Invited Paper B The ten Ds of health outcomes measurement for the twenty-first century

McHorney, Colleen A.; Cook, Karon F.

doi:10.1017/cbo9780511545856.030

Cited by 2 publications

(3 citation statements)

References 162 publications

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“…Considerable work still needs to be done before IRT can be used in HRQOL assessment. Some concrete issues, such as intellectual property confl icts, may arise with item banking ( 26 ) . In addition, the multidimensionality of HRQOL can pose challenges to IRT measurement models, which assume unidimensionality, in instances where a summary measure (single index) is needed.…”

Section: Ethodologic a Ccomplishments And P Romising D Irectionsmentioning

confidence: 99%

Reflections on Findings of the Cancer Outcomes Measurement Working Group: Moving to the Next Phase

Gotay

Lipscomb

Snyder

2005

JNCI: Journal of the National Cancer Institute

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The Cancer Outcomes Measurement Working Group (COMWG) was a National Cancer Institute working group of 35 experts convened to examine the state of the science and identify future research priorities for outcomes assessment in cancer. The COMWG focused on three outcomes (health-related quality of life [HRQOL]), patient needs and satisfaction, and economic burden) in four cancers (breast, colorectal, lung, and prostate) across the continuum of care (prevention and screening, treatment, survivorship, and end of life). The majority of the research to date has focused on HRQOL assessment, which has been shown to be feasible in a research context, using questionnaires that meet established criteria for reliability and validity. The quality and quantity of HRQOL research has increased markedly in recent years, and additional methodological developments--particularly the application of item response theory to improve precision, efficiency, and comparability in measurement--hold considerable promise. Research is needed to develop and test predictive models of HRQOL and to establish the added value of including HRQOL assessment in clinical trials.

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Section: Ethodologic a Ccomplishments And P Romising D Irectionsmentioning

confidence: 99%

Reflections on Findings of the Cancer Outcomes Measurement Working Group: Moving to the Next Phase

Gotay

Lipscomb

Snyder

2005

JNCI: Journal of the National Cancer Institute

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“…Very likely there are significant economies-of-scale in the development, ongoing maintenance, and periodic updating of item banks. Yet, difficult issues may arise regarding ownership and intellectual property rights [35]. Moreover, it is important to foster an intellectually open, vibrant research environment that encourages work on new survey items, analytical approaches, and strategies to improve item banking over time [4].…”

Section: Burden and Alternative Modes Of Administrationmentioning

confidence: 99%

“…A potentially salient threat to validity in this context is differential item functioning (DIF), wherein the psychometric performance of a given survey item differs systematically across cultural or geographic settings [16,35]. In instances where DIF is detected (whether through CTT or IRT approaches), researchers can consider how to correct for possible racial/ethnic/cultural biases that can skew study findings.…”

Section: Cultural and Language Adaptationsmentioning

confidence: 99%

Cancer outcomes measurement

Lipscomb

Snyder²,

Gotay

2006

Qual Life Res

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Across a range of cancer research applications, especially clinical trials, a variety of generic, general cancer, and cancer site-specific measures of HRQOL have demonstrated adequate reliability, validity, responsiveness, feasibility, and cultural and language adaptation. Methodological challenges remain in the interpretability of HRQOL measures, though substantial progress has been made in defining a "minimum important difference" in scale scores. Much work remains in forging a stronger link between the conceptual model and measurement model in HRQOL instrumentation. Progress along all MOT attributes will likely accelerate with the growing application of modern psychometrics, particularly item response theory modeling, which provides the underpinnings for item banking and computer-adaptive assessment of HRQOL. Future research should emphasize prospectively designed studies to evaluate PRO measures within the MOT framework and in-depth investigations of the role of PRO measures in cancer decision making at all levels.

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Invited Paper B The ten Ds of health outcomes measurement for the twenty-first century

Cited by 2 publications

References 162 publications

Reflections on Findings of the Cancer Outcomes Measurement Working Group: Moving to the Next Phase

Reflections on Findings of the Cancer Outcomes Measurement Working Group: Moving to the Next Phase

Cancer outcomes measurement

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