Is my story so different from yours? Comparing life stories, experiences of institutionalization and self‐advocacy in England and Iceland

Hreinsdóttir, Eygló Ebba; Stefánsdóttir, Guðrún V.; Lewthwaite, Anne; Ledger, Sue; Shufflebotham, Lindy

doi:10.1111/j.1468-3156.2006.00417.x

Cited by 18 publications

(15 citation statements)

References 7 publications

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“…Oral history techniques, using individual and group interviews, have been successfully developed, bringing new insights and perspectives on the history of intellectual disability. (See, for example, Atkinson and Williams 1990;Potts and Fido 1991;Walmsley 1995;Atkinson 1997;Atkinson, Jackson, and Walmsley 1997;Brigham et al 2000;Rolph 2000b;Hreinsdottir et al 2006;Roets, Adams, and Van Hove 2006).…”

Section: Oral Historymentioning

confidence: 99%

“…Informants have included nurses, doctors and other staff as well as former residents (Stevens 1997). Examples across the world include Dillon and Holburn (2003) in the US, Malacrida (2006) in Canada, Hreinsdottir et al (2006) in Iceland and Manning (2008) in Australia. All have highlighted the capacity of oral testimonies to add details that cannot be found in more abstract accounts.…”

Section: Institutional Historiesmentioning

confidence: 99%

“…In this paper we explore how oral history and biographical approaches have enabled the voices of people with intellectual disabilities, and others, to contribute to the construction of history (Atkinson, Jackson, and Walmsley 1997;Brigham et al 2000;Hreinsdottir et al 2006). We draw principally on developments in the UK to illustrate the use of a range of sources as advocated by Armstrong (2002) including the perspectives of various participants such as families, practitioners and people who use the services (Welshman and Walmsley 2006, 3), together with primary and secondary documentary accounts.…”

Section: Introductionmentioning

confidence: 99%

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History from the inside: towards an inclusive history of intellectual disability

Atkinson¹,

Walmsley

2010

Scandinavian Journal of Disability Research

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This paper reviews the place of the 'voice' in the history of intellectual disability, drawing principally on developments in the UK, but also making reference to comparative developments in other countries. Various approaches have been used by research historians to collect and represent the voices of those involved in this history; including biographical reconstruction, oral history, institutional histories and life histories. In response to the challenge, 'Nothing About Us Without Us' the slogan of the disabled people's movement, the paper argues for the careful use of oral and biographical accounts to augment histories told through official sources and examines some of the methodological challenges associated with such approaches. However, the argument of this paper, ultimately, is in favour of what we are calling 'inclusive history', where academic historians and oral/life historians contribute to the development of a shared history of intellectual disability.

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Section: Oral Historymentioning

confidence: 99%

Section: Institutional Historiesmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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History from the inside: towards an inclusive history of intellectual disability

Atkinson¹,

Walmsley

2010

Scandinavian Journal of Disability Research

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“…Social science research on cultural differences has explored a number of belief constructs such as motivational beliefs (e.g., Casillas et al, 2006), self-advocacy beliefs (e.g., Hreinsdóttir et al, 2006), and self-efficacy beliefs (e.g., Klassen, 2004). Educational psychology researchers have also begun to explore cultural differences in students' beliefs about knowledge and knowing, or epistemic beliefs (e.g., Alexander & Douchy, 1995;Chan & Elliot, 2002;Jacobson et al, 1997;Kuhn & Park, 2005;Mason & Castiglioni, 2000;Nasser & Birenbaum, 2005;.…”

Section: Review Of the Related Literaturementioning

confidence: 99%

Knowing, Knowledge and Beliefs

2008

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“…2004;Carson & Docherty 2002; Chapman & McNutty 2004; Ham et al. 2004; Hreinsdóttir et al. 2006; Docherty et al.…”

Section: Introductionmentioning

confidence: 99%

Gambling for capital: learning disability, inclusive research and collaborative life histories

Björnsdóttir¹,

Svensdóttir²

2008

British Journal of Learning Disabilities

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Accessible summary• This paper is about a partnership between a self-advocate with learning disabilities and a university student. • We think it is important for people with learning disabilities to be involved in research as partners with university researchers. • We think it is important for people with learning disabilities to have the opportunity to tell their story. We believe it can help others; both people with learning disabilities, carers and researchers. • We think that people with learning disabilities are not taken seriously as researchers by university researchers. SummaryThe aim of this paper is to reflect on research collaboration between a research participant with learning disability and a nondisabled doctoral student. In the paper we explore the inclusiveness of our research partnership and how collaborative life histories can be empowering both for participants and researchers. We suggest that it is possible to make any kind of research inclusive, although doctoral projects can perhaps not be fully inclusive because of academic requirements. We argue that people with learning disabilities should have the opportunity to be involved in research and that collaborative writing between nondisabled researchers and people with learning disabilities is no less valuable than other disability research and should be taken seriously by policy makers and academia. A second aim of the paper is to reflect on our position, as a nondisabled researcher and a researcher with learning disabilities, in the field of disability studies. We state that as researchers we have little power in the field of disability studies because researchers with learning disabilities are not taken seriously and nondisabled researchers tend to be met with scepticism.

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Is my story so different from yours? Comparing life stories, experiences of institutionalization and self‐advocacy in England and Iceland

Cited by 18 publications

References 7 publications

History from the inside: towards an inclusive history of intellectual disability

History from the inside: towards an inclusive history of intellectual disability

Knowing, Knowledge and Beliefs

Gambling for capital: learning disability, inclusive research and collaborative life histories

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