a systematic review was conducted using a mixed-methods convergent integrated approach. Eight databases were searched using keywords related to COVID-19 restriction, dementia care-givers, impacts and care settings, followed by a manual search. The study was limited to primary research published in English between January 2020 and December 2021. Of the 840 records identified, 30 met the inclusion criteria. Service withdrawal and social distancing has effectively led to the reprivatisation of care to the family, particularly women. Care-givers experienced negative impacts including reduced psychological wellbeing and physical health, increased care burden and financial difficulties. A number of clinical attributes and socio-demographic factors influenced the COVID-19 impact on care-givers. Consequently, counselling services, assistance with care and financial support were identified as support needs. Implementation of new support and the strengthening of existing services are recommended to enhance resilience, build capacity to support care-givers in any given situation and mitigate the effects of future outbreaks.

show abstract

Section: Research Limitations and Recommendations For Future Studies ...mentioning

confidence: 99%

The impacts of COVID-19 restrictions on care-givers of people with cognitive impairment and their support needs: a mixed-methods systematic review

Baldassar,

Nguyen,

Jones

et al. 2023

Ageing and Society

View full text Add to dashboard Cite

show abstract

A World Without Alzheimer’s Disease?

Kaskie,

Splaine

2022

Public Policy &Amp; Aging Report

View full text Add to dashboard Cite

Priorities to Support Care Partners of People Living With Dementia: Results of a Modified Delphi Process

Gelmon,

Reed,

Dawson

2024

J Appl Gerontol

View full text Add to dashboard Cite

Objective: To determine priorities for services and policies that better support care partners of people living with dementia. Methods: A modified Delphi process engaged participants from organizations serving people living with dementia and care partners, focusing on historically and currently underserved communities. Eight thematic areas were identified. Participants ( N = 40) responded to three surveys, generating ideas, rating each, and ranking priorities. Results: Each survey received 13–17 responses. Top ranked ideas were arrayed across six thematic areas: care partner supports; programs; funding; information; care coordination; and workforce development. Discussion: The Delphi process empowered participants to share knowledge, and respected their opinions. Anonymity removed power imbalances. The survey iterations blended qualitative and quantitative approaches, and built consensus. The Delphi invited the voices of diverse participants; all voices were weighed equally. This process could be extended to efforts to further engage dementia care partners, helping to value their voices in decision-making for services and policies.

show abstract

International Dementia Policies and Legacies of the Coronavirus Disease 2019 Pandemic

Cited by 3 publications

References 28 publications

The impacts of COVID-19 restrictions on care-givers of people with cognitive impairment and their support needs: a mixed-methods systematic review

The impacts of COVID-19 restrictions on care-givers of people with cognitive impairment and their support needs: a mixed-methods systematic review

A World Without Alzheimer’s Disease?

Priorities to Support Care Partners of People Living With Dementia: Results of a Modified Delphi Process

Contact Info

Product

Resources

About