Investigating the healthcare utilisation and other support needs of people with young-onset dementia

Tan, Beng Jit; Fox, Siobhán; Kruger, Claire; Lynch, Marie; Shanagher, Deirdre; Timmons, Suzanne

doi:10.1016/j.maturitas.2019.01.003

Cited by 15 publications

(5 citation statements)

References 21 publications

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“…Ashworth (2017) calls for a review of policies which encourage future planning and exploration of ways to support people to plan, whilst at the same time, focus upon daily life. The findings in this study concur with Ashworth (2017) and Tan et al (2019) in that trying to implement advanced planning may have a negative effect on coping mechanisms used by people with FTD in their day to day lives, and strengthens the evidence calling for further research.…”

Section: Discussionsupporting

confidence: 83%

Living with a diagnosis of frontotemporal dementia: An interpretative phenomenological analysis

2023

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Frontotemporal dementia describes a spectrum of disorders which include behavioural changes, changes to affect, speech difficulties and physical issues. Although literature exists which identifies the need for the voices of people with dementia to be heard, there is a paucity of research which includes hearing the experiences of people diagnosed with FTD. The purpose of this research was to explore the lived experience of frontotemporal dementia from the persons’ perspective using interpretative phenomenological analysis. The themes that emerged in the analysis were: the rocky road through assessment; the changing self; in touch with reality; and keeping going. Two overarching themes emerged which were: the need to hear the voice of people with frontotemporal dementia; and for people with frontotemporal dementia to exercise some control over the decision making process throughout their journey. Recommendations are presented for future practice and research.

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Section: Discussionsupporting

confidence: 83%

Living with a diagnosis of frontotemporal dementia: An interpretative phenomenological analysis

2023

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“…In a retrospective cohort study, the authors reported that the most common surgical reason for admission among EOD patients was fracture secondary to a fall (33% of surgical admissions), whereas they did not compare individuals with EOD to cognitively healthy people. 15 In another cohort study, a univariate analysis showed that patients with EOD were less likely to get fractured compared with patients with late‐onset dementia patients, whereas not significant in a multivariate analysis. 16 To the best of our knowledge, this is the first study to demonstrate that EOD is a risk factor for fractures compared with cognitively healthy people.…”

Section: Discussionmentioning

confidence: 97%

“…We identified only two studies which referred to fall or fracture in patients with EOD. In a retrospective cohort study, the authors reported that the most common surgical reason for admission among EOD patients was fracture secondary to a fall (33% of surgical admissions), whereas they did not compare individuals with EOD to cognitively healthy people 15 . In another cohort study, a univariate analysis showed that patients with EOD were less likely to get fractured compared with patients with late‐onset dementia patients, whereas not significant in a multivariate analysis 16 .…”

Section: Discussionmentioning

confidence: 99%

Early‐onset dementia and risk of hip fracture and major osteoporotic fractures

Matsumoto,

Hosoi,

Yakabe

et al. 2024

Alzheimer's & Dementia

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INTRODUCTIONThere is limited knowledge about early‐onset dementia (EOD) on fracture risk.METHODSIndividuals ages 50 to 64 were identified from the National Database of Health Insurance Claims and Specific Health Checkups of Japan (2012 to 2019). The association between EOD and fractures and the association between cholinesterase inhibitors for EOD and fractures were evaluated using logistic regression analyses.RESULTSWe identified 13,614 EOD patients and 9,144,560 cognitively healthy individuals. The analysis revealed that EOD was associated with an increased risk of hip fractures (adjusted odds ratio, 95% confidence interval: 8.79, 7.37–10.48), vertebral fractures (1.73, 1.48–2.01), and major osteoporotic fractures (2.05, 1.83–2.30) over 3 years. The use of cholinesterase inhibitors was significantly associated with a reduction in hip fractures among EOD patients (0.28, 0.11–0.69).DISCUSSIONEOD patients have a higher risk of osteoporotic fractures than cognitively healthy individuals. The use of cholinesterase inhibitors may reduce the risk of hip fracture among EOD patients.Highlights It is unknown whether early‐onset dementia (EOD) increases the risk of fractures. We identified 13,614 individuals with EOD using a nationwide administrative database. Patients with EOD have a higher risk of hip, vertebral, and major osteoporotic fractures. The use of cholinesterase inhibitors may reduce hip fracture among patients with EOD.

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“…52 Accessing services for YOD may be especially important for YOD patients, as this population has a high mortality from complications due to dementia. 53…”

Section: Caregiver Distress and Burdenmentioning

confidence: 99%

Characteristics of Young-Onset and Late-Onset Dementia Patients at a Remote Memory Clinic

Wong

Kirk

Perlett

et al. 2020

Can. J. Neurol. Sci.

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ABSTRACT:Background:Young-onset dementia (YOD) is defined as the onset of dementia symptoms before the age of 65 years and accounts for 2–8% of dementia. YOD patients and their caregivers face unique challenges in diagnosis and management. We aimed to compare the characteristics of rural YOD and late-onset dementia (LOD) patients at a rural and remote memory clinic in Western Canada.Methods:A total of 333 consecutive patients (YOD = 61, LOD = 272) at a rural and remote memory clinic between March 2004 and July 2016 were included in this study. Each patient had neuropsychological assessment. Health, mood, function, behaviour and social factors were also measured. Both groups were compared using χ2 tests and independent sample tests.Results:YOD patients were more likely to be married, employed, current smokers and highly educated. They reported fewer cognitive symptoms, but had more depressive symptoms. YOD patients were less likely to live alone and use homecare services. YOD caregivers were also more likely to be a spouse and had higher levels of distress than LOD caregivers. Both YOD and LOD patient groups were equally likely to have a driver’s licence.Conclusions:Our findings indicate YOD and LOD patients have distinct characteristics and services must be modified to better meet YOD patient needs. In particular, the use of homecare services and caregiver support may alleviate the higher levels of distress found in YOD patients and their caregivers. Additional research should be directed to addressing YOD patient depression, caregiver distress and barriers to services.

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Investigating the healthcare utilisation and other support needs of people with young-onset dementia

Cited by 15 publications

References 21 publications

Living with a diagnosis of frontotemporal dementia: An interpretative phenomenological analysis

Living with a diagnosis of frontotemporal dementia: An interpretative phenomenological analysis

Early‐onset dementia and risk of hip fracture and major osteoporotic fractures

Characteristics of Young-Onset and Late-Onset Dementia Patients at a Remote Memory Clinic

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