Is it time to reconsider the term “cancer survivor”?

Berry, Leonard L.; Davis, Scott W.; Landercasper, Jeffrey; Deming, Katie

doi:10.1080/07347332.2018.1522411

Cited by 46 publications

(36 citation statements)

References 38 publications

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“…Statistics on contemporary treatment patterns and survival, as well as information about issues related to survivorship, are also presented. Herein, “cancer survivor” refers to any person who has been diagnosed with cancer, from the time of diagnosis through the remainder of life, although it is important to recognize that not all people with a history of cancer identify as survivors …”

Section: Introductionmentioning

confidence: 99%

Cancer treatment and survivorship statistics, 2019

Miller

Nogueira

Mariotto

et al. 2019

CA A Cancer J Clinicians

3,694

2,656

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effects are also briefly described. More than 16.9 million Americans (8.1 million males and 8.8 million females) with a history of cancer were alive on January 1, 2019; this number is projected to reach more than 22.1 million by January 1, 2030 based on the growth and aging of the population alone. The 3 most prevalent cancers in 2019 are prostate (3,650,030), colon and rectum (776,120), and melanoma of the skin (684,470) among males, and breast (3,861,520), uterine corpus (807,860), and colon and rectum (768,650) among females. More than one-half (56%) of survivors were diagnosed within the past 10 years, and almost two-thirds (64%) are aged 65 years or older. People with a history of cancer have unique medical and psychosocial needs that require proactive assessment and management by follow-up care providers. Although there are growing numbers of tools that can assist patients, caregivers, and clinicians in navigating the various phases of cancer survivorship, further evidence-based resources are needed to optimize care.

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Section: Introductionmentioning

confidence: 99%

Cancer treatment and survivorship statistics, 2019

Miller

Nogueira

Mariotto

et al. 2019

CA A Cancer J Clinicians

3,694

2,656

View full text Add to dashboard Cite

show abstract

“…This study complements the existing body of research, in the use of visual methods to picture cancer survivorship. The findings contribute to debates and proposals to reconsider the cancer survivorship terminology within oncology (see, e.g., Berry et al, 2019). As for any qualitative study, the aim was not to produce generalisable findings, but to take a deep dive into the lived experience of study participants.…”

Section: Limitations and Implications For Future Researchmentioning

confidence: 82%

“…and while empirical studies have engaged extensively with "survivorship" and the issues arising for identity (Berry, Davis, Godfrey Flynn, Landercasper, & Deming, 2019;Cheung & Delfabbro, 2016;Kaiser, 2008;Little, Paul, Jordens, & Sayers, 2002) and oncological practice (Bell & Ristovski-Slijepcevic, 2013;Kelly, Shah, Shedlosky-Shoemaker, Porter, & Agnese, 2011;Ristovski-Slijepcevic & Bell, 2014), less attention has been paid to the various ways of making sense of "cancer" and the implications for survivorship. Cancer survivorship cannot be interrogated without concurrently addressing the complex and ambiguous meanings associated with cancer (see Jain, 2013:4).…”

mentioning

confidence: 99%

Cancer survivorship reimagined: A qualitative study on evolving interpretative repertoires of cancer and survivorship using participant‐produced photography

Plage

2020

Eur J Cancer Care

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“…Moreover, social media research on "body positivity", or the promotion of the appreciation for a wide range of body types and appearances, suggests that posts that challenge socially dominant representations of beauty have positive psychosocial effects on consumers of these images. [48] As mentioned in previous literature, [49] aligned with this reframing is the undercurrent the term "cancer survivor" may not be representative of the diverse experience of all those who complete cancer treatment. However, posts that explicitly pushed back against conventional notions of health and beauty were not nearly as prominent, let alone popular, as those that focus on a return to a pre-cancer state.…”

Section: Discussionmentioning

confidence: 99%

Content shared on social media for national cancer survivors day 2018

Cherian

Whall

et al. 2020

PLoS ONE

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Background Studies estimate that the number of cancer survivors will double by 2050 due to improvements in diagnostic accuracy and treatment efficacy. Despite the growing population of cancer survivors, there is a paucity of research regarding how these individuals experience the transition from active treatment to long-term surveillance. While research has explored this transition from more organized venues, such as support groups for cancer survivors, this paper explores the discourses surrounding cancer survivorship on social media, paying particular attention to how individuals who identify as cancer survivors represent their experience. Methods We identified social media posts relating to cancer survivorship on Twitter and Instagram in early June 2018, in order to coincide with National Cancer Survivorship Day on June 3, 2018. We used nine pre-selected hashtags to identify content. For each hashtag, we manually collected the 150 most recent posts from Twitter and the 100 most recent plus the top 9 posts from Instagram. Our preliminary sample included 1172 posts; after eliminating posts from one hashtag due to irrelevance, we were left with 1063 posts. We randomly sampled 200 of these to create a subset for analysis; after review for irrelevant posts, 193 posts remained for analysis (118 from Instagram and 75 from Twitter). We utilized a grounded theory approach to analyze the posts, first open-coding a subset to develop a codebook, then applying the codebook to the rest of the sample and finally memo writing to develop themes. Results Overall, there is substantial difference in the tone and thematic content between Instagram and Twitter posts, Instagram takes on a more narrative form that represents journeys through cancer treatment and subsequent survivorship, whereas Twitter is more factual, leaning towards advocacy, awareness and fundraising. In terms of content type, 120 posts (62%) of the sample were images, of which 42 (35%) were images of the individual posting

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Is it time to reconsider the term “cancer survivor”?

Cited by 46 publications

References 38 publications

Cancer treatment and survivorship statistics, 2019

Cancer treatment and survivorship statistics, 2019

Cancer survivorship reimagined: A qualitative study on evolving interpretative repertoires of cancer and survivorship using participant‐produced photography

Content shared on social media for national cancer survivors day 2018

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