Issues Related to Providing Quality Pediatric Palliative Care in the Community

Carroll, Jean Marie; Torkildson, Christy; Winsness, Jeannine S.

doi:10.1016/j.pcl.2007.06.002

Cited by 29 publications

(14 citation statements)

References 21 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Having standards for care will help allay nurses worry and ensure children and their families receive quality palliative care. 23 Specific nurses for pediatric patients only may accelerate their learning experience and reduce stress levels of those who preferred not to care for children.…”

Section: Discussionmentioning

confidence: 99%

Community Palliative Care Nurses’ Challenges and Coping Strategies on Delivering Home-Based Pediatric Palliative Care

Chong¹,

Abdullah

2016

Am J Hosp Palliat Care

View full text Add to dashboard Cite

These results reinforces the need for integration of pediatric palliative care teaching and communication skills training into all undergraduate health care programs. Provider organizational support to meet the specific needs of the nurses in the community can help retain them in their role. It will also be important to develop standards for current and new palliative care services to ensure delivery of quality pediatric palliative care.

show abstract

Section: Discussionmentioning

confidence: 99%

Community Palliative Care Nurses’ Challenges and Coping Strategies on Delivering Home-Based Pediatric Palliative Care

Chong¹,

Abdullah

2016

Am J Hosp Palliat Care

View full text Add to dashboard Cite

show abstract

“…Several studies in this context raise the concern that emotional barriers towards palliative care, as well as uncertainty regarding the integration of curative and palliative care, can have severe consequences for the referral practice [8,9]. Children with life-limiting diseases suffer from a range of conditions like congenital disorders, neurodegenerative diseases and malignancies where accurate predictions regarding the diagnosis itself and the course of the disease are particularly difficult.…”

Section: Discussionmentioning

confidence: 99%

“…Special prescription forms for opioids have to be ordered by the individual physician and are not always on hand. Remuneration issues, organisational barriers like huge distances in rural areas, as well as questions of responsibilities and referral at the interface between inpatient and outpatient sector can complicate the involvement of generalists in paediatric palliative home care [8,9]. …”

Section: Introductionmentioning

confidence: 99%

Paediatric palliative home care by general paediatricians: a multimethod study on perceived barriers and incentives

et al. 2010

View full text Add to dashboard Cite

BackgroundNon-specialist palliative care, as it is delivered by general practitioners, is a basic component of a comprehensive palliative care infrastructure for adult patients with progressive and far advanced disease. Currently palliative care for children and adolescents is recognized as a distinct entity of care, requiring networks of service providers across different settings, including paediatricians working in general practice. In Germany, the medical home care for children and adolescents is to a large extent delivered by general paediatricians working in their own practice. However, these are rarely confronted with children suffering from life-limiting diseases. The aim of this study was therefore to examine potential barriers, incentives, and the professional self-image of general paediatricians with regard to paediatric palliative care.MethodsBased on qualitative expert interviews, a questionnaire was designed and a survey among general paediatricians in their own practice (n = 293) was undertaken. The survey has been developed and performed in close cooperation with the regional professional association of paediatricians.ResultsThe results showed a high disposition on part of the paediatricians to engage in palliative care, and the majority of respondents regarded palliative care as part of their profile. Main barriers for the implementation were time restrictions (40.7%) and financial burden (31.6%), sole responsibility without team support (31.1%), as well as formal requirements such as forms and prescriptions (26.6%). Major facilitations were support by local specialist services such as home care nursing service (83.0%), access to a specialist paediatric palliative care consultation team (82.4%), as well as an option of exchange with colleagues (60.1%).ConclusionsAltogether, the high commitment to this survey reflects the relevance of the issue for paediatricians working in general practice. Education in basic palliative care competence and communication skills was seen as an important prerequisite for the engagement in paediatric palliative home care. A local network of specialist support on site and a 24/7 on-call service are necessary in order to facilitate the implementation of basic palliative care by paediatricians in their own practice.

show abstract

“…22,23 Despite steady growth in the hospice industry, recent evidence indicates that hospices willing to care for children are decreasing in number. 24 All hospices are encouraged to provide care to children to maintain a core level of competency; hospices caring for children should adhere to the National Hospice and Palliative Care Organization Standards of Practice for Pediatric Palliative Care and Hospice.…”

Section: Relationships With Hospices and Hospice Pediatric Standardsmentioning

confidence: 99%

Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations

Jewell¹,

Friebert²,

Carter³

et al. 2013

Pediatrics

383

101

View full text Add to dashboard Cite

Pediatric palliative care and pediatric hospice care (PPC-PHC) are often essential aspects of medical care for patients who have life-threatening conditions or need end-of-life care. PPC-PHC aims to relieve suffering, improve quality of life, facilitate informed decision-making, and assist in care coordination between clinicians and across sites of care. Core commitments of PPC-PHC include being patient centered and family engaged; respecting and partnering with patients and families; pursuing care that is high quality, readily accessible, and equitable; providing care across the age spectrum and life span, integrated into the continuum of care; ensuring that all clinicians can provide basic palliative care and consult PPC-PHC specialists in a timely manner; and improving care through research and quality improvement efforts. PPC-PHC guidelines and recommendations include ensuring that all large health care organizations serving children with life-threatening conditions have dedicated interdisciplinary PPC-PHC teams, which should develop collaborative relationships between hospital-and community-based teams; that PPC-PHC be provided as integrated multimodal care and practiced as a cornerstone of patient safety and quality for patients with life-threatening conditions; that PPC-PHC teams should facilitate clear, compassionate, and forthright discussions about medical issues and the goals of care and support families, siblings, and health care staff; that PPC-PHC be part of all pediatric education and training curricula, be an active area of research and quality improvement, and exemplify the highest ethical standards; and that PPC-PHC services be supported by financial and regulatory arrangements to ensure access to high-quality PPC-PHC by all patients with life-threatening and life-shortening diseases. Pediatrics 2013;132:966-972 INTRODUCTIONOver the past two decades, pediatric palliative care has emerged as an established field of medical expertise and practice. [1][2][3] Recognized in 2006 by the American Board of Medical Specialties, hospice and palliative medicine is the field of medical expertise that seeks to improve quality of life and reduce various forms of distress for patients and their families in the face of serious life-threatening or inevitably lifeshortening conditions or when end-of-life care or bereavement services are needed. Pediatric palliative care addresses the needs of infants, children, adolescents, and young adults (subsequently referred to SECTION collectively as "children") with these conditions and the needs of their families, providing treatments that aim to (1) relieve suffering across multiple realms, including the physical (eg, pain or dyspnea), psychological (depression, anxiety, or sense of guilt), social (isolation), practical (home-based services or financial stress), and existential or spiritual (why is this happening?); (2) improve the child' s quality and enjoyment of life while helping families adapt and function during the illness and through bereavement; (3) f...

show abstract

Issues Related to Providing Quality Pediatric Palliative Care in the Community

Cited by 29 publications

References 21 publications

Community Palliative Care Nurses’ Challenges and Coping Strategies on Delivering Home-Based Pediatric Palliative Care

Community Palliative Care Nurses’ Challenges and Coping Strategies on Delivering Home-Based Pediatric Palliative Care

Paediatric palliative home care by general paediatricians: a multimethod study on perceived barriers and incentives

Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations

Contact Info

Product

Resources

About