Involving children in research, audit and service evaluation

Gilchrist, Fiona; Rodd, Helen; Deery, Chris; Marshman, Zoe

doi:10.1038/sj.bdj.2013.530

Cited by 17 publications

(16 citation statements)

References 37 publications

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“…For most children, it is difficult to recall what they experienced in the period prior to their doctor's appointment. A video diary may catch events and activities that may be missed otherwise (10,24,25).…”

Section: Visual Methodsmentioning

confidence: 99%

“…A general aim is to "bridge the gap between the world as it is lived and the world of scientific study and dispassionate explanation" (9,11). Other reported benefits are based on experiences of children and researchers: participatory research is a positive experience for both children and researchers (10). Benefits for the children are their increased empowerment (9), self-confidence, and self-esteem (6,10).…”

Section: Aims Benefits and Risks Of Participatory Researchmentioning

confidence: 99%

“…Other reported benefits are based on experiences of children and researchers: participatory research is a positive experience for both children and researchers (10). Benefits for the children are their increased empowerment (9), self-confidence, and self-esteem (6,10). Also knowing that their views and opinions are listened to and respected and that they can make a difference or help other children and in getting the opportunity to share frustrations and appreciations were reported as beneficial effects of participatory research (12).…”

Section: Aims Benefits and Risks Of Participatory Researchmentioning

confidence: 99%

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Participatory methods in pediatric participatory research: a systematic review

Haijes

Thiel

2015

Pediatr Res

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Meaningful child participation in medical research is seen as important. In order to facilitate further development of participatory research, we performed a systematic literature study to describe and assess the available knowledge on participatory methods in pediatric research. A search was executed in five databases: PubMed, CINAHL, PsycINFO, Scopus, and Cochrane. After careful screening of relevant papers, finally 24 documents were included in our analysis. Literature on participatory methods in pediatric research appears generally to be descriptive, whereby high-quality evidence is lacking. Overall, five groups of participatory methods for children could be distinguished: observational, verbal, written, visual, and active methods. The choice for one of these methods should be based on the child's age, on social and demographic characteristics, and on the research objectives. To date, these methods are still solely used for obtaining data, yet they are suitable for conducting meaningful participation. This may result in a successful partnership between children and researchers. Researchers conducting participatory research with children can use this systematic review in order to weigh the current knowledge about the participatory methods presented.

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Section: Visual Methodsmentioning

confidence: 99%

Section: Aims Benefits and Risks Of Participatory Researchmentioning

confidence: 99%

Section: Aims Benefits and Risks Of Participatory Researchmentioning

confidence: 99%

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Participatory methods in pediatric participatory research: a systematic review

Haijes

Thiel

2015

Pediatr Res

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“…These modifications aimed to make participation more straight-forward for practices and dental teams and pro-actively engage participating children in the research 24 . The introduction of FiCTION merchandise was well received by the children as a gesture of thanks for their efforts in the study (Figure 4).…”

Section: On the Basis Of This Feedback Changes Made To The Main Triamentioning

confidence: 99%

Investigating the Management of Carious Primary Teeth in General Dental Practice: An Overview of the Development and Conduct of the Fiction Trial

et al. 2015

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The management of carious primary teeth is a challenge for patients, parents and clinicians. Most evidence supporting different management strategies originates from a specialist setting and therefore its relevance to the primary care setting is questionable. The UK National Institute for Health Research (NIHR) Health Technology Assessment (HTA) has commissioned the FiCTION (Filling Children's Teeth: Indicated Or Not?) trial; a multi-centre primary dental care randomised controlled trial (RCT) to determine the most clinically and cost- effective approach to managing caries in the primary dentition in the UK. This large trial began in 2012, is due to be completed in late 2017 and involves 72 practices and 1,124 children initially aged three to seven years with dentine caries, following randomisation to one of three caries management strategies. Clinical, radiographic, quality of life, treatment acceptability and health economics data are collected during the three-year follow up period. This article provides an overview of the development and conduct of FiCTION and discusses some approaches adopted to manage challenges and achieve the patient recruitment target.

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“…Children can be involved at different stages in the research process, from proposing research priorities, shaping the design and development of the study, conducting the fieldwork, through to analysis and dissemination of the findings. A variety of child-centred quantitative and qualitative approaches have been described, each with its own strengths and limitations (5,6). The use of oral healthrelated quality of life (OHRQoL) questionnaires is a rapidly expanding field and a number of these measures have been developed specifically for children (7)(8)(9)(10).…”

Section: Introductionmentioning

confidence: 99%

Traumatic dental injury research: on children or with children?

Wallace

Rogers

Zaitoun

et al. 2016

Dental Traumatology

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Background and aim It is widely acknowledged that children should participate in healthcare decisions, service development and even setting research agendas. Dental traumatology is a major component of paediatric dentistry practice and research. However, little is known about young patients’ contribution to new knowledge in this field. The aim of the study was to establish the extent to which children are involved in contemporary dental trauma research and to evaluate the quality of the related literature. Material and methods A systematic review of the dental trauma literature was conducted from 2006 to 2014. The electronic databases, MEDLINE and Scopus, were used to identify relevant studies. The selected papers were independently examined by five calibrated reviewers. Studies were categorized by the degree of children's involvement and appraised using a validated quality assessment tool. Results The initial search yielded 4374 papers. After application of the inclusion and exclusion criteria, only 96 studies remained. Research on children accounted for 87.5% of papers, and a proxy was involved in 4.2%. Children were engaged to some degree in only 8.3% of studies, and there were no studies where children were active research participants. In the quality assessment exercise, papers scored, on average, 57% (range = 14–86%). Conclusion There is scope to encourage more active participation of children in dental trauma research in the future. Furthermore, there are some areas where the quality of research could be improved overall.

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Involving children in research, audit and service evaluation

Cited by 17 publications

References 37 publications

Participatory methods in pediatric participatory research: a systematic review

Participatory methods in pediatric participatory research: a systematic review

Investigating the Management of Carious Primary Teeth in General Dental Practice: An Overview of the Development and Conduct of the Fiction Trial

Traumatic dental injury research: on children or with children?

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