Issues in Qualitative Research on Sensitive Topics

Cowles, Kathleen V.

doi:10.1177/019394598801000205

Cited by 147 publications

(161 citation statements)

References 5 publications

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“…The interviews began with a broad introductory format where the individual's story is elicited, which is a successful strategy for interviews on sensitive topics (22)(23). The interview guide (see Table I), based on the study's purpose and objectives, was generated from issues identified from a systematic and extensive review of the literature (24) and the clinical expertise of the investigators.…”

Section: Methodsmentioning

confidence: 99%

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Disclosure decisions among pregnant women who received donor oocytes: a phenomenological study

Hershberger

Klock

Barnes

2007

Fertility and Sterility

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Capsule-Controversy surrounding disclosure among donor oocyte recipients is escalating worldwide. This in-depth analysis captures the voice of pregnant women who received donor oocytes and the factors that influence their decision to disclosure.OBJECTIVE-Controversy surrounding disclosure among donor oocyte recipients is escalating worldwide, yet little research has sought to understand the disclosure experience of pregnant, donor oocyte recipient women. The purpose of this study was to provide an in-depth description of the disclosure experience, and identify factors that were significant to recipient women which influenced their reasoning as they formulated disclosure decisions. DESIGN-Qualitative, naturalistic design using a phenomenological approach. SETTING-The home or private office of the recipient woman. PARTICIPANTS-Donor oocyte recipient women between 9 and 23 weeks gestation.RESULTS-Disclosure decisions were influenced by multiple factors emerging from the women's values and beliefs and their social and cultural environment. Values and beliefs consisted of the right to know and the duty to protect. Social and cultural factors included social support, culture of the family, evolution of the social process, and personal testimonials. Women's age and selection of donor type are interrelated with disclosure decisions.CONCLUSIONS-Disclosing women voiced the right of the child to know and perceived social and cultural factors as conducive to disclosure. Non-disclosing and undecided women emphasized protecting normative relationships, perceived social stigma, and were unable to identify a benefit to disclosing. Women's age and choice of oocyte donor should be considered when counseling recipient women.

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Section: Methodsmentioning

confidence: 99%

“…The second interview, recommended for interviews on sensitive topics (22,25), was completed with each participant to expand and clarify information described in the initial interview. Other methods of data collection included a demographic questionnaire, completed by each participant, and field notes, recorded by the investigator.…”

Section: Methodsmentioning

confidence: 99%

Disclosure decisions among pregnant women who received donor oocytes: a phenomenological study

Hershberger

Klock

Barnes

2007

Fertility and Sterility

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“…Guiding the depth of an interview, protecting the trust of respondents, being open to the data, realizing a certain degree of dependency exists in some respondents, anticipating the need for therapeutic intervention in some situations, and constantly permitting flexible communication and discussion of emergent problems-all call attention to a humane, moral, and responsible way of conducting research (Cowles, 1988;Ramos, 1989).…”

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confidence: 99%

“…Nurses have repeatedly written about an ethical dilemma unique to the nurse researcher-role conflict (Cowles, 1988;Fowler, 1988;MunhaU, 1999;Ramos, 1989;Robinson & Thorne, 1988). This occurs when the ethics of protecting the person as patient clashes with the role of researcher.…”

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confidence: 99%

“…What we learn from and convey by thick description, however, can be vitally important to the life and meaning of our research. The answer to the dilemma from several perspectives (Cowles, 1988;Davis, 1991;Lincoln & Guba, 1987) seems to be two-fold: if the narrative requires it, retain it and return to the respondent for permission, verification, and justification.…”

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confidence: 99%

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The ethics of qualitative nursing research

Robley

1995

Journal of Professional Nursing

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Reflecting on research: Researcher identity in conflict studies from the perspectives of participants

Uluğ

Acar

Kanık

2021

Euro J Social Psych

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While researchers have long discussed the impact that ingroup–outgroup identities may have on participant–researcher dynamics, no previous study that we know of has investigated how these identities impact participants’ decisions to participate in research in conflict contexts. In this study, we aimed to examine participants’ perspectives on their decisions to participate in research and how those decisions may be related to both their and the researchers’ identities as well as other important dynamics, such as political ideology. We used the Turkish–Kurdish conflict as a case and examined participants’ perspectives on Turkish researchers in this conflict context. More specifically, we investigated (1) opinions and feelings about Turkish researchers; (2) reasons for (not) participating in research by Turkish researchers; (3) the ways Turkish researchers affect participants’ decisions; and (4) attitudes toward Kurdish researchers. We used a survey with open‐ended questions to explore participants’ perspectives and analysed the data from 137 participants who identify as Kurdish using qualitative content analysis. Results highlighted the important opinions and feelings about Turkish researchers such as researchers’ ideological positions, objectivity, and sincerity, as well as how researchers’ other identities may affect participants’ evaluations of their research and how Kurdish researchers are perceived by Kurdish participants. We discuss the ingroup–outgroup dynamics together with other identities in relation to existing identity literature, as well as practical implications of our research for participant recruitment.

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Issues in Qualitative Research on Sensitive Topics

Cited by 147 publications

References 5 publications

Disclosure decisions among pregnant women who received donor oocytes: a phenomenological study

Disclosure decisions among pregnant women who received donor oocytes: a phenomenological study

The ethics of qualitative nursing research

Reflecting on research: Researcher identity in conflict studies from the perspectives of participants

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