Is it too early to move to full electronic PROM data collection?

Palmen, Leonieke N.; Schrier, Joost C.M.; Scholten, Ruben; Jansen, Justus; Koëter, Sander

doi:10.1016/j.fas.2015.05.001

Cited by 31 publications

(24 citation statements)

References 26 publications

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“…PROMIS Short Forms are less daunting options for older individuals and easily deployed in community-based settings. 48 Therefore, our results provide important evidence for healthcare systems considering PROMIS as a standard tool for patient-centered care, 25 and for scientific groups considering PROMIS for hierarchical lists of recommended instruments. 5,11,32 …”

Section: Discussionmentioning

confidence: 72%

Responsiveness and Minimally Important Differences for 4 Patient-Reported Outcomes Measurement Information System Short Forms: Physical Function, Pain Interference, Depression, and Anxiety in Knee Osteoarthritis

Lee

Driban

Price

et al. 2017

The Journal of Pain

157

150

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Patient-Reported Outcomes Measurement Information System (PROMIS) instruments can provide valid, interpretable measures of health status among adults with osteoarthritis (OA). However, their ability to detect meaningful change over time is unknown. We evaluated the responsiveness and minimally important differences (MID) for four PROMIS Short Forms: Physical Function, Pain Interference, Depression, and Anxiety. We analyzed adults with symptomatic knee OA from our randomized trial comparing Tai Chi and physical therapy. Using baseline and 12-week scores, responsiveness was evaluated according to consensus standards by testing 6 a priori hypotheses of the correlations between PROMIS and legacy change scores. Responsiveness was considered high if ≥5 hypotheses were confirmed, and moderate if 3 or 4 were confirmed. MIDs were evaluated according to prospective change for people achieving previously-established MID on legacy comparators. The lowest and highest MIDs meeting a priori quality criteria formed an MID range for each PROMIS Short Form. Among 165 predominantly female (70%) and white (57%) participants, mean age was 61 years and body mass index was 33kg/m2. PROMIS Physical Function had 5 confirmed hypotheses and Pain Interference, Depression, and Anxiety had 3 or 4. MID ranges were: Depression=3.0–3.1; Anxiety=2.3–3.4; Physical Function=1.9–2.2; and Pain Interference=2.35–2.4. PROMIS Physical Function has high responsiveness, and Depression, Anxiety, and Pain Interference have moderate responsiveness among adults with knee OA. We established the first MIDs for PROMIS in this population, and provided an important standard of reference to better apply or interpret PROMIS in future trials or clinical practice.

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Section: Discussionmentioning

confidence: 72%

Responsiveness and Minimally Important Differences for 4 Patient-Reported Outcomes Measurement Information System Short Forms: Physical Function, Pain Interference, Depression, and Anxiety in Knee Osteoarthritis

Lee

Driban

Price

et al. 2017

The Journal of Pain

157

150

View full text Add to dashboard Cite

show abstract

“…However, when patients were also offered the opportunity to fill out PROMs in clinic on a tablet device, the completion rate improved to 74% (23 patients). 21 Palmen et al 22 emailed 24 patients postoperatively asking them to complete ePROMs online and found poor completion rates of 33%. In contrast, we found a preappointment completion rate of 50.1% and achieved an overall completion rate of 85.9% with much larger numbers and put this down to the way in which our pilot was part of a complete service improvement agenda and not an isolated technology ‘add-on’.…”

Section: Discussionmentioning

confidence: 99%

Electronic capture of patient-reported and clinician-reported outcome measures in an elective orthopaedic setting: a retrospective cohort analysis

et al. 2016

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ObjectivesTo determine whether an entirely electronic system can be used to capture both patient-reported outcomes (electronic Patient-Reported Outcome Measures, ePROMs) as well as clinician-validated diagnostic and complexity data in an elective surgical orthopaedic outpatient setting. To examine patients' experience of this system and factors impacting their experience.DesignRetrospective analysis of prospectively collected data.SettingSingle centre series. Outpatient clinics at an elective foot and ankle unit in the UK.ParticipantsAll new adult patients attending elective orthopaedic outpatient clinics over a 32-month period.InterventionsAll patients were invited to complete ePROMs prior to attending their outpatient appointment. At their appointment, those patients who had not completed ePROMs were offered the opportunity to complete it on a tablet device with technical support. Matched diagnostic and complexity data were captured by the treating consultant during the appointment.Outcome measuresCapture rates of patient-reported and clinician-reported data. All information and technology (IT) failures, language and disability barriers were captured. Patients were asked to rate their experience of using ePROMs. The scoring systems used included EQ-5D-5L, the Manchester-Oxford Foot Questionnaire (MOxFQ) and the Visual Analogue Scale (VAS) pain score.ResultsOut of 2534 new patients, 2176 (85.9%) completed ePROMs, of whom 1090 (50.09%) completed ePROMs at home/work prior to their appointment. 31.5% used a mobile (smartphone/tablet) device. Clinician-reported data were captured on 2491 patients (98.3%). The mean patient experience score of using Patient-Reported Outcome Measures (PROMs) was 8.55±1.85 out of 10 and 666 patients (30.61%) left comments. Of patients leaving comments, 214 (32.13%) felt ePROMs did not adequately capture their symptoms and these patients had significantly lower patient experience scores (p<0.001).ConclusionsThis study demonstrates the successful implementation of technology into a service improvement programme. Excellent capture rates of ePROMs and clinician-validated diagnostic data can be achieved within a National Health Service setting.

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“…Nota et al reported similar response rates for electronic and paper questionnaires in a cohort of patients presenting to a hand and upper extremity department; interestingly, they found telephone contact to yield higher response rates [17]. By contrast, Palmen et al found a far greater response rate for paper questionnaires sent to a cohort of patients following surgery for hallux valgus [6]. A third trial, surveying 533 women prior to mammography, was more similar to ours by virtue of having a postal reminder 10 days following initial contact [7].…”

Section: A C C E P T E D Accepted Manuscriptmentioning

confidence: 97%

“…Despite this, the viability of using such a system remains unclear on two grounds; namely the response rate associated with this medium, and the generalisability of participants who do so. In particular, previous studies have reported electronic contact to have an inferior response rate compared to usual paper questionnaires in health research and other settings [5][6][7].…”

Section: Introductionmentioning

confidence: 99%

A randomized trial found online questionnaires supplemented by postal reminders generated a cost-effective and generalizable sample but don’t forget the reminders

Loban

Mandefield

Hind

et al. 2017

Journal of Clinical Epidemiology

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Is it too early to move to full electronic PROM data collection?

Cited by 31 publications

References 26 publications

Responsiveness and Minimally Important Differences for 4 Patient-Reported Outcomes Measurement Information System Short Forms: Physical Function, Pain Interference, Depression, and Anxiety in Knee Osteoarthritis

Responsiveness and Minimally Important Differences for 4 Patient-Reported Outcomes Measurement Information System Short Forms: Physical Function, Pain Interference, Depression, and Anxiety in Knee Osteoarthritis

Electronic capture of patient-reported and clinician-reported outcome measures in an elective orthopaedic setting: a retrospective cohort analysis

A randomized trial found online questionnaires supplemented by postal reminders generated a cost-effective and generalizable sample but don’t forget the reminders

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