Involving older people in research:

Ward, Lizzie; Gahagan, Beatrice

doi:10.2307/j.ctt9qgshb.23

Cited by 2 publications

(1 citation statement)

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“…Research initiatives in which older adults are involved as co-researchers often take the form of invitations from researchers (Fudge et al ., 2007). Participants found in this manner seldom have personal or first-hand experience of the research topic (Ward and Gahagan, 2012). Instead, the focus in such research is placed on age as an indicator of representativeness.…”

Section: Introductionmentioning

confidence: 99%

Person-centred research practice: the user involvement in research of older adults with first-hand experience of reablement

2020

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Abstract User involvement is increasingly common in health-care research, and the ideal is user participation and influence during all research stages. Here we describe and reflect on the processes and outcomes associated with advisory group–researcher collaboration from a person-centred perspective. When planning a study in which older adults’ experiences of reablement were investigated, older adults with previous first-hand experience of reablement participated in an advisory group. We found that the fostering of healthful relationships, in which experiential and research knowledge are considered complimentary and equitable, and all members have the power to exercise their unique roles, seems to be a prerequisite for the co-creation of knowledge. Also, practical arrangements and social relationships constitute important details that are crucial to ensuring contribution from older adults with health-related conditions. While such individuals may be unable to participate during all stages of a research project, their involvement on an advisory level during the initial stages can increase study quality and relevance. Input from the advisory group members contributed to the improvement of the language in the study information sheet, improvement of the study design, development and validation of the interview guide, and insight into how the interviews should be conducted. The personal knowledge and expertise of the advisory group members, which emanated from their immediate sensitivity, contributed to the person-centredness in the study.

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Section: Introductionmentioning

confidence: 99%

Person-centred research practice: the user involvement in research of older adults with first-hand experience of reablement

2020

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Building knowledge for policy and practice based on service user and carer experiences: A case study of Scottish adult safeguarding research

Sherwood-Johnson

Mackay

2020

Journal of Social Work

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Summary This article presents Scottish adult safeguarding as a case study to illuminate some challenges of building knowledge for policy and practice based on service user and carer voices. It draws on five of our own research projects that have evaluated implementation of Scottish adult safeguarding legislation and/or asked more exploratory questions about risk, safety and support. Findings We show how practical and ethical issues limited our more evaluative lines of inquiry. We then show how increasingly participative approaches led to studies that were more accessible and that connected more deeply with service users’ and carers' lives, but that also faced greater challenges in the translation of their findings back into the policy and/or practice environment. Applications We conclude with an argument for ongoing dialogue between policy-makers, professionals, service users and carers, researchers, educators and students about knowledge, its different forms and sources, its generation and its use.

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Involving older people in research:

Cited by 2 publications

References 0 publications

Person-centred research practice: the user involvement in research of older adults with first-hand experience of reablement

Person-centred research practice: the user involvement in research of older adults with first-hand experience of reablement

Building knowledge for policy and practice based on service user and carer experiences: A case study of Scottish adult safeguarding research

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