Is pre-bereavement collaboration between family caregivers and healthcare professionals associated with post-bereavement emotional well-being? A population-based survey

Matthys, Orphé; Dierickx, Sigrid; Deliëns, Luc; Lapeire, Lore; Hudson, Peter; Audenhove, Chantal Van; Vleminck, Aline De; Cohen, Joachim

doi:10.1016/j.pec.2023.107654

Cited by 3 publications

(4 citation statements)

References 40 publications

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“…In this assumption, it is found that the attitude of people has been changing, as in other areas of social life, with a growing tendency to be an integral part of the decision-making processes under preventive and treatment measures ( Miller & Reihlen, 2023 ). This participation necessarily requires appropriation of relevant information and ability to decide with confidence and autonomy in health, which corroborates the learning aspect of SC through an efficient teaching, individualized and adapted to the needs and objectives of each person/family ( Matthys et al, 2023 ). Therefore, a family-centered approach recognizes the strengths of individuals as active agents, and not merely passive recipients of health services ( ISF, 2023c ).…”

Section: Background Of Self-carementioning

confidence: 74%

“…No matter what kind of family we face, they are all organized through a relational structure where roles and functions analogous to social expectations are defined. In this conjecture, families have the primary responsibility to meet the health needs of their members, and for this, it is essential that they have resources, opportunities, and well-being ( Gray, 1996 ; Matthys et al, 2023 ). Thus, a pattern of FSC can be particularly relevant in specific contexts of the family life cycle, especially when there are children, who, due to their specific characteristics, are unable to SC.…”

Section: From Family Systemic Conception To Family Self-carementioning

confidence: 99%

“…Currently, the prevalence of chronic diseases leads the population context, thus nurses and other healthcare professionals need to have knowledge that allows them, in an integrated approach, care, and to teach the family as a fundamental unit of society, in the acquisition and maintenance of SC ( Matthys et al, 2023 ; Miller & Reihlen, 2023 ; Tulu et al, 2021 ). Family care is widely considered a relational experience and takes place within a historical context of family interaction ( Esandi et al, 2021 ).…”

Section: Introductionmentioning

confidence: 99%

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Family Self-Care in Chronic Disease Management: An Evolving Care Pattern?

Mestre,

Caldeira,

Lopes

2024

SAGE Open Nursing

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Introduction Self-care emerges in the family context, despite being seen as an individual determinant of health. The family, understood as a system and social unit, converges to a pattern of self-care and not to a sum of it, assuming relevance at certain moments of the life cycle, particularly in the management of chronic disease. Purpose To perform the transposition of individual self-care to the family self-care, considering the current family's needs and characteristics, by adopting family self-care as the core concept of a care pattern as a determinant of family health. Conclusion The family unit is the most influential factor in the health status of individuals, and it will be through family self-care behaviors that families can be healthier by managing their diseases more effectively. They seek to achieve family health, maintaining health through health promotion and disease management practices, always mediated by family self-care behaviors.

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Section: Background Of Self-carementioning

confidence: 74%

Section: From Family Systemic Conception To Family Self-carementioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Family Self-Care in Chronic Disease Management: An Evolving Care Pattern?

Mestre,

Caldeira,

Lopes

2024

SAGE Open Nursing

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“…Previous research has shown there are positive associations between quality of families' collaboration with health-care professionals (e.g., perceptions of care provision, information provision, communication, support) and emotional well-being of family carers post-bereavement (Matthys et al 2023). Although not registered health professionals, LCSs ascertain and address psychosocial needs of people living in long-term care facilities, apply supportive measures, and promote health to meet needs and expectations of individuals their families over time.…”

Section: Discussionmentioning

confidence: 99%

“You’re the only thing he comes out [of his room] for”: A qualitative study of engagement between Laughter Care Specialists and families of people with dementia in long-term care

DiGiacomo,

Roberts,

Luckett

et al. 2024

Pall Supp Care

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Objectives Family involvement in the lives of people who have dementia and live in long-term care is important, but family members may face challenges communicating and connecting with their loved one as dementia progresses. A type of therapeutic humor (Laughter Care) delivered by trained specialists aims to engage people with dementia who reside in long-term care through creative play and laughter. This study aimed to explore the perceptions of Laughter Care Specialists (LCSs) regarding families’ engagement with the program. Methods Semi-structured interviews were conducted with LCSs (n = 8) and analyzed inductively using thematic analysis. Results Family members were reported to initially have varied degrees of openness toward Laughter Care, but often become more accepting after observing positive engagement with the person with dementia. Family members were perceived to benefit from the program through witnessing the person with dementia enjoy joyous and light interactions, learn new ways of communicating and connecting with the person with dementia, and engage in positive interactions at end of life. Significance of results Laughter Care may provide family members with novel ways of communicating and connecting with people who have dementia at end of life as well as comfort into bereavement.

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Advance care planning in patients with respiratory failure

Ribeiro,

Pamplona,

Simonds

2024

Eur Respir Rev

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Advance care planning (ACP) is a complex and iterative communication process between patients, surrogates and clinicians that defines goals of care that may include, but is not limited to, documentation of advance directives. The aim of ACP is to promote patient-centred care tailored to the patient's clinical situation through informed preparation for the future and improved communication between patient, clinicians and surrogates, if the latter need to make decisions on patient's behalf.The aim of this article is to review research related to ACP in acute and chronic respiratory failure, regarding the process, communication, shared decision-making, implementation and outcomes.Research has produced controversial results on ACP interventions due to the heterogeneity of measures and outcomes, but positive outcomes have been described regarding the quality of patient–physician communication, preference for comfort care, decisional conflict and patient–caregiver congruence of preferences and improved documentation of ACP or advance directives.The main barriers to ACP in chronic respiratory failure are the uncertainty of prognosis (particularly in the organ failure trajectory), the choice of the best timing for initiation and the lack of training of healthcare workers. In acute respiratory failure, the ACP process can be very short, should include the patient whenever possible, and is based on a discussion of treatments appropriate to the patient's functional status prior to the event (e.g.assessment of frailty) and clear communication of the likely consequences of possible options.All healthcare worker dealing with patients with serious illnesses should have training in communication skills to promote engagement in ACP discussions.

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Is pre-bereavement collaboration between family caregivers and healthcare professionals associated with post-bereavement emotional well-being? A population-based survey

Cited by 3 publications

References 40 publications

Family Self-Care in Chronic Disease Management: An Evolving Care Pattern?

Family Self-Care in Chronic Disease Management: An Evolving Care Pattern?

“You’re the only thing he comes out [of his room] for”: A qualitative study of engagement between Laughter Care Specialists and families of people with dementia in long-term care

Advance care planning in patients with respiratory failure

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