Involving people with dementia in the development of supportive IT applications: A systematic review

Span, Marijke; Hettinga, Marike; Vernooij‐Dassen, Myrra; Eefsting, Jan A.; Smits, Carolien

doi:10.1016/j.arr.2013.01.002

Cited by 145 publications

(143 citation statements)

References 27 publications

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“…However most research has focussed primarily on using technology to promote safety and security for people with dementia and their informal carers (Lauriks et al 2007;Riikonen et al 2010;Span et al 2013). Astell (2013) (Upton et al 2011) and; general enhancement in social interaction and well-being through engaging with fun games and applications (Fenney and Lee 2010;Leng et al 2013;Padala et al 2012;Tobiasson 2010;Upton et al 2011).…”

Section: Living Well With Dementia Using Digital Gaming Technologymentioning

confidence: 99%

Does Digital Gaming Enable Healthy Aging for Community-Dwelling People With Dementia?

2015

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This article critically explores the benefits of commercial digital gaming technology for healthy aging of people with dementia. Research with community-dwelling people with dementia has highlighted the need for enhanced access to nonpharmacological interventions to support social engagement. Commercially available technologies offer a means to engage people with dementia. This article expands on this body of knowledge by assessing the benefits of digital gaming on healthy aging for community-dwelling people with dementia who have participated in a series of Tech Clubs using Apple iPads, Nintendo Wii, and Nintendo DS. Findings from this study demonstrates that use of digital gaming technologies promotes lifelong learning; optimization of mental, physical, and social stimulation; and independence, all of which promote the agenda of healthy aging.

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Section: Living Well With Dementia Using Digital Gaming Technologymentioning

confidence: 99%

Does Digital Gaming Enable Healthy Aging for Community-Dwelling People With Dementia?

2015

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“…Letting these aged and impaired individuals participate, is thus a way to protect their previously ignored interests [17], [18]. Span et al [19] see different roles for a person with dementia in a research project: as object of study, informant or as an actual participant. Only a minority of the studies researched in their literature review has the person with dementia as an actual participant (co-creator).…”

Section: Dementia and Participatory Designmentioning

confidence: 99%

Designing with Dementia: Guidelines for Participatory Design together with Persons with Dementia

Hendriks

Truyen

Duval

2013

Lecture Notes in Computer Science

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Abstract. Involving all stakeholders in the design process is often seen as a necessity from both a pragmatic and a moral point of view [1]. This is always a challenging task for designers and stakeholders and therefore many participatory design methods have been developed to facilitate such a design process. The traditional participatory design methods, however, are not fully appropriate to incorporate persons with dementia [2], [3]. They create issues as they assume that the participants are cognitively able; can make use of visual and hands-on techniques; or require a high level of abstraction ability of the person with dementia.The aim of this paper is to present a number of guidelines which can be used as a starting point to set up participatory design projects with persons with dementia. This overarching set of guidelines provides for practical advice focusing on the role of the moderator, the preparation of a participatory session, the choice and adaptation of the method, the tools used, the role of each participant and the subsequent analysis. The basis for these guidelines stems from similar participatory projects with senior participants, persons with dementia and participants with aphasia or amnesia, two symptoms frequently co-occurring with dementia. All guidelines were evaluated and refined during four sessions with persons with dementia and a trusted family member. These participatory design sessions occurred in the course of the AToM project, a research and design project that tries to design an intelligent network of objects and people to ameliorate the life of persons with dementia.Keywords: participatory design 1 , persons with dementia, method, guidelines 1 We choose to use the term participatory design and not collective design or the Scandinavian tradition, being the predecessors of participatory design [4]. Neither did we use the term participative design which is set more in a UK tradition of participation and is thus less focused on co-creation [5].

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“…The authors argued that the involvement of people living with dementia and their family carers can help to ensure the development of appropriate AT that is 'fit for purpose' and that it can also enhance feelings of empowerment in people living with dementia. 127 However, even when included in the design of AT, people living with dementia are likely to need ongoing support. In an ethnographic study 133 looking at methods to support the involvement of older people in the coproduction of AT, participants suggested that they would need ongoing support and assistance once the technology had been provided and that family members would need to be involved throughout the provision process.…”

Section: Resmentioning

confidence: 99%

“…Twenty-two of the 79 research papers were reviews. Of those, 15 were systematic reviews, 79,80,82,84,89,90,93,101,[125][126][127]131,132,137,143 one was a realist review 134 and six were non-systematic reviews. 25,37,45,66,73,105 The rest of the research papers (n = 57) related to primary research.…”

Section: Description Of Studiesmentioning

confidence: 99%

Managing diabetes in people with dementia: a realist review

Bunn

Goodman

Jones

et al. 2017

Health Technol Assess

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BackgroundDementia and diabetes mellitus are common long-term conditions that coexist in a large number of older people. People living with dementia and diabetes may be at increased risk of complications such as hypoglycaemic episodes because they are less able to manage their diabetes.ObjectivesTo identify the key features or mechanisms of programmes that aim to improve the management of diabetes in people with dementia and to identify areas needing further research.DesignRealist review, using an iterative, stakeholder-driven, four-stage approach. This involved scoping the literature and conducting stakeholder interviews to develop initial programme theories, systematic searches of the evidence to test and develop the theories, and the validation of programme theories with a purposive sample of stakeholders.ParticipantsTwenty-six stakeholders (user/patient representatives, dementia care providers, clinicians specialising in dementia or diabetes and researchers) took part in interviews and 24 participated in a consensus conference.Data sourcesThe following databases were searched from 1990 to March 2016: MEDLINE (PubMed), Cumulative Index to Nursing and Allied Health Literature, Scopus, The Cochrane Library (including the Cochrane Database of Systematic Reviews), Database of Abstracts of Reviews of Effects, the Health Technology Assessment (HTA) database, NHS Economic Evaluation Database, AgeInfo (Centre for Policy on Ageing – UK), Social Care Online, the National Institute for Health Research (NIHR) portfolio database, NHS Evidence, Google (Google Inc., Mountain View, CA, USA) and Google Scholar (Google Inc., Mountain View, CA, USA).ResultsWe included 89 papers. Ten papers focused directly on people living with dementia and diabetes, and the rest related to people with dementia or diabetes or other long-term conditions. We identified six context–mechanism–outcome (CMO) configurations that provide an explanatory account of how interventions might work to improve the management of diabetes in people living with dementia. This includes embedding positive attitudes towards people living with dementia, person-centred approaches to care planning, developing skills to provide tailored and flexible care, regular contact, family engagement and usability of assistive devices. A general metamechanism that emerges concerns the synergy between an intervention strategy, the dementia trajectory and social and environmental factors, especially family involvement. A flexible service model for people with dementia and diabetes would enable this synergy in a way that would lead to the improved management of diabetes in people living with dementia.LimitationsThere is little evidence relating to the management of diabetes in people living with dementia, although including a wider literature provided opportunities for transferable learning. The outcomes in our CMOs are largely experiential rather than clinical. This reflects the evidence available. Outcomes such as increased engagement in self-management are potential surrogates for better clinical management of diabetes, but this is not proven.ConclusionsThis review suggests that there is a need to prioritise quality of life, independence and patient and carer priorities over a more biomedical, target-driven approach. Much current research, particularly that specific to people living with dementia and diabetes, identifies deficiencies in, and problems with, current systems. Although we have highlighted the need for personalised care, continuity and family-centred approaches, there is much evidence to suggest that this is not currently happening. Future research on the management of diabetes in older people with complex health needs, including those with dementia, needs to look at how organisational structures and workforce development can be better aligned to the needs of people living with dementia and diabetes.Study registrationThis study is registered as PROSPERO CRD42015020625.FundingThe NIHR HTA programme.

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Involving people with dementia in the development of supportive IT applications: A systematic review

Cited by 145 publications

References 27 publications

Does Digital Gaming Enable Healthy Aging for Community-Dwelling People With Dementia?

Does Digital Gaming Enable Healthy Aging for Community-Dwelling People With Dementia?

Designing with Dementia: Guidelines for Participatory Design together with Persons with Dementia

Managing diabetes in people with dementia: a realist review

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