Is Internet use associated with anxiety in patients with and at risk for cardiomyopathy?

Minto, Clara; Bauce, Barbara; Calore, Chiara; Rigato, Ilaria; Folino, Franco; Soriani, Nicola; Hochdorn, Alexander; Iliceto, Sabino; Gregori, Darío

doi:10.1016/j.ahj.2015.02.024

Cited by 21 publications

(15 citation statements)

References 27 publications

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“…The access to seek health information online and the ability to do so was a fundamental characteristic of the actions implemented by the individual in many of these studies. Primarily, the Internet was described as a preferred source for individuals through many of the studies (Kratzke et al, 2013;Longo et al, 2010;Mills, Powell, Barry, & Haga, 2015;Minto et al, 2015). Discretionary actions related to online HISB were also examined.…”

Section: Characteristics Of Hisbmentioning

confidence: 99%

“…Situational factors that influence HISB were widely ranging and often relevant to the type of information being sought. Information seekers were motivated by concerns or diagnosis regarding a specific condition such as diabetes (Jamal et al, 2015), prostate cancer (Davison, & Breckon, 2012), cardiomyopathy (Minto et al, 2015) or urologic symptoms (Jackson et al, 2013). Social networks (Wonsun et al, 2015) and families (Noh et al, 2016) were found to positively impact HISB and willingness to undergo treatment (Roettl et al, 2016).…”

Section: Antecedentsmentioning

confidence: 99%

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Health information seeking behaviour: a concept analysis

Zimmerman

Shaw

2020

Health Info Libraries J

128

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Background In 2007, Lambert and Loiselle conducted an extensive concept analysis of the term health information seeking behaviour (HISB) to examine the concept's level of maturity and critically analyse its characteristics. Since their groundbreaking work, HISB has evolved with the proliferation of ICTs. The Internet is now a common and often preferred medium for the pursuit of health information. Objectives The previous analysis spanned 42 years of literature; this article describes an analysis of the last 10 years of literature on HISB and how online seeking has caused the concept to evolve in the literature. Methods This study used the concept analysis methodology employed by Lambert and Loiselle in the original analysis. It also included a systematic search conducted in five databases to identify studies from 2007 to 2017, using similar inclusion criteria from the original study. Results Of the more than 500 articles retrieved, 85 journal articles met the inclusion criteria. Consistent with the original work, articles that included outcomes were identified as either behavioural or cognitive. Conclusion Most of the attention of the works studied focused on individuals and their information source preferences. This HISB analysis can be incorporated with studies to understand how various communities seek information in online versus non‐online contexts.

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Section: Characteristics Of Hisbmentioning

confidence: 99%

Section: Antecedentsmentioning

confidence: 99%

Health information seeking behaviour: a concept analysis

Zimmerman

Shaw

2020

Health Info Libraries J

128

View full text Add to dashboard Cite

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“…Increasing numbers of patients using the Internet to search for health-related information 12,13 , with this information adding to that already supplied by the healthcare professional in a clinical setting. In a recent study of patients at risk of cardiomyopathy by Minto et al the authors found that online health information usage has been associated with a reduction in patient anxiety 14 .…”

Section: Introductionmentioning

confidence: 99%

Online Information on the Treatment of Burning Mouth Syndrome: Quality and Readability

Alnafea¹,

Fedele²,

Porter³

et al. 2017

J Oral Facial Pain Headache

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Aims: the aims of this study were to evaluate the quality and readability of online information regarding the treatment of BMS. Methods: An Internet search using the phrase 'burning mouth syndrome treatment' was carried out on the Google search engine (www.google.co.uk) on June 8 th 2015. The first 100 websites listed were then examined. Data collection included DISCERN score, the Journal of the American Medical Association (JAMA) benchmarks for website analysis score, the presence of the Health on the Net (HON) seal and the Flesch Reading Ease Score. Descriptive statistics were performed using Microsoft Office Excel. Results: The search strategy initially yielded 635,000 links and following the application of the exclusion criteria 53 sites remained for analysis. The overall DISCERN score varied between websites, with half of all websites achieving an overall score of 2 and none of these websites achieving the maximum score of 5 (2.4 ± 0.7). Only 18.9% (10) of the websites achieved the four JAMA benchmarks while 5.7% (3) of the websites had not achieve any of them. Nine of the 53 assessed websites (17%) displayed the HON seal. The Flesch Reading Ease scores (FRES) of the websites ranged between 32.4 and 82.2. The mean rating was 55.4 (±10.7), which is considered to reflect fairly difficult reading. Conclusion: In conclusion, the information available online regarding BMS is of questionable quality and content. Perhaps engaging patients in determining what type and format of information they desire when searching online for health information could guide clinicians and researchers alike in providing such reliable and readable information sources.

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“…Depression was also commonly reported in several studies (32, 33) and on the patient advocacy websites (28,29). The most commonly reported impact measured in the literature review was anxiety, which was mentioned in four studies (32)(33)(34). It was also noted on the patient advocacy websites (28,29).…”

Section: Literature Reviewmentioning

confidence: 98%

Patient experiences with obstructive and nonobstructive hypertrophic cardiomyopathy: a conceptual model of symptoms and impacts on quality of life

Zaiser

Sehnert

Duenas

et al. 2020

Preprint

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Background Hypertrophic cardiomyopathy (HCM) is a primary myocardial disorder defined by left ventricular hypertrophy that cannot be explained by another cardiac or systemic disease. There is a general lack of knowledge about patients’ perspectives on the symptoms and day-to-day limitations they experience as a result of HCM. We therefore sought an in-depth understanding of patients’ experiences of obstructive (oHCM) and nonobstructive (nHCM) forms of the disease, including symptoms and their quality of life impacts, and to develop a conceptual model to capture them. Methods Development of the HCM conceptual model involved a web-based survey to capture patients’ insights, a targeted literature review (which included relevant guidelines and patient advocacy websites), one-to-one interviews with clinical experts, and one-to-one qualitative concept elicitation interviews with patients. Key symptoms and their impacts most important to patients’ experiences were identified and used to develop a conceptual model of the patient experience with HCM. Results The HCM symptoms reported by patient interviewees (n = 27) were largely consistent with findings from the patient web survey (n = 444), literature review, and interviews with three expert clinicians. The symptoms most commonly reported in patient interviews included tiredness (89%), shortness of breath (89%), shortness of breath with physical activity (89%), and dizziness/light-headedness (89%). Other symptoms commonly reported included chest pain (angina) (70%), chest pain (angina) with physical exertion (70%), and palpitations (fluttering or rapid heartbeat) (81%). The most commonly reported impacts of HCM symptoms on patients’ lives included limitations to physical activities (78%), emotional impacts, including feeling anxious or depressed (78%), and impacts on work (63%). Symptoms and impacts were similar for both oHCM and nHCM. Conclusions A conceptual model was developed, which identifies the core symptoms that patients with oHCM and nHCM reported as most frequent and most important: shortness of breath, palpitations, fatigue/tiredness, dizziness/light-headedness, and chest pain, as well as the impacts those symptoms have on patients’ lives. This HCM conceptual model reflecting patients’ experiences and perspectives was used in the development of a patient-reported outcomes instrument for use in clinical trials and it may also help inform the clinical management of HCM.

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Is Internet use associated with anxiety in patients with and at risk for cardiomyopathy?

Cited by 21 publications

References 27 publications

Health information seeking behaviour: a concept analysis

Health information seeking behaviour: a concept analysis

Online Information on the Treatment of Burning Mouth Syndrome: Quality and Readability

Patient experiences with obstructive and nonobstructive hypertrophic cardiomyopathy: a conceptual model of symptoms and impacts on quality of life

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