Interrelationship of self‐management and transitional care needs of adolescents with arthritis: Comment on the article by Stinson et al

McDonagh, Janet E.; Hackett, Janine

doi:10.1002/art.23921

Cited by 9 publications

(10 citation statements)

References 9 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

Section: Improving Health For the Long‐term Survivormentioning

confidence: 99%

“…Self‐management skills are integral to the achievement of independence necessary for successful healthcare transitions . Researchers and clinicians agree that adolescents and young adults should not transfer from pediatric to adult health services unless they have the skills necessary for functioning effectively in the adult healthcare system, including adhering to medication regimens . The Pediatric Committee of the American Society of Transplantation has recommended that prior to transferring to adult‐centered care, the pediatric transplant recipient should demonstrate the ability to independently manage their health .…”

Section: Improving Health For the Long‐term Survivormentioning

confidence: 99%

See 1 more Smart Citation

The SPLIT Research Agenda 2013

Alonso

Anand

et al. 2013

Pediatric Transplantation

View full text Add to dashboard Cite

This review focuses on active clinical research in pediatric liver transplantation with special emphasis on areas that could benefit from studies utilizing the SPLIT infrastructure and data repository. Ideas were solicited by members of the SPLIT Research Committee and sections were drafted by members of the committee with expertise in those given areas. This review is intended to highlight priorities for clinical research that could successfully be conducted through the SPLIT collaborative and would have significant impact in pediatric liver transplantation.

show abstract

Section: Improving Health For the Long‐term Survivormentioning

confidence: 99%

Section: Improving Health For the Long‐term Survivormentioning

confidence: 99%

The SPLIT Research Agenda 2013

Alonso

Anand

et al. 2013

Pediatric Transplantation

View full text Add to dashboard Cite

show abstract

“…Key elements of self-management include the promotion of health education, communication skills, decision-making and problem-solving skills, and self-care in the context of meaningful social support [Sawyer and Aroni, 2005]. Self-management skills are integral to both optimal medication adherence and the achievement of independence necessary for a successful health care transition [McDonagh and Hackett, 2008;Watson, 2005]. Tools are available to assess readiness and guide progression [Baker and Denyes, 2008].…”

Section: Lung Transplantation Processmentioning

confidence: 99%

Transplanting the adolescent cystic fibrosis patient: can we do it?

Oshrine

McGrath

Goldfarb

2012

Ther Adv Respir Dis

View full text Add to dashboard Cite

Bilateral lung transplantation remains a treatment for end-stage cystic fibrosis (CF) lung disease when there is no further medical or surgical treatment available. The aim of lung transplantation is to improve patient life expectancy. The consensus view that lung transplantation extends life in children has been challenged. However, challengers have faced alternative explanations of their finding and it is largely accepted that lung transplantation in the adolescent patient population is an important treatment modality. The goal of this article is to address these concerns and assist with developing creative approaches to this known challenging subset of patients. The main focus of this article will be to discuss the looming question: what existing evidence or best practice insights could improve bilateral lung transplantation outcomes for adolescent patients with end-stage CF?

show abstract

“…Confidence to see health professionals without parents is an important skill for successful transition and supports the development of autonomy (Robertson et al 2006, McDonagh and Hackett 2008, Wells et al 2012. Adolescents who visit the doctor without their parents tend to participate more actively in the consultations (McDonagh and Kelly 2003).…”

Section: Write For Usmentioning

confidence: 99%

“…A transition plan is also recommended by NICE (2016) (Singh et al 2016). Many studies support the transition process starting early, ideally at the beginning of adolescence (11-12 years) and at the latest by the age of 14 (White 2002, McDonagh 2008, Hilderson et al 2013, Nagra et al 2015, Foster et al 2017.…”

Section: Write For Usmentioning

confidence: 99%

Development of a clinical transition pathway for adolescents in the Netherlands

Walter

Hazes

Dolhain

et al. 2017

Nursing Children and Young People

View full text Add to dashboard Cite

Aims To explore how young people with juvenile-onset rheumatic and musculoskeletal diseases (jRMDs) and their parent(s) experience care during preparation for the upcoming transfer to adult services, and to develop a clinical transition pathway.Method A survey was conducted with 32 young people aged between 14 and 20 years with jRMDs, and their parents (n=33), treated at the department of paediatric rheumatology in a tertiary care children's hospital in the Netherlands.Results More than 30% of young people would have liked to discuss topics such as educational and vocational choices in a clinic, but did not get the opportunity. Preparation for transition was poor as was training in self-management skills. One third of parents had feelings of anxiety about the upcoming transfer. Results from the survey and evidence-based principles of transitional care were used to develop the clinical transition pathway. The pathway focuses on starting transition early, developing self-management skills, joint consultations and supporting parents in giving young people control of their clinical care.Conclusion Care does not currently meet the needs of young people in the process of transition to adult rheumatology services. The clinical transition pathway developed as a result of the study is a tool that may improve this process.

show abstract

Interrelationship of self‐management and transitional care needs of adolescents with arthritis: Comment on the article by Stinson et al

Cited by 9 publications

References 9 publications

The SPLIT Research Agenda 2013

The SPLIT Research Agenda 2013

Transplanting the adolescent cystic fibrosis patient: can we do it?

Development of a clinical transition pathway for adolescents in the Netherlands

Contact Info

Product

Resources

About