“It is just another test they want to do”: Patient and caregiver understanding of the colonoscopy procedure

King‐Marshall, Evelyn; Mueller, Nora; Dailey, Amy B.; Barnett, Tracey E.; George, Thomas J.; Sultan, Shahnaz; Curbow, Barbara

doi:10.1016/j.pec.2015.10.021

Cited by 17 publications

(20 citation statements)

References 29 publications

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“…1 A study from the United States evaluating the colonoscopy consent process demonstrated significant variability in patients' understanding of colonoscopy. 2 This study also confirmed the strong association between patients' health literacy and their understanding of the colonoscopy procedure after the informed consent process. 2 Therapeutic procedures such as EMR for large or advanced colorectal polyps are more complex than routine colonoscopy, carry significantly greater risks, and often involve discussion about alternative treatments, such as surgical resection (SR).…”

supporting

confidence: 75%

“…2 This study also confirmed the strong association between patients' health literacy and their understanding of the colonoscopy procedure after the informed consent process. 2 Therapeutic procedures such as EMR for large or advanced colorectal polyps are more complex than routine colonoscopy, carry significantly greater risks, and often involve discussion about alternative treatments, such as surgical resection (SR). Therefore, if achieving satisfactory informed consent is challenging for standard diagnostic colonoscopy, how much more so is difficulty likely to be encountered when consenting for colonoscopy and EMR?…”

supporting

confidence: 75%

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Completing the circle of informed consent for EMR versus surgery for nonmalignant large or complex colorectal polyps

Moss

Nalankilli

2016

Gastrointestinal Endoscopy

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supporting

confidence: 75%

supporting

confidence: 75%

Completing the circle of informed consent for EMR versus surgery for nonmalignant large or complex colorectal polyps

Moss

Nalankilli

2016

Gastrointestinal Endoscopy

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“…In one study, 70% of respondents indicated they had not received enough information about the procedure, which decreased their comfort during the procedure [29]. A study on patient perceptions of the colonoscopy has shown a lack of knowledge about anatomy, the procedure and the reason for undergoing a colonoscopy [33]. These findings could explain why physicians more often explain to patients why this procedure is needed, as well as the impact the results will have on treatment and the potential risks associated with this procedure.…”

Section: Discussionmentioning

confidence: 99%

“…Certain tests, such as a colonoscopy or blood tests, are not appreciated by patients and generate anxiety [28–32]. It is therefore important that patients receive and understand the information about the risks and benefits of the various tests and procedures [33, 34].…”

Section: Introductionmentioning

confidence: 99%

Inflammatory bowel disease patient perceptions of diagnostic and monitoring tests and procedures

et al. 2019

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Background Inflammatory Bowel Disease (IBD) with its high incidence and prevalence rates in Canada generates a heavy burden of tests and procedures. The purpose of this study is to gain a better understanding of the transfer of information from physician to patient, as well as the patient understanding and perceptions about the tests and procedures that are ordered to them in the context of IBD diagnosis and monitoring. Methods An online questionnaire was completed by 210 IBD patients in Canada. Information on the five most-often used tests or procedures in IBD diagnosis/monitoring was collected. These include: general blood test, colonoscopy, colon biopsy, medical imaging and stool testing. Results The general blood test is both the most ordered and most refused tool. It is also the one with which patients are the least comfortable, the one that generates the least concern and the one about which physicians provide the least information. The stool test is the test/procedure with which patients are the most comfortable. Procedures raise more concerns among patients and physicians provide more information about why they are needed, their impact and the risks they present. Very little information is provided to patients about the risks of having false positives or negative tests. Conclusions This study provides an initial understanding of patient perceptions, the transfer of information from a physician to a patient and a patient’s understanding of the tests and procedures that will be required to treat IBD throughout what is a lifelong disease. The present study takes a first step in better understanding the acceptance of the test or procedure by IBD patients, which is essential for them to adhere to the monitoring process. Electronic supplementary material The online version of this article (10.1186/s12876-019-0946-8) contains supplementary material, which is available to authorized users.

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“…For example, one’s perceived risk for cancer, a known determinant of screening behavior (Kiviniemi et al, 2011), is dependent on one’s knowledge of risk factors and, beliefs about the relation of risk factors to likelihood of disease. Moreover, lower SES is associated with poorer knowledge about screening procedures (King-Marshall et al, 2016). In addition, SES may affect perceptions of barriers to screening and efficacy for screening since factors such as cost, insurance coverage, and ability to take time off work can serve as both real and perceived barriers to screening uptake (James et al, 2008).…”

Section: Socioeconomic Status Decision Making and Behaviormentioning

confidence: 99%

Decision-making and socioeconomic disparities in colonoscopy screening in African Americans.

Kiviniemi¹,

Klasko-Foster²,

Erwin³

et al. 2018

Health Psychology

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These findings suggest that cognitive and affective decision-making constructs account for at least some of the SES disparities in colorectal cancer screening behavior. As such, more research is needed to explore the intra individual-level influences of disparities in colorectal cancer screening. In addition, work is needed to develop effective intervention approaches to address the relation of SES to decision-making constructs. (PsycINFO Database Record

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“It is just another test they want to do”: Patient and caregiver understanding of the colonoscopy procedure

Cited by 17 publications

References 29 publications

Completing the circle of informed consent for EMR versus surgery for nonmalignant large or complex colorectal polyps

Completing the circle of informed consent for EMR versus surgery for nonmalignant large or complex colorectal polyps

Inflammatory bowel disease patient perceptions of diagnostic and monitoring tests and procedures

Decision-making and socioeconomic disparities in colonoscopy screening in African Americans.

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