‘It's a 24/7 Deal’: Parents of adults with intellectual and developmental disabilities discuss natural supports

Sanderson, Kelli A.; Aquino, Michael

doi:10.1111/jar.13145

Cited by 4 publications

(1 citation statement)

References 41 publications

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“…For example, this study reinforces findings of prior research noting the benefit of leveraging natural supports in the workplace such as connections with co‐workers and mentors (Hughes et al, 2019; Storey, 2003) and between employees, employment specialists, and employers (Luecking, 2011; Migliore et al, 2010; O'Brien & Callahan, 2010; Post et al, 2010). Additionally, the benefits of strengthening family and other informal and formal supports to benefit employment outcomes for persons with intellectual disabilities, including those that promote physical and mental health outcomes (Iwanaga et al, 2021; Park & Park, 2021; Sanderson & Aquino, 2023). Any discussions around or development of best practices should be developed in collaboration with self‐advocates and based on lessons learned from success stories.…”

Section: Discussionmentioning

confidence: 99%

‘They don't think I can do it’: Experiences of self‐advocates, employment specialists, and employers on employment of adults with intellectual disability

Morris,

Christianson‐Barker,

Stainton

et al. 2024

Research Intellect Disabil

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BackgroundA multi‐phase Canadian study was conducted as part of a large‐scale community and academic research partnership focused on understanding and improving the employment experiences of people with intellectual disabilities.MethodThis multi‐method study utilized a sequential approach, using findings from qualitative interviews (n = 28) to inform an online survey (n = 149). Participants were invited to share their experiences with paid employment or with persons with intellectual disabilities.ResultsThematic analysis of data across interview and survey findings resulted in six themes: (1) assumptions and attitudes, (2) knowledge and awareness, (3) accessibility of processes, (4) use of accommodations, (5) workplace relationships, and (6) supports and resources.ConclusionsA holistic and systemic approach has the potential to improve inclusive employment experiences of people with intellectual disabilities. Action is needed mainly at the policy and employer level to reduce barriers and improve on facilitating measures reinforced by the themes shared in this study.

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Section: Discussionmentioning

confidence: 99%

‘They don't think I can do it’: Experiences of self‐advocates, employment specialists, and employers on employment of adults with intellectual disability

Morris,

Christianson‐Barker,

Stainton

et al. 2024

Research Intellect Disabil

View full text Add to dashboard Cite

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The Limits and Contributions of Formal Support: Service Providers’ Perspectives on Balancing Formal and Natural Support for People with Disabilities and their Families in Canada

Nuri,

Piccone,

Gaurav

et al. 2024

J Dev Phys Disabil

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Evidence suggests that integrated support, combining both natural and formal supports, is often essential for individuals with developmental disabilities to achieve their preferred quality of life. However, studies are limited on how to organize supports so that people with developmental disabilities and their families find a balance between formal and natural supports. Often, there are systemic and personal boundaries around the nature and extent of support that can be offered to persons with developmental disabilities through formal mechanisms, yet the value of natural supports in the lives of persons with developmental disabilities is often undervalued in society. Therefore, the objectives of this study were to explore formal support providers’ perspectives on (a) the unique skillsets and attributes of natural support providers and formal support providers; and (b) how we might best enable both natural and formal supports for persons with developmental disabilities and their families. Following a qualitative approach, we interviewed 16 formal support providers working with adults with developmental disabilities and their families via Zoom. We analyzed data using thematic analysis. We organized results into three themes: the role of natural supports, the role of formal supports, and strategies to best configure a system of supports. Results imply that there is a need for investment of funding to incentivize both support structures for adults with developmental disabilities and their families. Future studies should explore the perspectives from people with developmental disabilities and their natural support providers.

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Nurse–Mother Collaborations in Disability Day‐Service Centres for Individuals With Intellectual Disabilities

Ito,

Asakura,

Sugiyama

et al. 2024

Brit J Learn Disabil

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BackgroundDay‐service centres offer valuable support for individuals with intellectual disabilities, often referred to as service‐users. Due to potential communication challenges, nurses must gather information from caregivers, particularly mothers. This study explores the collaboration between nurses at day‐service centres and the mothers of service‐users to enhance care quality.MethodsThis qualitative study collected data from six nurses working at day‐service centres in Japan and conducted an analysis using a descriptive narrative approach. Each nurse participated in two or three semi‐structured interviews, where nurses were encouraged to speak freely, resulting in 16 interviews.FindingsThree key themes emerged from the collaboration between nurses and service‐users’ mothers: (1) ‘building good relationships with parents to ensure a smooth exchange of information about service‐users’; (2) ‘providing the same care at the day‐service centre as the service‐user would receive at home’; and (3) ‘identifying areas that nurses cannot compromise on while respecting how mothers care for their children’.ConclusionsThese findings provide insights into effective nursing care for individuals with intellectual disabilities in day‐service centres, emphasising the importance of productive engagement with their mothers.

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‘It's a 24/7 Deal’: Parents of adults with intellectual and developmental disabilities discuss natural supports

Cited by 4 publications

References 41 publications

‘They don't think I can do it’: Experiences of self‐advocates, employment specialists, and employers on employment of adults with intellectual disability

‘They don't think I can do it’: Experiences of self‐advocates, employment specialists, and employers on employment of adults with intellectual disability

The Limits and Contributions of Formal Support: Service Providers’ Perspectives on Balancing Formal and Natural Support for People with Disabilities and their Families in Canada

Nurse–Mother Collaborations in Disability Day‐Service Centres for Individuals With Intellectual Disabilities

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