International spinal cord injury bowel function basic data set (Version 2.0)

Abstract

The International SCI Bowel Function Basic Data Set (Version 2.0) has been developed.

Alarming blood pressure changes during routine bladder emptying in a woman with cervical spinal cord injury

“…Inclusion of this domain by categorizing severity of AD using discrete categories based on BP have been suggested by clinicians to improve the ISAFSCI for version 3 [9]. While assessing autonomic functions, clinicians and scientists also must consider existing international SCI datasets for assessment of autonomic dysfunction following SCI, including datasets for cardiovascular function [10], skin/thermoregulation [11], pulmonary function [12], lower urinary tract [13], and bowel function [14].…”

Electronic medical record: data collection and reporting for spinal cord injury

“…The International SCI Core Data Set (version 2.0) [25] and 13 International SCI Basic Data Sets (Table 1) [10,11,[14][15][16][17][18][19][20][21][22][23]26] are nearly completely implemented in the Danish version of Epic as SmartForms. Experts in the SCI field continue to work with Epic to bring these data sets to the broader Epic community.…”

The International Spinal Cord Injury Pediatric Activity and Participation Basic Data Set

“…Variables/responses that may be relevant to school-aged children and adolescent ages may have less relevance or not be relevant at all to preschool children. As an example, in the International SCI Basic Bowel Data Set Version 2.0 [8], the variable "awareness of need to defecate" is not appropriate for children who are not at the age at which continence is usually achieved (3-4 years old). On the other hand, some variables/responses may be relevant to each age across the pediatric ages, such as those in the spinal column and musculoskeletal basic data sets [9,10].…”