Investigating child self-report capacity: a systematic review and utility analysis

Bevans, Katherine B.; Ahuvia, Isaac; Hallock, Taye M.; Mendonca, Rochelle; Roth, Stéphanie; Forrest, Christopher B.; Blackwell, Courtney K.; Kramer, Jessica; Wakschlag, Lauren S.

doi:10.1007/s11136-019-02387-3

Cited by 18 publications

(7 citation statements)

References 32 publications

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“…Reliance on the parent or child report leaves open possibilities of bias or distortion in reporting of an experiential variable such as bully victimization. Indeed, a recent review calls into some to question children’s capacity for self-reporting, with those with neurodevelopmental disorders, including ADHD and learning disorders demonstrating lower validity of self-report [ 72 ]. Further, parent–child agreement in reporting bully victimization is low, and lower still in the context of hyperactive/impulsive symptoms [ 73 ], further supporting the need for additional sources of information regarding a child’s bully status.…”

Section: Discussionmentioning

confidence: 99%

Risk Factors for Bullying Victimization in Children with Neurofibromatosis Type 1 (NF1)

et al. 2021

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Neurofibromatosis type 1 (NF1) is an autosomal disorder associated with numerous physical stigmata. Children with NF1 are at known risk for attention-deficit/hyperactivity disorder (ADHD), academic struggles, and significant social difficulties and adverse social outcomes, including bullying victimization. The primary aim of this study was to identify risk factors associated with bullying victimization in children with NF1 to better inform clinicians regarding targets for prevention and clinical intervention. Children and a parent completed questionnaires assessing the bully victim status, and parents completed a measure of ADHD symptoms. Analyses were completed separately for parent-reported victimization of the child and the child’s self-report of victimization. According to the parent report, results suggest ADHD symptoms are a significant risk factor for these children being a target of bullying. Findings for academic disability were not conclusive, nor were findings related to having a parent with NF1. Findings indicate the need for further research into possible risk factors for social victimization in children with NF1. Results provide preliminary evidence that may guide clinicians working with children with NF1 and their parents in identifying higher-risk profiles that may warrant earlier and more intensive intervention to mitigate later risk for bullying victimization.

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Section: Discussionmentioning

confidence: 99%

Risk Factors for Bullying Victimization in Children with Neurofibromatosis Type 1 (NF1)

et al. 2021

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“…The importance of physical, sensory, and cognitive accessibility of PROMs has been well described (Kramer & Schwartz, 2017; Velozo et al, 2012), yet many PROMs remain inaccessible. For instance, a systematic review on paediatric PROMs indicated that high cognitive demands and lack of accessible features lead practitioners to question whether clients can accurately use these assessments (Bevans et al, 2020). Thus, inaccessibility may result in limited PROM use for youth with IDD, especially for those with significant cognitive impairments.…”

Section: Discussionmentioning

confidence: 99%

Adoption of patient‐reported outcome measures with youth with intellectual/developmental disabilities: Contextual influences and practice patterns

Greenberg

Schwartz

Kramer

2021

Child

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Background The purpose of this study was to identify potential barriers to patient reported outcome measure (PROM) adoption with youth and young adults with intellectual and/or developmental disabilities (IDD) and to understand current PROM adoption patterns of paediatric practitioners working with this population. Methods We used a web‐based survey to collect data from paediatric practitioners who work with youth with IDD about factors influencing the adoption of PROMs and the frequency of PROM use across age groups (elementary, middle school and high school/transition age) and practice settings (school and rehabilitation). Results A total of 113 paediatric practitioners (occupational therapist = 48, physical therapist = 32, physician = 16, other = 17) responded to the survey with an average of 15 years of experience working with youth ages 8–21 with IDD. Accessibility and appropriateness, psychometric evidence, and time were most frequently ranked among the top three factors that influence practitioners' adoption of PROMs. Practitioners reported ‘never or rarely’ using PROMs 39%–65% of the time across age groups. Conclusions Our results suggest that paediatric practitioners may be infrequently using PROMs with youth with IDD because of perceived inaccessibility and time requirements of PROMs and practice‐environment barriers, including access to evidence and caseload demands. Because PROMs can facilitate client‐centred care, addressing these potential barriers to adoption may improve paediatric rehabilitation.

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“…PROM developers should also consider having different versions for different age groups or developmental ability to account for this. Future research could also take further steps to appraise the reliability of CYP self-report by using multi-indicator approaches, such as lack of response variability, excessive response variation and extreme, inconsistent or improbable response patterns, to assess invalid responses at the individual level [105].…”

Section: Strengths and Limitationsmentioning

confidence: 99%

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality

et al. 2021

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Introduction Self-report is the gold standard for measuring children’s health-related outcomes. Design of such measures is complex and challenging. This review aims to systematically appraise the evidence on recall period, response scale format, mode of administration and approaches needed to enable children and young people < 19 years to participate in valid and reliable self-reporting of their health outcomes. Method PsycInfo, Medline, CINAHL and Embase were searched from 1 January 1990 to 15 March 2020, and citation searching undertaken in Scopus. Articles were included if they were primary research or case reports of ≥ 3 participants reporting the following: recall period, response scale selection, administration modality. Quality was assessed using QualSyst, and results synthesised narratively. This review was conducted and reported according to PRISMA guidelines. Results 81 of 13,215 retrieved articles met the inclusion criteria. Children < 5 years old cannot validly and reliably self-report health outcomes. Face scales demonstrate better psychometric properties than visual analogue or Likert scales. Computerised and paper scales generally show equivalent construct validity. Children prefer computerised measures. Children ≤ 7 years old think dichotomously so need two response options. Those > 8 years old can reliably use a 3-point scale. Conclusion The results of this review have both clinical and research implications. They can be used to inform appropriate choice of PROM for use with CYP in the clinical setting. We also give eight recommendations for future development of self-reported outcome measures for children and young people.

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Investigating child self-report capacity: a systematic review and utility analysis

Cited by 18 publications

References 32 publications

Risk Factors for Bullying Victimization in Children with Neurofibromatosis Type 1 (NF1)

Risk Factors for Bullying Victimization in Children with Neurofibromatosis Type 1 (NF1)

Adoption of patient‐reported outcome measures with youth with intellectual/developmental disabilities: Contextual influences and practice patterns

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality

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