"It just seems outside my health"

Lim, Catherine; Berry, Andrew; Hirsch, Tad; Hartzler, Andrea L.; Wagner, Edward H.; Ludman, Evette; Ralston, James D.

doi:10.1145/2901790.2901866

Cited by 65 publications

(27 citation statements)

References 46 publications

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“…This may leave out values that providers do not perceive to be directly related to health care concerns. Our prior work [23] suggests that this communication boundary between patients' medical concerns and patients' values is reinforced by patient perceptions of what providers want to know. In that study, patients often did not disclose values freely because patients did not perceive their values to be pertinent to their health care.…”

Section: Encouraging Communication About Patient Valuesmentioning

confidence: 99%

“…Our prior work has explored MCC patients' perspectives on communicating with providers about values [23]. Herein, we extend this work by adding providers' perspectives.…”

Section: Supporting Patient-provider Communication Through Interactivmentioning

confidence: 99%

“…It is possible that our view of patient-provider communication about patients' values was biased by this withholding Future work could explore this by analyzing differences in the types of values patients share at home [23] versus types of values they share during the clinic visits.…”

Section: Limitations and Future Workmentioning

confidence: 99%

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Creating Conditions for Patients' Values to Emerge in Clinical Conversations

Berry

Lim

Hartzler

et al. 2017

Proceedings of the 2017 Conference on Designing Interactive Systems

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Eliciting, understanding, and honoring patients' values-the things most important to them in daily life-is a cornerstone of patient-centered care. However, this rarely occurs explicitly as a routine part of clinical practice. This is particularly problematic for individuals with multiple chronic conditions (MCC) because they face difficult choices about how to balance competing demands for self-care in accordance with their values. In this study, we sought to inform the design of interventions to support conversations about patient values between patients with MCC and their health care providers. We conducted a field study that included observations of 21 clinic visits for patients who have MCC, and interviews with 16 care team members involved in those visits. This paper contributes a practice-based account of ways in which providers engage with patient values, and discusses how future work in interactive systems design might extend and enrich these engagements.

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Section: Encouraging Communication About Patient Valuesmentioning

confidence: 99%

“…Our prior work has explored MCC patients' perspectives on communicating with providers about values [23]. Herein, we extend this work by adding providers' perspectives.…”

Section: Supporting Patient-provider Communication Through Interactivmentioning

confidence: 99%

See 1 more Smart Citation

Creating Conditions for Patients' Values to Emerge in Clinical Conversations

Berry

Lim

Hartzler

et al. 2017

Proceedings of the 2017 Conference on Designing Interactive Systems

Self Cite

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“…This makes the idea behind the progress bar more perceptible than using just bar charts or graphs as is the case in most applications available for monitoring physical activity (Walters et al, 2010). To enable patients to make sense of personal health information, it is necessary to exploit the patient"s perceptions to present targets and prescriptions (Lim et al, 2016). Figure 1.a shows a representation of the prescription in the mobile application interface.…”

Section: Correct Interpretation and Understandingmentioning

confidence: 99%

Have You Met Your METs? – Enhancing Patient Motivation to Achieve Physical Activity Targets in Cardiac Tele-rehabilitation

Sankaran

Luyten

Hansen

et al. 2018

Electronic Workshops in Computing

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Physical exercise is a primary component of cardiac rehabilitation. Interpreting exercise targets and being aware of the expected effort while rehabilitating independently at home is challenging for patients. Our work aims to assist cardiac patients in understanding their condition better and motivating them to achieve their exercise targets in a tele-rehabilitation setting. We introduce a patient-centric intelligible visualization approach to present prescribed rehabilitation targets to patients based on Metabolic Equivalent of Tasks (METs). We assessed efficacy of intelligible visualizations on patients' comprehension in a lab study. We evaluated the impact on patient motivation and health outcomes in field studies. Patients were able to manage their prescribed activities, monitor their progress, and gained understanding on how their physical activities contribute to their rehabilitation targets. Patients confirmed that the intelligible visualizations motivated them to achieve their targets better. We observed an improvement in overall physical activity levels and health outcomes of patients.

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“…They identified gaps between the groups with implications on design and adoption of technology [35]. Another study revealed limitations of existing approaches to support patient-provider communication and identified challenges for the design of systems that honor patient needs and preferences [36].…”

Section: Emerging Research In Humancomputer Interactionmentioning

confidence: 99%

Present and Future Trends in Consumer Health Informatics and Patient-Generated Health Data

Lai¹,

Hsueh²,

Choi³

et al. 2017

Yearb Med Inform

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SummaryObjectives: Consumer Health Informatics (CHI) and the use of Patient-Generated Health Data (PGHD) are rapidly growing focus areas in healthcare. The objective of this paper is to briefly review the literature that has been published over the past few years and to provide a sense of where the field is going. Methods: We searched PubMed and the ACM Digital Library for articles published between 2014 and 2016 on the topics of CHI and PGHD. The results of the search were screened for relevance and categorized into a set of common themes. We discuss the major topics covered in these articles. Results: We retrieved 65 articles from our PubMed query and 32 articles from our ACM Digital Library query. After a review of titles, we were left with 47 articles to conduct our full article survey of the activities in CHI and PGHD. We have summarized these articles and placed them into major categories of activity. Within the domain of consumer health informatics, articles focused on mobile health and patient-generated health data comprise the majority of the articles published in recent years. Conclusions: Current evidence indicates that technological advancements and the widespread availability of affordable consumer-grade devices are fueling research into using PGHD for better care. As we observe a growing number of (pilot) developments using various mobile health technologies to collect PGHD, major gaps still exist in how to use the data by both patients and providers. Further research is needed to understand the impact of PGHD on clinical outcomes. KeywordsConsumer health information/methods; patient-generated health data; mHealth; user-computer interface; consumer participation in delivery of health careYearb Med Inform 2017:152-9 http://dx

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"It just seems outside my health"

Cited by 65 publications

References 46 publications

Creating Conditions for Patients' Values to Emerge in Clinical Conversations

Creating Conditions for Patients' Values to Emerge in Clinical Conversations

Have You Met Your METs? – Enhancing Patient Motivation to Achieve Physical Activity Targets in Cardiac Tele-rehabilitation

Present and Future Trends in Consumer Health Informatics and Patient-Generated Health Data

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