Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Systematic Review and Meta-Analysis

Leng, Minmin; Zhao, Yajie; Xiao, Hong‐Mei; Li, Ce; Wang, Zhiwen

doi:10.2196/19468

Cited by 110 publications

(93 citation statements)

References 51 publications

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“…The main benefits regard emotional well-being (depression, anxiety, stress, and burden), learned skills (decision making, knowledge, self-efficacy, and strategies), and social aspects (perceived support and positive aspects related to caregiving, such as bonding with your relative; (McKechnie et al, 2014 ; Dam et al, 2016 ; Egan et al, 2018 ; Ruggiano et al, 2018 ). Moreover, despite the few quantitative analyses and the limits concerning the adopted methodologies, results highlighted the benefits online interventions have for what concerns caregivers' quality of life (Boots et al, 2014 ; Waller et al, 2017 ; Leng et al, 2020 ).…”

Section: Resultsmentioning

confidence: 99%

Assistive Technologies in Dementia Care: An Updated Analysis of the Literature

et al. 2021

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Objectives: Technology can assist and support both people with dementia (PWD) and caregivers. Recently, technology has begun to embed remote components. Timely with respect to the pandemic, the present work reviews the most recent literature on technology in dementia contexts together with the newest studies about technological support published until October 2020. The final aim is to provide a synthesis of the timeliest evidence upon which clinical and non-clinical decision-makers can rely to make choices about technology in the case of further pandemic waves.Methods: A review of reviews was performed alongside a review of the studies run during the first pandemic wave. PsycInfo, CINAHL, and PubMed-online were the databases inspected for relevant papers published from January 2010.Results: The search identified 420 articles, 30 of which were reviews and nine of which were new studies meeting the inclusion criteria. Studies were first sorted according to the target population, then summarized thematically in a narrative synthesis. The studies targeting technologies for PWD were categorized as follows: monitoring and security purposes, sustaining daily life, and therapeutic interventions. Each category showed potential benefits. Differently, the interventions for caregivers were classified as informative, psycho-education programs, psychosocial-supportive, therapeutic, and cognitive/physical training. Benefits to mental health, skills learning, and social aspects emerged.Conclusions: The evidence shows that technology is well-accepted and can support PWD and caregivers to bypass physical and environmental problems both during regular times and during future pandemic waves. Nevertheless, the lack of a common methodological background is revealed by this analysis. Further and more standardized research is necessary to improve the implementation of technologies in everyday life while respecting the necessary personalization.

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Section: Resultsmentioning

confidence: 99%

Assistive Technologies in Dementia Care: An Updated Analysis of the Literature

et al. 2021

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“…A recent systematic review found that internet-based supportive interventions are effective in improving self-efficacy, depressive symptoms, and stress, but the effects on burden, caregiver reaction to behavioural symptoms, and coping competence were not significant. ( 4 )…”

Section: Discussionmentioning

confidence: 99%

“…( 2 ) Recent systematic reviews and meta-analyses have found some evidence of positive effects of online interventions for caregivers of PwD, particularly for outcomes of caregiver stress, ( 4 ) self-efficacy, ( 4 ) burden, ( 5 – 9 ) and depression/anxiety. ( 4 – 7 , 9 , 10 ) Multi-component interventions show the strongest effects. ( 6 , 8 – 10 )…”

Section: Introductionmentioning

confidence: 99%

Online Educational Tools for Caregivers of People with Dementia: A Scoping Literature Review

et al. 2021

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Background Informal caregivers of people with dementia provide the majority of health-based care to people with dementia. Providing this care requires knowledge and access to resources, which caregivers often do not receive. We set out to evaluate the effect of online educational tools on informal caregiver self-efficacy, quality of life, burden/stress, depression, and anxiety, and to identify effective processes for online educational tool development. Methods We conducted a scoping review of articles on online educational interventions for informal caregivers of people with dementia searching CINAHL, MEDLINE, EMBASE, and PubMed from 1990 to March 2018, with an updated search conducted in 2020. The identified articles were screened and the data were charted. Results 33 articles that reported on 24 interventions were included. There is some evidence that online interventions improve caregiver-related outcomes such as self-efficacy, depression, dementia knowledge, and quality of life; and decrease caregiver burden. Common findings across the studies included the need for tailored, stage-specific information applicable to the caregiver’s situation and the use of psychosocial techniques to develop the knowledge components of the interventions. Conclusion We demonstrate the importance of having caregivers and health-care professionals involved at all stages of tool conceptualization and development. Online tools should be evaluated with robust trials that focus on how increased knowledge and development approaches affect caregiver-related outcomes.

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“…This care model has successfully operated for nearly a decade in an Indianapolis health care system 490 . Other efforts have attempted to broaden the reach and accessibility of interventions for dementia caregivers through the use of technologies (for instance, video‐phone delivery and online training), 491–497 while others have integrated evidence‐based dementia care interventions into community‐based programs 489 …”

Section: Caregivingmentioning

confidence: 99%

2021 Alzheimer's disease facts and figures

2021

Alzheimer's & Dementia

1,865

849

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This article describes the public health impact of Alzheimer's disease (AD), including incidence and prevalence, mortality and morbidity, use and costs of care, and the overall impact on caregivers and society. The Special Report discusses the challenges of providing equitable health care for people with dementia in the United States. An estimated 6.2 million Americans age 65 and older are living with Alzheimer's dementia today. This number could grow to 13.8 million by 2060 barring the development of medical breakthroughs to prevent, slow or cure AD. Official death certificates recorded 121,499 deaths from AD in 2019, the latest year for which data are available, making Alzheimer's the sixth‐leading cause of death in the United States and the fifth‐leading cause of death among Americans age 65 and older. Between 2000 and 2019, deaths from stroke, heart disease and HIV decreased, whereas reported deaths from AD increased more than 145%. This trajectory of deaths from AD was likely exacerbated in 2020 by the COVID‐19 pandemic. More than 11 million family members and other unpaid caregivers provided an estimated 15.3 billion hours of care to people with Alzheimer's or other dementias in 2020. These figures reflect a decline in the number of caregivers compared with a decade earlier, as well as an increase in the amount of care provided by each remaining caregiver. Unpaid dementia caregiving was valued at $256.7 billion in 2020. Its costs, however, extend to family caregivers’ increased risk for emotional distress and negative mental and physical health outcomes — costs that have been aggravated by COVID‐19. Average per‐person Medicare payments for services to beneficiaries age 65 and older with AD or other dementias are more than three times as great as payments for beneficiaries without these conditions, and Medicaid payments are more than 23 times as great. Total payments in 2021 for health care, long‐term care and hospice services for people age 65 and older with dementia are estimated to be $355 billion. Despite years of efforts to make health care more equitable in the United States, racial and ethnic disparities remain — both in terms of health disparities, which involve differences in the burden of illness, and health care disparities, which involve differences in the ability to use health care services. Blacks, Hispanics, Asian Americans and Native Americans continue to have a higher burden of illness and lower access to health care compared with Whites. Such disparities, which have become more apparent during COVID‐19, extend to dementia care. Surveys commissioned by the Alzheimer's Association recently shed new light on the role of discrimination in dementia care, the varying levels of trust between racial and ethnic groups in medical research, and the differences between groups in their levels of concern about and awareness of Alzheimer's disease. These findings emphasize the need to increase racial and ethnic diversity in both the dementia care workforce and in Alzheimer's clinical trials.

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Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Systematic Review and Meta-Analysis

Cited by 110 publications

References 51 publications

Assistive Technologies in Dementia Care: An Updated Analysis of the Literature

Assistive Technologies in Dementia Care: An Updated Analysis of the Literature

Online Educational Tools for Caregivers of People with Dementia: A Scoping Literature Review

2021 Alzheimer's disease facts and figures

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