‘It is a horrible term for someone’: service user and provider perspectives on ‘personality disorder’

Exploring stigmatisation among people diagnosed with either bipolar disorder or borderline personality disorder: A critical realist analysis

“…Exploitation, the other 'face', did not feature in participants' experiences. Pathologisation among participants diagnosed with BPD reflects and reinterprets some views described previously (Castillo, 2003;Ramon et al, 2001;Shaw and Proctor, 2005;Stalker et al, 2005). And BD participants' pathologisation experience mirrors a subjective preference to interpret one's experience outside of dominant psychiatric frameworks (J€ onsson et al, 2008;Martin, 2007).…”

“…The powerlessness entailed in being prevented from developing subjective interpretations of one's distress has been noted in the context of BD (Proudfoot et al, 2009). BPD healthcare marginalisation in terms of withheld diagnosis (Fallon, 2003;Rogers and Dunne, 2011), or lack of treatment (Nehls, 1999;Ramon et al, 2001;Stalker et al, 2005) has been previously noted, as has workplace exclusion of people diagnosed with BD (Lim et al, 2004;Michalak et al, 2006). Whilst violent experiences for both diagnoses is generally underreported in the literature, a few instances of violence in healthcare have been documented (Castillo, 2003;Haigh, 2002).…”

“…A small qualitative literature has explored the subjective experience of BPD (Fallon, 2003;Horn et al, 2007;Miller, 1994;Nehls, 1999;Ramon et al, 2001;Rogers and Dunne, 2011;Stalker et al, 2005), most of which has paid some attention, at least, to stigma or discrimination, although these concepts are rarely defined, not the focus of inquiry, and never critiqued or reviewed in the light of the study's empirical evidence. Themes from this literature on BPD and the stigma experienced or anticipated by people with the diagnosis can be divided into two broad categories: the stigma surrounding the act of diagnosis and the label itself (Horn et al, 2007;Nehls, 1999;Ramon et al, 2001;Stalker et al, 2005) and the stigma experienced and anticipated in the context of healthcare (Stalker et al, 2005) including being stereotyped (Haigh, 2002;Nehls, 1999), being subjected to psychological abuse (Castillo, 2003;Haigh, 2002) and having the diagnosis withheld (Castillo, 2003;Crawford et al, 2007;Fallon, 2003;Haigh, 2002;Horn et al, 2007;Rogers and Dunne, 2011) which is linked to being excluded from treatment (Horn et al, 2007;Nehls,1999;Ramon et al, 2001;Stalker et al, 2005) and explicitly contradicts professional guidance (NICE, 2009;NIMH, 2003).…”

‘They told me I had this personality disorder … All of a sudden I was wasting their time’: Personality disorder and the inpatient experience

“…While still limited, there appears to be more qualitative research into the experiences of mental health services in general for those with a personality disorder (Fallon, 2003;Horn et al, 2007;Nehls, 1999;Stalker et al, 2005). Although not exclusively discussing the inpatient experience, it was a theme that frequently arose during these studies.…”

Why do people with mental distress have poor social outcomes? Four lessons from the capabilities approach

“…Stalker et al, 2005). People with mental distress now spend less time living in physically segregated institutions (Bentall, 2009, pp.42e44;Busfield, 2011, p.178).…”