Involving people with dementia in developing an interactive web tool for shared decision-making: experiences with a participatory design approach

Abstract

People with dementia can give essential feedback and, therefore, their contribution is useful and valuable. Meaningful participation of people with dementia takes time that should be taken into account. It is important for people with dementia to be able to reciprocate the efforts others make and to feel of significance to others. Implications for Rehabilitation People with dementia can contribute meaningfully to the content and design and their perspective is essential for developing useful and user-friendly tools. Participating in research activities may contribute to social inclusion, empowerment, and quality of life of people with dementia.

Technologies to Support Community-Dwelling Persons With Dementia: A Position Paper on Issues Regarding Development, Usability, Effectiveness and Cost-Effectiveness, Deployment, and Ethics

“…This includes the coproduction of new innovations for research and for practice, with the involvement of end users from the outset [32,33]. In practice, however, people with dementia have rarely been involved in technology development, with user acceptability tending to be assessed via family carers and others [11,24,34].…”

“…In practice, however, people with dementia have rarely been involved in technology development, with user acceptability tending to be assessed via family carers and others [11,24,34]. Successful examples of collaborative working with people with mild-to-moderate dementia are emerging [14,33,35-37]. However, people with more severe dementia are less often included in development of assistive technologies.…”

“…Research has revealed that persons with dementia are enthusiastic about using assistive technology to remain independent and also about taking part in technology design [23,33]. At the same time, some challenges remain, such as how to personalize and tailor technologies to the individual and changing needs and abilities of persons with dementia.…”

“…Development issues: Research has revealed that people with dementia are enthusiastic about using assistive technology to remain independent and also about taking part in technology design [23,33]. It is envisaged that the involvement of end users in the development of new assistive technologies will continue to grow, and that more applications of existing technology, using, for example, mobile phones and apps, will be put to use to benefit persons with dementia.…”

Assistive Technology and Cognitive-Behavioral Programs for Promoting Adaptive Skills of Persons with Alzheimer Disease: A Selective Review

“…Their physical exercises were supported, their daily activities favorably managed, their communication skills promoted, their leisure and occupation opportunities significantly increased.Furthermore, their challenging behaviors were relevantly reduced. One may argue that the AT-based strategies may have beneficial effects on the participants' quality of life[64][65].Second, the AT options may be considered asaffordable solutions for caregivers and families. That is, its coast is commonly less than 1000 USD.…”