International spinal cord injury male sexual function and female sexual and reproductive function basic data sets—version 2.0

Abstract

published research, suggestions from concerned individuals and on line work group consensus. The revised data sets were then posted on the International Spinal Cord Society (ISCoS) and American Spinal Injury Association (ASIA) websites for 2 months for review. Subsequently, the data sets were approved by the ISCoS Scientific and Executive Committees and ASIA board of directors. RESULTS: The data sets were modified to a self-report format. They were reviewed for appropriateness for the pediatric age group and adapted to include a new variable to address the issue of sexual orientation. A clarification of the difference between the data sets and the autonomic standards was also developed. CONCLUSION: Sexuality is a continuously evolving topic. Modifications were needed to address this topic in a comprehensive fashion. It is recommended that Version 2.0 of these data sets are used for ongoing documentation of sexual status in the medical record and for documentation of sexual concerns during on-going research.Spinal Cord Series and Cases (2017) 3, 17050; doi:10.1038/scsandc.2017.50; published online 10 August 2017 INTRODUCTIONSexuality is an important issue for persons with spinal cord injuries (SCIs) and non-traumatic spinal cord dysfunction (SCD). 1 However, persons with SCI or SCD are often dissatisfied about the education and the treatment they receive regarding sexual concerns, 2 and this lack of care may lead to a decrease in patient's participation in sexual activity and sexual satisfaction. Thus, it is important for clinicians to take sexual concerns into account and address them as they work to engage in patientcentered care.The International SCI Basic Data Sets for Male Sexual Function and Female Sexual and Reproductive Function were developed in 2011 3,4 as part of the overall International Data Sets project. Their purpose was to help provide a standardized platform that clinicians could use in the medical record to follow patient's sexual concerns. They included separate documentation of the concepts of psychogenic and reflex sexual arousal in both males and females along with the need for separate documentation of the retention of orgasmic capacity in both sexes and of ejaculation in males. Another purpose of the data sets was so researchers could use a basic data set to describe sexual concerns, thus promoting comparison of study results.Based upon recent analyses and data set updates 5,6 it was determined that updates to the International SCI Basic Data Sets for Male Sexual Function and Female Sexual and Reproductive Function are necessary. Subsequent to the development of Version 1.0, a validation study was performed that identified the need for a self-report format. 5 In addition, the need to acknowledge sexual orientation and the issues of children were raised. In light of these concerns, it was determined that a revision of the basic data sets was necessary. The purpose of this article is to describe the developments of the International SCI Male Sexual Function Basic Data Set Version 2.0 and the...

Prediction of sexual function following spinal cord injury: a case series

“…Then, if there is a difference, the clinician would realize the need to search for and remediate other potential sources of sexual dysfunction unrelated to the SCI (i.e., medications or perimenopausal changes) as well as other organic problems. These dynamic changes are most appropriately addressed in the Basic Male and Female Sexual Function Data Sets [26] which are designed for active recording of changes in patients ongoing clinical status.…”

Sexual Matters of Couples with Spinal Cord Injury Attending a Sexual Health Clinic in Tehran, Iran

“…The correlation between sexuality and body wellness is documented worldwide. SCI has a significant impact on individuals' sexuality due to the personal feeling of his/her own sexual capability (1,3,24), as well as the social labeling of individuals with any form of disability, which may be considered to be synonymous with asexuality (3)(4)(5)25). People with SCI have problems with their marital longevity and each partner has his/her own concern with threatened intimate relationship (4,5).…”

“…Sexuality is important to people with spinal cord injury (SCI), regardless of their disabilities (1). Studies point out that couples with SCI are often sexually overlooked in rehabilitation centers (2)(3)(4)(5).…”

Electrical epidural stimulation of the cervical spinal cord: implications for spinal respiratory neuroplasticity after spinal cord injury

“…Individuals with cSCI commonly experience severe loss of sensory and motor function caudal to the injury due to the death of spinal neurons interrupting the transmission of afferent and efferent information. In addition to the loss of sensation and motor control, deficits include loss of bladder, bowel, and sexual functions, which significantly impact health and quality of life (45,46). Moreover, up to 80% of people with SCI develop neuropathic pain, which in some individuals is considered the greatest contributor to functional disability compared with other symptoms of sensorimotor dysfunction (47,48).…”