“…home health agency nurses[37]; all others investigated informal carers. Of the 35 that included informal carers, 15 included parents among other carers[18, 28–30, 39, 41, 42, 44, 52, 53, 55, 61, 62, 67, 68] and 18 studied only parents[38, 40, 43, 45–47, 49, 50, 54, 56–60, 63–66]. Moreover, the parent samples were mostly mothers, for example with over 90% mothers in 7 studies[28, 29, 53, 57, 61, 64, 65] and 78.3% in another[67].…”